Day 31!

I did it. An entire month of daily posts to my blog. Finding different things to write about my life with sarcoidosis started off easy enough, but as the month drew to an end, the ideas began to dwindle. I guess I had too much going on. So here comes February tomorrow. It’s going to…

Kidneys Giving You Beans?

Been having some back pains in the area of the kidneys. Went to the doctor, did a full blood panel. Got the results and all is well. Really tired tonight, so it’s a short post. Composed by Basil Rene using WordPress for Blackberry

Live Forever?

I don’t use the post a day ideas for posts, but yesterday’s topic “Do you want to live forever?” had me thinking about people and the fear of death. When you think of it, we are born to die. From the day we are born we begin the process of death. Some take longer than…

Nap Snap

I took a nap today and now I am wide awake at almost three in the morning. So many thoughts are flying around in my head. I have a cardiologist appointment in the morning, blood tests after that, then I go to the accupunturist, and then hopefully take delivery of my new car. It’s been…

Unsupported

When I first was diagnosed with sarcoidosis, my doctor suggested I join a sarcoidosis support group. I never did. Then when I discovered I had heart failure, my cardiologist suggest I join a heart failure support group. I never did. Then when I discovered I had pulmonary hypertension, the manufacturer of my ridiculously expensive medication…

Looking Good

I had my field of vision test yesterday to check my peripheral vision as I am hydroxycholroquine for sarcoidosis which can affect eye sight. My opthamologist told me after the test that in all his years of practice, he has never seen such results. My peripheral vision is near perfect and I did the test…

Sea Breeze In A Bottle

I find there is nothing more relaxing and rejuvenating than sitting on the warm, white sand of a beautiful Caribbean beach, your hair blowing away from your face as you watch the beautiful water splash on shore, and that warm salty air filling your lungs. It especially rejuvenates me psychologically as I grew up in the Caribbean for…

Tired

It’s been a long day. A long week. I am tired. I admit it. So I am cheating by posting a very short post so that I keep up with my post a day challenge. At least it’s an effort. So here’s a quote, which I think I will adopt as my new mantra, from the venerable…

Twenty One Makes Me An Adult Blogger?

It’s day twenty one of the post a day challenge, and so far I have kept it up by posting twenty one blogs for the year so far, one every day. It has not been difficult. I have actually written 90% of my posts ahead of time and posted them a week in advance and…

Driving Me Crazy

Yesterday, driving back from my vet with one of our babies, I encountered a surprise snow storm. There was literally white out conditions. It was brief, but it was on a hilly portion of the highway, and that’s why we have an SUV. I was feeling fine, confident, unperturbed. Then there a ding and the…

The Case Of The Disappearing Blogger

One thing about following a blog that is written by a person with a chronic illness is that one day that blog may just stop. One last entry and nothing more. I was following a blog by a person with heart failure last year and he eventually needed a heart transplant. His blog went on…

Sight Unseen

Yesterday I had my six month eye exam to check for sarcoidosis and side effects from plaquenil. All is well. No sarcoid in the eyes and my eyesight has actually improved My eyes were dilated and I get a migraine after these tests, so please excuse the short post today. Be back tomorrow. Be well,…

Life, Swept Away

I read a lot of different blogs on various subjects and I am sorry to say that so many people bitch and moan about what they have or don’t have, and why them, and blah, blah, blah . I certainly hope that I don’t sound like that and that my posts for the most part…

TIA MIA

I received a letter from Mt. Sinai today that they are going to do a study about strokes and TIAs. Since I had a TIA in 2007, they want me to participate. The study just requires me to take a blood test and attend six different 1 1/2 hour seminars about strokes. Sounds pretty simple,…

The Cost Of Diabetic Testing

I need to test my blood sugar levels twice a day for my pre-diabetes caused by taking prednisone for an extended period for my sarcoidosis, so I picked up a glucose testing meter from the drug store. There was a brand called True Test that uses gold tipped test strips for “laser accuracy”, that after…

Automated Concern

My defibrillator came with a bedside device that wirelessly communicates with the AICD, and transmits information by telephone automatically every three months to my electro-cardiologist. If there is a problem with the defibrillator such a lead coming lose or a sudden battery drain or anything out of the ordinary, it will transmit to the device…

Family Unties

There’s a saying “You choose your friends and you are given your family”. Today is my youngest nephew’s 29th birthday, and that got me thinking about his father, my eldest brother with whom I never had a close relationship with. As a matter of fact, growing up we fought a lot. He is seven years…

Longer and Longer

The other day we took down our Christmas decorations, something that would usually take me an hour or two in the past. To take them down and store them in the attic took me almost five hours this time, and I still hadn’t gotten to the outdoor stuff. Heart failure is a really deceptive disease,…

Prednisone: My Nemesis

It’s confirmed, I’m pre-diabetic. I had a blood test called an AC1 hemoglobin blood test which checks your blood sugar levels for the last three months, and a pre-diabetic range is 5.7% – 6.4%. At 6.5% your are diabetic. I’m 6.2%. That’s some scary stuff. My diet is pretty healthy. So how did I become…

Self Cleaning For Your Soul

The native Peoples of different lands have different rituals for cleansing the soul. Being part native Amerindian myself, I am drawn to the ceremonies for healing and cleansing done by native cultures. I am a firm believer that you can not get your physical self better if your emotional and spiritual selves are screwed up. There is…

Keeping Up With Post A Day Challenge

At the beginning of the month I took up the WordPress challenge to post a blog a day, every day, for the entire year of 2011. I knew it would be a challenge, but so far I have been able to keep up. I developed a simple system to keep the stress level down on…

Buckle Up Idiot

Anyone getting into my car, front seat or back seat must put on their seat belts. If anyone protests, I don’t drive off or they can get the hell out of my car. Passengers in the back seat often think they don’t need to and ask “why?”, and I tell them it is as much…

Longing For The Little Things

I had to wake up early the other morning to get into the city for my doctors’ appointments and it was a cold winter’s morning here in upstate New York. As went into the bathroom the air was cold and I turned on the shower, which quickly heated up and warmed the air around me…

Have A Little Faith

I received an email from a reader. Here is what it said, and below is my response. Hello, I found your blog last year and have followed your entries regularly. I find your entries witty. I have cardiac sarcoidosis and was diagnosed in 2008. I was told that I would never recover and that cardiac sarcoidosis damage is permanent, my condition…

Farewell To A Little Friend

A fish is not something you really grow attached to. They don’t sit in your lap or play catch with a ball or chase you around the house. They don’t cuddle up next to you on the couch after you have had surgery and try to comfort you. They don’t share your pillow when you…

It’s A Good Day After All

Since I was first diagnosed with sarcoidosis, it seems that I have more doctors appointments than anything else. I have five different doctors that I see regularly. It gets to be a dance but luckily they all communicate with each other so they are all on the same page. Three of them, sarcoidosis, heart failure…

Traveling With Sarcoidosis

The last time I traveled by plane I flew from NY to Phoenix via Chicago. It was the first time I flew since having my surgeries and I was not fully prepared. Having sarcoidosis of the lungs and heart and heart failure with an implanted defibrillator does have its challenges on a daily basis, and…

One Of My Happiest Saddest Days!

In 2002 I went to a chiropractor and had my first professional massage as part of the service. I never felt so relaxed and rejuvenated at the same time. The feeling was exquisite and it stayed with me for the entire day. It was at that point I decided I needed to learn how to…

Happy New Year

Happy New Year to everyone. I wish you all health, wealth and happiness for this coming year and all to follow. Can you believe it? Another year has ended and another has begun. Resolutions, wishes, fears. I never believed in resolutions because I think you just set yourself up for failure. This year however, I…