Automated Concern

My defibrillator came with a bedside device that wirelessly communicates with the AICD, and transmits information by telephone automatically every three months to my electro-cardiologist. If there is a problem with the defibrillator such a lead coming lose or a sudden battery drain or anything out of the ordinary, it will transmit to the device…

Family Unties

There’s a saying “You choose your friends and you are given your family”. Today is my youngest nephew’s 29th birthday, and that got me thinking about his father, my eldest brother with whom I never had a close relationship with. As a matter of fact, growing up we fought a lot. He is seven years…

Longer and Longer

The other day we took down our Christmas decorations, something that would usually take me an hour or two in the past. To take them down and store them in the attic took me almost five hours this time, and I still hadn’t gotten to the outdoor stuff. Heart failure is a really deceptive disease,…

Prednisone: My Nemesis

It’s confirmed, I’m pre-diabetic. I had a blood test called an AC1 hemoglobin blood test which checks your blood sugar levels for the last three months, and a pre-diabetic range is 5.7% – 6.4%. At 6.5% your are diabetic. I’m 6.2%. That’s some scary stuff. My diet is pretty healthy. So how did I become…

Self Cleaning For Your Soul

The native Peoples of different lands have different rituals for cleansing the soul. Being part native Amerindian myself, I am drawn to the ceremonies for healing and cleansing done by native cultures. I am a firm believer that you can not get your physical self better if your emotional and spiritual selves are screwed up. There is…

Keeping Up With Post A Day Challenge

At the beginning of the month I took up the WordPress challenge to post a blog a day, every day, for the entire year of 2011. I knew it would be a challenge, but so far I have been able to keep up. I developed a simple system to keep the stress level down on…

Buckle Up Idiot

Anyone getting into my car, front seat or back seat must put on their seat belts. If anyone protests, I don’t drive off or they can get the hell out of my car. Passengers in the back seat often think they don’t need to and ask “why?”, and I tell them it is as much…

Longing For The Little Things

I had to wake up early the other morning to get into the city for my doctors’ appointments and it was a cold winter’s morning here in upstate New York. As went into the bathroom the air was cold and I turned on the shower, which quickly heated up and warmed the air around me…

Have A Little Faith

I received an email from a reader. Here is what it said, and below is my response. Hello, I found your blog last year and have followed your entries regularly. I find your entries witty. I have cardiac sarcoidosis and was diagnosed in 2008. I was told that I would never recover and that cardiac sarcoidosis damage is permanent, my condition…

Farewell To A Little Friend

A fish is not something you really grow attached to. They don’t sit in your lap or play catch with a ball or chase you around the house. They don’t cuddle up next to you on the couch after you have had surgery and try to comfort you. They don’t share your pillow when you…

It’s A Good Day After All

Since I was first diagnosed with sarcoidosis, it seems that I have more doctors appointments than anything else. I have five different doctors that I see regularly. It gets to be a dance but luckily they all communicate with each other so they are all on the same page. Three of them, sarcoidosis, heart failure…

Traveling With Sarcoidosis

The last time I traveled by plane I flew from NY to Phoenix via Chicago. It was the first time I flew since having my surgeries and I was not fully prepared. Having sarcoidosis of the lungs and heart and heart failure with an implanted defibrillator does have its challenges on a daily basis, and…

One Of My Happiest Saddest Days!

In 2002 I went to a chiropractor and had my first professional massage as part of the service. I never felt so relaxed and rejuvenated at the same time. The feeling was exquisite and it stayed with me for the entire day. It was at that point I decided I needed to learn how to…

Happy New Year

Happy New Year to everyone. I wish you all health, wealth and happiness for this coming year and all to follow. Can you believe it? Another year has ended and another has begun. Resolutions, wishes, fears. I never believed in resolutions because I think you just set yourself up for failure. This year however, I…