Guest Blog Friday ~ A Special Guest

It’s “Guest Blog Friday” and I am so pleased to present the words of someone other than myself who lives with a chronic illness and knows what it is like to really live. I hope everyone will enjoy today’s posting by you. The problem is, you have not sent it to me to post. So…

The Prednisone Demon, Revisited

I wrote about him before, singing my song of impatience with he that causes the impatience, being angry with he that causes the anger. Yes, my old nemesis, the Prednisone Demon. He has been in my life for six years now, sometimes being a strong influence and at times, just sitting in the background, waiting….

Happy Birthday Buddy!!

Buddy is five today! Five years ago, buddy entered my world and changed it forever. Of course buddy was never planned for. How do you plan for someone like buddy? I still remember the emotions I felt the day before I got buddy. I knew that the next day nothing I did would ever be…

On This Journey Together But Driving Individually

It has been an amazing couple of weeks for my blog. In the past couple of weeks the amount of visits to my blog has multiplied! That is so much more than I ever expected. I never started this blog with the intention of building a following, but as a self-help journey for myself, a…

Guest Blog Friday – John O’Connor

Welcome to the very first “Guest Blog Friday”, featuring an article by John O’Connor on hearing loss and smoking. John has his own blog over at “Blogging With John O”, and you can follow him on Twitter at @oconnorj70. Did You Know Smoking Can Cause Hearing Loss? If you smoke, there is just one more…

Walking Round And Round

Before all this stuff happened with sarcoidosis and heart failure and pulmonary hypertension, I used to go hiking and went to the gym every day. Since going on prednisone six years ago, and having to basically slow down from the heart and lung conditions, I’ve put on 30 pounds. The thing with having that extra…

Introducing “Guest Blog Friday”

I received an email from a reader asking if I would be open to having a guest blogger on occasion. That request gave me an idea. I am sure many of you out there would like to share your stories, or have some inspirational thoughts for other Sarcoidosis patients, or some great medical advise, just…

Baby Come Back

Last night my wife put a baby picture of me along side a more recent photo of myself in a frame on her desk. It’s me, less than a year old, in a cloth diaper, sitting on a curb in a rural part of my mother land, with grass behind me, and I am laughing….

So What If You Don’t Look Sick!?

I came across a blog the other day that gave mention to this past week as the Invisible Chronic Illness Awareness Week. Correct me if I’m wrong, but unless you have something manifesting on your skin, or you are coughing up a storm, aren’t all illnesses invisible? Most have no real outward symptoms. Of course…

Listening Is Not Only With Your Ears

Last night, my wife and I went to one of our favorite restaurants for dinner. I sat looking at the menu and felt for fish. I very seldom eat fish at a restaurant because I don’t like how people cook it most of the time. As I looked at the fish and seafood selection on…

Muscle Pain You Can’t Help

I have muscle pain, and it has bothered me for three days now. It’s not a general pain all over, but in one particular muscle, my pectoralis major. That muscle that sits right in your chest. The pain is only in my left pec, and it is a pain that I want to reach in and…

Email Address Change

Hi everyone.  Just a short post to let you know that I have changed my email address to lifewithsarcoidosis@gmail.com. You can write to me there from now on. All the best. BR

Michael Clark Duncan Had Sarcoidosis

  Apparently, the actor Michael Clark Duncan had sarcoidosis which may have contributed to his death, according to his death certificate obtained by TMZ. Here is the article that appeared on their site. Michael Clarke Duncan died from respiratory failure, weeks after going into cardiac arrest … this according to the actor’s death certificate.According to…

Remembering 9/11

In honor and memory of all the victims of those tragic events of September 11, 2001. May we never forget.

Stop Obsessing And Just Live

When hunting for something, don’t just keep your eye on the prize, but be sure to always look around you, otherwise you might just get bitten in the ass. ~ Basil Rene I get a few emails a week from readers of my blog just saying “hi” or to give me support and advice and…

Sarcoidosis Awareness Day?

Mt. Sinai hospital in New York City will be “celebrating” Sarcoidosis Awareness Day on this coming Saturday, September 8th at 11:00. The group will meet at 1425 Madison Ave. (98th St) 1st floor seminar room . (I thought Sarcoidosis Awareness Day was in April…) The first and only time I attended the Mt. Sinai Alvin…

Smoking A Water Pipe

I am not a smoker. I grew up in a household of smokers and I always found the smell of cigarette smoke disgusting. So when I was diagnosed with sarcoidosis, stoping smoking was not an issue for me, but I know for a lot of others it is. I heard of people switching to Water Pipe…

Riding Elevators

The thing about most people with sarcoidosis is the fact we all mostly have suppressed immune systems due to our medications. I hate riding elevators in flu season because inevitably some sneezy person always gets on. I came across this on the Internet the other day and I don’t know if it does work, but…