Life Has To Be At My Convenience

I had my defibrillator implanted in 2007 and the elctrophysio cardiologist that did the implantation moved out to California and a new doctor took over his practice. When I had my defibrillator interrogated on Sunday night, it revealed that since January I had 733 arrhythmias, which is mind blowing, since the most I had in…

Thumping And Thumping

Thumping. That’s what I call the feeling I get when I guess my heart misses a beat. It feels as if my heart stops for a second, expands and pumps as hard as it could to get the blood out. I feel it and it is not the best feeling in the world. On Thursday…

Flashback Monday – Needing A Neutral Ear

Another flashback to a previous post of mine. This one, my second post was about finding an ear to hear me out. Needing a Neutral Ear Posted on April 15, 2010 Sitting on the porch enjoying a warm spring evening I thought about how different my life is now compared to four years ago, when…

Flashback Monday – How Doctors Can Scare You

After I post to my blog, I never go back and read the posts. The other day someone re-blogged one of my old posts and I forgot that I wrote that so I thought that I would start re-blogging some of my earlier posts. This was my very post. How Doctors Can Scare You Posted…

An Anthem For My Life With Sarcoidosis

When I am alone in the car, I like to listen to the non music stations on Sirius XM, like Dr. Radio, Oprah Radio, Dr. Laura, and any others that I can learn something from. Not the political talk radio stations though. Those annoy me. I would sometimes listen to the comedy channels too. They…

Messages From The Universe?

In January 2007 I started massage school because it was something I was always interested in doing, and in July I left when I found that had a heart defect and then cardiac sarcoidosis and heart failure In September 2008, I went back only to leave again in December the same year and then I…

Be Honest – Stay Healthy

Today I went to Starbucks and ran into a woman I went to massage school with back in 2008. We hugged and exchanged the usual pleasantries and quickly updated each other on where we were in the past five years. She knows of my condition, at least basically, because I had to leave school because…

Finding My Passion

Passion ~ n. : a strong or extravagant fondness, enthusiasm, or desire for anything I am one I those people that tends to be good at everything they do or try. It’s not a boast, it’s just the way things are. My brain works in a way even I can’t explain. In high school I drove…

An Echo Gone Wrong

I went in for an echocardiogram last week to see if I still had shunting at my PFO closure (if the hole my heart was still not fully closed and if there was oxygenated blood still mixing with oxygenated blood), and it turn out to be quite the adventure. I went to my new cardiologist’s office…

Sarcoidosis Poll Friday – No 1

This is the first (and more than likely only) of the Sarcoidosis Friday Polls. Today’s question has to do with prednisone. Here are the results of the poll. Only 8 people voted, so I don’t think I will be doing any more of these as it is not worth the effort. It does take time…