No One Else Has Seen The Prednisone Demon!

I posted a poll at the end of last month asking if anyone had noticed any side effects while taking prednisone. Seems no one does. Despite over 250 visitors to the site this month (the most in one month), only one person responded to my poll – me. Seems I am the only one out here…

But I Can See the “K”

I am doing a lot of monitoring these days. I have to monitor my oxygen saturation levels, my blood pressure, my weight and my fluid retention. I own a digital pulse oxymeter, one of those things that the doctor sticks on your finger to see what your blood oxygen saturation levels are. I do that two…

At Last, One Of The Tribe

As I pulled into the parking lot of a store and parked yesterday, another car pulled in and parked just a spot away from me. The driver got out, and he reached into the car and pulled out a blue bag, and slung it over his shoulder. I recognized the bag. It was a Helios 300 portable…

Shipping Off A Dream

  Yesterday, I went to the UPS store and shipped off a package, and with it went a dream. As I placed the package on the counter, I realized with all that the box contained was a wish that was never fulfilled. It was sad, but at the same time, it was a relief. The package…

No, You Don’t Owe Me Anything

There is something that people do that I never could really understand. It is not something I ever remember experiencing growing up or in my young adulthood. It is my brother’s birthday this week, and since I was not going to be able to see him on his actual birthday, I went to see him…

OMG! WTF? Did I Really Just Have A Fight On Facebook?

Remember those days when you actually had to be in front of someone face to face to have a conversation, or talk on the phone, where you actually used the spoken word and listened to the voice of the other person as it resonated with the sound of vowels and consonants? Remember when if you wanted to…

Life Has No Guarantees: Or How The Other Half Really Feels

I recently wrote a blog about the feelings of the spouse of patients with chronic diseases and today I came across a blog written by a woman whose husband/boyfriend is a sarcoidosis patient, and the despair that she feels with his attitude. It is a very intense read, and I suggest everyone with a chronic disease see…

My Poll Results.

I posted a poll on my “Take my poll” page and the results are in for “What part of your body is affected by sarcoidosis?” The results over the last few months are: Lungs: 36% Heart: 16% Eyes: 16% Lymph Sysytem: 12% Skin: 8% Kidney: 4% Liver: 4% Other: 4% I have posted a new…

It’s Wierd Being Old This Young

It’s very odd having illnesses that typically affect the elderly. Heart failure is usually associated with elderly people in the later stages of their life. Well, at least that is how the medical and pharmaceutical companies depict it. Every time I go onto a heart failure web site, or a pulmonary hypertension site, and even COPD sites…

Life With Buddy

I have a really good friend called Buddy. I was introduced to him in 2007. I met buddy when I was in the operating room and he was the one that was in charge of restarting my heart when they stopped it during the procedure. I know, a hospital operating room is a strange place…

Things To Make Me Go “Hmmm?”

In addition to sarcoidosis of the lungs and heart, I have a leaking PFO closure, heart failure and secondary pulmonary hypertension. Since each thing has its own prescription medication, I end up taking ten different prescription meds a day. One of them is called Tracleer, and it’s for the pulmonary hypertension. Tracleer is a specialty…

That Demon Called “Pred”

Entering the 9:20am train to New York City a few weeks ago, I was dumbfounded to see the train packed, with standing room only. Usually at that hour that train is virtually empty. There was a Yankees game in the Bronx, and the train was filled with loud Yankee fans. I managed to get a…

Being Thankful For America’s Aggressive Doctors

I recently received an email from a reader in Europe that had read the “My Story” page of my blog. They were very angry at the American Medical system for some reason and said that American doctors are too aggressive and love to slice and dice and over medicate, and that I was a victim…

A Day of Free Breath

The day before yesterday I experienced something rare ever since developing sarcoidosis. the ability to take deep breaths without feeling like a brick was on each lung. The feeling lasted well into the night, but alas, was gone by the following morning. What medical miracle did I partake of or had performed to give such…

An Invitation Signals A Few Changes

Yesterday I received an email from someone at the  with a suggestion to go to the health care bloggers code of ethics web site to accept their code and display their logo on my site. Eh? I am no health care professional and that is not what my blog is about. My blog is simply…

Feeling The Changes

    Before all my life changes, I could drive five hours down to Washington, DC, stay the day and drive the five hours back that night, no problem. Yesterday, I drove out to the shore, six hours back and forth and worked for eight hours without a break. Today, I am exhausted! Luckily today…