I Know What It Is Like To Be Me

If you devote yourself to the positives in your life, the negatives will begin to divorce you. — Philip Arnold I received an email from a reader the other day who chastised me for always “being happy”, and that I was full of “sh*t”, that no one with a chronic illness, especially as many as…

Introducing Sarcoidosis Friday Poll

Some time ago I implemented “Guest Blog Friday”. It was a complete flop. No one wanted to be a guest on my blog. I guess I could look at it that people only want to read what I have to say. Down ego, down! Anyhow, I just ran a poll and there were quite a…

Poll Results Are In

I conducted an non scientific poll regarding pain in the big toe, asking participants to answer what toe they got pain and what type of sarcoidosis they had. Of the respondents, the majority of the pain is experienced in the left toe, with most of the respondents being persons with sarcoidosis of the lungs followed…

Sarcoidosis And Pain In The Big Toe – A Poll

At the last sarcoidosis support group meeting , pain in the big toe was a common factor among most of the participants, and all have sarcoidosis in different areas. I would think it would happen in sarcoidosis of the nervous system, but why the other forms? There was no explanation offered as to why. I…

Put A Positive Spin On Your Life

Just something to think about. If you consider yourself an organized person and at the end of the day you review your to do list and and see all that you need to do tomorrow, think about this for a minute. You have just focused on the negative aspect of your day. You just focused…

Snow And Meetings, Meetings And Snow

I always want to go to the Mt. Sinai sarcoidosis support group meetings, but my schedule always changes, something always pops up that doesn’t allow me to get there for a meeting. Except for once, and that was before Christmas in 2011, and on that day, the doctor that was supposed to speak at that meeting…

Sarcoidosis Knows No Color

I recently posted an entry called “Winter Is Tearing Me Apart“, in which I talked about my skin tearing due to the cold dry weather, and in that post I had a photo of my red, torn knuckles. Unbelievably, I received an email from a reader that said ” … saw your photo on the…

The Power Of Social Media

A funny thing happened yesterday. In my last post I wrote about my medication being denied by the insurance company. I also tweeted about it, and I received a tweet from Aetna saying that they would like to review the case once more. They weren’t willing to review the case when my doctor appealed the decision,…

Medication Denied!

The other day I went to the pharmacy to collect my medications and was told my insurance company, Aetna, decided that they will no longer be covering my prescription for Diovan, a medication used for heart failure patients. I am on Diovan for 7 years now and all of a sudden Aetna decided not to cover it,…