A Song For Life Sarcoidosis Foundation

This was posted on my FaceBook wall, and I am re-posting it here on my blog. I am not sure what “A Song for Life Sarcoidosis Foundation” is about, but drop them an email if this sounds interesting to you.

A Song for Life Sarcoidosis Foundation is restarting it’s Tele-Support Group Meeting for Sarcoidosis Awareness Month! If you’re interested in participating please email your Day & Time suggestions & the time zone you’re in to asongfoundation@gmail.com, we want to do our best to accommodate as many people as possible . . . Be sure to spread the word ~ ASFL Sarcoidosis Foundation; “Providing Shoulders to Lean On” . . .

Update: I wrote to Song for Life Sarcoidosis Foundation and asked they have a web site. Here is the information if anyone is interested.

… “Our website is http://www.asongforsarcoid.spruz.com
The site is more of a private online network for people with Sarc to connect & share information in what I consider to be a “safe haven” … So please feel free to join (it’s free) you just have to create a profile page! “

3 Comments Add yours

  1. Pingback: QUITTING SMOKING
  2. Julie Catalano, FSR says:

    Basil,

    There are a number of support groups around the country who have set up their own foundations. Jaz Owens started A Song for Life Sarcoidosis Foundation. Jaz is a very active and enthusiastic sarcoidosis support group leader and recently joined the Foundation for Sarcoidosis Research’s Support Group Advisory Council. We’re so happy to have her ideas and input in our work with support groups. Another option for sarcoidosis support is the Stop Sarcoidosis Support Community, http://www.inspire.com/groups/stop-sarcoidosis/. There are more than 8,000 members and people vent, inquire, post and reply constantly.

    I really enjoy your blog. Keep up the great work.

    Julie Catalano
    Development Director
    Foundation for Sarcoidosis Research
    http://www.stopsarcoidosis.org

    Like

    1. Basil Rene says:

      Thanks for the info. I signed up on Jaz’s web site, and am anxious to explore it once i do hear back from her.

      Like

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