It’s Back!

“I am not sure where to go forward from here”. Those words were said to me by my sarcoidosis doctor after delivering the results of my PET scan, which shows that the sarcoidosis is back and active again in the heart. What exactly am I supposed to do with that? I am a fighter and…

Not Feeling The Stretch

I woke up this morning and did something I only now realize that I have not done in a long while, at least not consciously, and that was to stretch. I thought about it after I woke up and stretched and I could not actually remember the last time I did it on waking up….

The Faces Of Sarcoidosis

Ever feel like you are alone out there with Sarcoidosis. Well, we aren’t alone. Click here to see the Thanksgiving Project 2011 and see some faces of Sarcoidosis.

Happy Thanksgiving

It’s Thanksgiving, the best holiday there is. The reason I say that is because it is celebrated by everyone, no matter religion or race. Everyone has something to be thankful for. I am thankful for so much. My beautiful wife, most of all, who is my beacon when I get lost in the fog, the…

Diary Of A Pet Scan

I had two PET scans before, one in 2007 and one in 2009. My sarcoidosis doctor decided for me to have another as my pulmonary function has decreased. I decided to document it for myself so I could remember the process if I ever needed to have another. I posted it here for anyone about…

Color Me Blessed

I know, I sound like a stuck record about how blessed I am, blah, blah, blah. But I can’t help but look at all that has happened in my life and see nothing but positives in it. Having this disease and all the conditions that it has brought about may not seem like a blessing,…

And We’re Back To The Original

I recently posted that my blog’s new address was its own domain name “lifewithsarcoidosis.com”, and I was trying to decide if to change the name of the blog back to that from the newer My Life and Sarcoidosis. Well I heard from you (all three of you), and I listened, and so I changed the blog’s…

Allergies In November?!

I never had seasonal allergies until 2000, and I think that probably coincided with my first (then unknown) sarcoidosis flare up. I was so naive that I thought I had a cold and suffered through it as I hated and avoided seeing a doctor. I eventually figured out I had seasonal allergies by the spring…

There Are Just Somethings I Won’t Give Up To This Disease

Stay away from acidic foods. Stay away from sugars. Stay away from simple carbs. Stay away from soy products. Avoid red meats. Don’t drink coffee. No ketchup. These and more are all things I read when given advice on the proper diet for a sarcoidosis sufferer. And for the most part, I follow it as…

No, I Don’t Watch Cooking Shows

When people find out I am a chef, the first thing they ask is if I have a specialty, to which I always say no, I like to cook everything. Then they almost will ask what is my favorite thing to make, to which I always reply “reservations”. It almost always plays out like that….

Here I Go On A Nurse Rant, Again!

I constantly find more and more that nurses have a really bad, couldn’t give a damn attitude. Not all nurses are bad, there are some really great, friendly, courteous helpful ones. But more and more I find that to be the exception and not the rule. I need to have blood tests done at least once…

7300 Hits! Time To Move My Blog!

Wow! 7300 hits. May not seem like much, but for someone who started out not really doing this for anyone but myself, and not expecting hits at all, to have that many is a great achievement. People actually subscribe to my blog now. Amazing. So with that great achievement (at least to me), I decided to take…

Once You Have Hope

I received an email from a sarcoidosis sufferer asking me how can constantly maintain a positive attitude. I have answered this question so many times that I did not know what analogy to use again. And then I went to school today and got my answer. I had midterms and in one class I got…

Bon Voyage Miss E.

It is funny how some people come into your life that you at first never take notice of, but they end up impacting your life in a way that you never expected. My mother ran a firm, a position previously and since only held by men. She worked her way up from secretary and was well-respected…