An Inconvenient Medication

When I started this whole new lifestyle with the onset of sarcoidosis, then heart failure and pulmonary hypertension, one of the biggest adjustments I had to make was taking medicine, every day, several times a day, on time. Prior to this life change I never took medicine, unless it was absolutely necessary. Headache? I just…

Jack And Jill

When I began this blog, it was a way to vent about my illness. Today, with your patience, I am going to use it to vent on a more personal level. I grew up with some friends back in my birth land, a brother and sister, from very early. I was six, the brother was…

Six Minutes Today

Today I had my six minute walk test in NYC and it was, well, six minutes long. Nothing much you can report on a test that is given such distinct and identifiable name. What is it? You walk up and down a corridor for six minutes while the technician looks at the digital pulse oxymeter…

Doctors For The Other Side

There is a certain specialty doctor that I have heard my other doctors complain about. They call they the “Sell Out” doctors. These are doctors that leave their practice to work for an insurance company. What’s their job there? Do they examine employees of the insurance company at the nurse’s office? Are insurance companies so…

The Very Inspiring Blogger Award

Thank you to Erin at Bella Blues Healing and Inspiration for nominating me for The Very Inspiring Blogger Award. If you need a definition of an inspiring blog, read Erin’s daily post of positive, inspiring, uplifting and motivating entries. The rules of the award: Share Seven Things About Yourself 1: My favorite color is green…

Gravater Changes

I originally chose my Gravatar because I liked the representation of the heart emerging anew from water, which to me represented the heart being reborn. I am a big believer in energy, chi, what ever you want to call it, and I believe everything has an energy to it that in some way affects you….

X-ray Results Are In

My Sarcoidosis doctor called with the results of my chest x-ray last night and my lungs are unchanged. This, like my echocardiogram, is very good news. It means that sarcoidosis may not be active after all! Then what’s causing me to have shortness of breath? The last thing on my condition list – pulmonary hypertension. I…

Exams Not Of The Medical Kind

Do you sometimes just really amaze yourself? I did not study at all for the last six weeks of school, never picked up a text book to read, nothing. I had a mid term exam yesterday and worked all weekend and never had a chance to study. I went into the exam clearly expecting to…

Of PFTs and X-rays

‘Tis the season for PFTs and x-rays at the Pulmonologist. PFTs are not my favorite tests to take. I dislike how tired I feel afterward. For me it’s like running a marathon while sitting in a glass box and not actually moving. The staff at my pulmonologist’s office in NYC are generally not the most…

The Power Of Positivity

When I was first diagnosed with heart failure in August 2007, I was told my ejection fraction was 25% and I needed to have an ICD implanted. That was immediately after having surgery to close a hole in my heart, and during that surgery doctors came to the realization that sarcoidosis had gone into the heart….

The Only True Healer Is You

In this world, there are a lot of things that are beyond our control. But what you do have control over is how you react to whatever happens in your life. ~ Oprah Winfrey I came across a blog recently that was written by a person with some of the same conditions that I have…