Odd Monkey Out

When I was first diagnosed with Sarcoidosis, I told no one. Only my wife knew. I didn’t want anyone to know because it is such a rare and misunderstood disease that I just knew that people, especially in my family would blow it out of proportion and think that I had lung cancer. Then a…

You May Be Prepared, But Does Anyone Know What You Want?

I have always lived my life in the happiest way I know how, not taking life or myself too seriously, I always try to find the funny side of a bad situation, and that always has helped me get through it. When I was diagnosed with heart failure, at the same time realizing that my…

It’s A Long Lonely Road For Them Too

Imagine having a friend, a best friend, the absolute best person in the world that you enjoy every minute that you spend together. A person that you confide in, share you deepest thoughts, dreams, wishes and fears with. Someone you instantly think of to call when something happens in your life, funny or sad. Someone…

Looking For The Light At The End Of The Tunnel

I am a chef. I never planned to be a chef. I didn’t wake up one day when I was 12 and say “I am going to be a chef when I grow up”. When I was 12 I never thought of life beyond 13. As a matter of fact, going through high school when…

It’s Hot! The Air’s Bad!

It is so freaking hot and we have had three days in a row of extreme heat and bad air quality here in the New York Hudson Valley, two strikes against any pulmonary sarcoidosis sufferer. To make matters worse, I have a head cold, so my breathing is labored, also taxing my heart. In the…

But Wasn’t I Supposed To Live To Be 92?

Have you ever seen the TV series “Whose Line Is It Anyway?”? It’s an improvisational show where the performers are given a basic outline of a story, but they must make up the script as the go along. Sometimes, the outline of the original story changes and they end up on another path altogether. That’s…

It’s That Time Again

Today I take the train into the city to Mt. Sinai hospital in New York City to see my Pulmonologist, a trip I am dreading. Well, not really dreading, but more like not looking forward to. I could drive, which would be faster and cheaper, but the stress of driving into the city can take…