Did You Say I Don’t Look Like Arnold?

I have experienced quite of few changes with the development of sarcoidosis and the accompanying conditions of heart failure and pulmonary hypertension. I put on 30 pounds, a lot of my muscle definition has gone and now my doctor tells me I am starting to develop Gynecomastia. Yep, I am getting man boobs, and with the…

Winter Is Tearing Me Apart

I know. The headline is like a dramatic news story, but it is very cold and the air is very dry here in th northeast US, and despite the fact that to some extent it makes breathing a bit easier, it is playing havoc on my skin. I am on prednisone no stop now at…

Originally posted on Living with Sarcoidosis:
Okay, tomorrow is the day with the consultant (review after about 6 months), assuming that the snow allows both me and him/her to get into Oxford for the clinic. England is currently at a standstill, having received 5 inches of snow, which is equivalent to Hurricane Sandy, the Japanese…

There Is Nothing Like The Love Of A Pet

Pets (I am trying to find a better name than this) can be a very huge part of our lives. Some people, such as myself and my wife, have them at the center of our world. We make all our plans around them. They become surrogate children for childless couples. They live in our care…

Adjusting To A New Medicine

Prior to 2006 when I was diagnosed with sarcoidosis, I resisted taking any sort of medication unless absolutely necessary. I suffered with (and still do to a lesser extent) cluster headaches and migraines, and very seldom would I take anything. I would just work through it and let my body heal itself. Twice I had…

It’s My Time, So Get Over It

I am a perfectionist, I admit it. If I do a project I do it to its fullest, and even beyond. I do this not to impress anyone or score points. I do it even if no one is going to see my produce. I just believe that if you are going to do something…

Flu: When Are You Contagious?

I came across this article on Yahoo Health and thought I would share it here. Right now, the flu is reaching epidemic proportions in the US, and all of us with suppressed immune systems need to be extra cautious. The original article can be found here Flu: When are you contagious By Lisa Collier Cool…

Add A Puff Here And A Couple There

I went for my quarterly appointment with my sarcoidosis doctor this week, and my lung function is down. That the first time in a long time. My doctor thinks that it just be because I had the flu in December, and that my air passages are still inflamed, so she has changed my medication a…

Foggy Days Make It Hard To Breathe

It’s been a very damp, wet and cloudy winter so far. Two snow falls, but other wise, it has been so bleak. And the humidity only makes it very hard to breathe. Hoping that the sun comes out soon.

A Thinking Out Loud Post – Starving Artist? Really!?

For many years I have seen advertisements on TV for those starving artist sales, for oil paintings no more than $69.00, but never was able to make it to one. I had this picture in my head that the sales would be a room, much like a convention center, filled with artist selling their work,…

Calls From Buddy

I got home today and on my home voice mail was a message from my electrocardiologist’s office saying that they received my AICD Interrogation transmission. At those first words, I became a bit nervous. I took a deep breath and my heart rate increased a bit. Buddy, (my defibrillator),  communicates wirelessly to a device at the…

Being Cautious Not The Same As Mesophobia

I am germacautious. Yep, I made up that word. I think anyone that were to live with my wife and me for a while, and had to live by our rules would probably think we are a bit off our rockers. But I think this is what has helped me stay “healthy” for all this time….

A Vacation That Isn’t

I’m on vacation for two weeks beginning last week. It has been an epic failure. On the first day of my vacation, New Year’s eve, the septic alarm went off at our house and the septic company had to come out and dig up the front yard to get to the main tank, the pump…

A Little Ayr

If you are on oxygen therapy, you know how it feels when you wake in the morning and your nasal passages are dry and for lack of a better term, crusty. They feel clogged and it can sometimes hurt. In my case, because I am on blood thinners, it can be a little bloody too….

Weight Loss & Hypnosis

I stood in front of the mirror the other day and really looked at my self, and the person looking back at me is not the same man that started this journey. My physical changes are not only on the inside, but on the outside as well. The man that started this journey was 30 pounds…

Sleep, Why Do You Evade Me

I was in bed at 12:30 last night. That’s an early night for me. I was tired and I hit the sack, closed my eyes and – nothing. I could not fall asleep. I tossed and I turned until I looked at the clock and it was 2:00 am. I decided I would read some…