Cardiac Sarcoidosis and Pulmonary Hypertension

This a presentation from November of last year on Cardiac sarcoidosis and Pulmonary Hypertension related to sarcoidosis done at Mt. Sinai Hospital in November last year. I am posting it for anyone interested in a brief explanation of them.

What About Withdrawals

I received a call from my Sarcoidosis doctor today that my white blood count is still low for a second time, so he’s taking me off of Hydroxycholoroquine, aka Plaquenil. I started taking the drug in January 2008, and I wondered if there would be any withdrawal effect coming off this drug after four years,…

A “Thinking Out Loud Post” – What Are People Searching For?

I am always fascinated by what draws people, what they are attracted to, what inspires and makes them tick. And in my own little non scientific way I observe which posts of mine get the most visitors. In the two years since writing my little tid bits, I had two posts that drew the most people…

Changing Buddy

I have my defibrillator – I call him Buddy – five years this year, and after my last interrogation which reported that I had four incidences of Ventricular Tachycardia in three days, my cardiologist decided to reprogram the little guy. Now I can have a VT for more than 2 minutes, but I won’t get shocked until…

Dangers Of Statistics

I read a blog today by a heart failure patient who had just crossed their two-year mark of being diagnosed, and according to them, the statistics state that with their particular condition, they had a 50% chance of living for two years. This person apparently is convinced that their condition has worsened since crossing that…

Crossing Bridges

On a recent trip into NYC for my ICD interrogation, my wife and I took a train down town to see the 9/11 memorial. We have not been there since the buildings fell. Prior to the attacks we were often in the North Tower as my brother had his office on the 104th floor. He was…

A “Thinking Out Loud Post” – Blogging Etiquette

Every now and again I like to just vent about something that has nothing really to do about sarcoidosis or health, but just about something that’s on my mind. I recently read a post on a blog in which the author was venting about the lack of manners in today’s society, and they received a…

Superman Is Grounded

I went into NYC for an ICD interrogation (Fancy term for reading my defibrillator), a simple procedure where the doctor downloads the information from the device and makes sure everything is okay. That little device – I call him “Buddy” – keeps track of my heart so completely that it even tells them what days I…

Ch … Ch … Ch … Changes

I went into NYC yesterday to get my defibrillator interrogated. I learned that my electro-cardiologist is leaving his practice in a month and changing careers completely, and moving to the west coast. This spring has brought about a few changes and it’s all interesting. I changed my bank, my work email, my dentist and now…

Happy Blog Birthday!!

Happy Birthday to my blog. It’s two years since I began this and I have enjoyed it tremendously. I had been a place for me to vent, share my thoughts, and hear all what you think. Thank you for following my blog, and I hope to have many more years to come!

Appreciating My Life

It’s spring, and with it comes new beginnings, new life, new starts. I recently changed all of my bank accounts to another bank as my old bank was bought out. I had to change my work email address as there were technical difficulties with the old one. Little changes, big steps. It was spring that…

Looking Like A Bobolie

It’s Good Friday, and as a child growing up in the Caribbean, we would make an effigy of Judas called “The Bobolie”, and you would all get broom sticks and beat this thing. It represented your dislike of Judas for turning on Jesus. It’s a rather barbaric practice now that I look back on it,…

Boning Up On Calcium And Vitamin D

The Dr. Alvin S. Teirstien Sarcoidosis Support Group in Mt. Sinai hospital in NY City is having a seminar entitled “Boning Up In Calcium and Vitamin D” on Saturday April 28 at 11:00 am to 2:00 pm at the Icahn Building, 1425 Madison Ave (98th St), 1st floor Seminar room. For more information on the…