On This Journey Together But Driving Individually

20120921-013156.jpg

It has been an amazing couple of weeks for my blog. In the past couple of weeks the amount of visits to my blog has multiplied! That is so much more than I ever expected.

I never started this blog with the intention of building a following, but as a self-help journey for myself, a place to let my out emotions and expressions of what I was living with. If someone read my rants then that was all good. If no one did, then I was okay with that too.

With this new found popularity of my blog, which I am sure will settle back to its good old quiet self soon, I receive a few emails a day, and some comments on the blog and Facebook. A lot of the comments and emails are supportive and a lot are pleading. Pleading for help with this disease called sarcoidosis.

The thing is, the only way I can help is with emotional support. I can either figuratively hold your hand or slap you up side your head if you need it. But I can’t help. Only you can help you. No one else. I can’t give you a list of the herbs and supplements that help me. Every single one of us is different, and the way the disease has affected us physically is different.

Yes, technically I should be dead and that I am alive is a miracle. The reason is a combination of being married to the best woman in the world, being in the right place at the right time, doctors working together, medications that worked, how I lived before getting sick, how I live now, my state of mind, how I see the world and my faith in something bigger than all of us.

I can’t just supply a list of things to take and say “Here, take these. It worked for me”. That would be irresponsible of me and down right crazy. I am no doctor. I am not an expert on sarcoidosis, heart failure or pulmonary hypertension. All I am an expert on is me, and MY life with sarcoidosis and its resulting conditions. Even that still continues to be a learning process that changes everyday with each new experience, each new pain, each new joy, each new sorrow, each new disappointment and each new enlightenment.

You have to find what works for you. Only you can do that. No one else. You are the one that has to buy the book that lists the side effects of herbs with your medications. You have to take the time to invest in you. Asking for the easy way out only sends you out through the door of uncertainty and fear, and straight into total mayhem.

My medications and conditions are a unique combination, as it is with each of us. Therefore what works for me may not work for you or may just downright hurt you. I wish I had an answer or a miracle pill then I wouldn’t be writing this blog. I would be cured, free from this life of constant pain and uncertainty of the disease.

I may have a brave face here on this blog and in my life, but I am just like every one of you. I am scared. I am uncertain. I am in pain every day of my life. I know what it is to be in pain. I know what it is to be afraid. I know what it is to look at my beautiful wife and wonder, hope, and just wish that I could grow old with her. I know what is to wake each morning and say thank you for another day on this earth .

And even though I know and experience all these things, at the end of all the pain and fright is hope and positivity. Instead of constantly worrying if I will grow old with the woman I love, I grow old one day at a time with her, and enjoy it for every moment it is. We laugh, we talk and we live in the day.

So, all I can say to all the wonderful people who have written to me to ask for my help is, that was it. That’s all I can offer you. No pill. No herb. No supplement that take away that fear and desperation you feel in yourself. Only you can change that. You have to breathe through the pain and try to live the life you have with the body you were given. Think of it as driving a car without a windshield. As you go down the highway either you go at 80 and have that wind buffering your face, drying out your eyes, and stinging your skin, or you can go at a slower pace with that defective car and let the wind caress your face, make your eyes sparkle and tickle your skin. It’s your choice.

2 Comments Add yours

  1. Thanks for listing me on your blogroll. I will add you to mine right now. 🙂

    Like

  2. Mommabel says:

    Reblogged this on true life is stranger than fiction.. and commented:
    I couldnt have said it better myself…

    Like

Please feel free to leave a comment, and although they are appreciated, please note that I may not be able to respond to all comments

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s