Stepping Out Of The Fish Bowl

There is an old saying that “the last one to know they are in a fish bowl is the fish”, and I can say that has been true for me for the past few weeks. I have been angry and whiny and it has been reflecting in my recent posts. I was not realizing it…

Let Yourself Be

As I browse the sarcoidosis and heart failure blogs, they all seem to have a common theme going on now, and that is frustration. Frustration with the condition, frustration with friends and family, and frustration with having to keep up appearances. One of the sarcoidosis blogs I follow is over at “Chronic Town”, and she…

If Someone Had Told Me …

If someone told me five years ago that today I would have a hole in my heart that would be discovered only after having a mini stroke, I would have laughed. If someone had told me five years ago that today that same plug would be leaking, requiring me to take plavix so I would…

Just Building And Building

I am now up on my prednisone to 15mg. Doesn’t seem like much of a change, but apparently it is. I Have the demon really bad. I am on the edge of a volcano of anger, and it’s just building and building and waiting to explode. Everything is pissing me off. People on the road,…

Just Thinking Out Loud

I cancelled all of my doctor’s appointments and tests that I had scheduled for this week, which was probably going to be almost every day. And I feel free. Free from prodding, answering the same questions over and over. I know I have chronic conditions, and every day I try my best to live my…

I Really Need A Break

There comes a time in your life when you just give up, but not in a bad way. Ever since January I have not felt 100%. My breathing is a bit tight, even just sitting watching TV and I have a pain that I get in my lower right abdomen. I have been to a…