An Anthem For My Life With Sarcoidosis

When I am alone in the car, I like to listen to the non music stations on Sirius XM, like Dr. Radio, Oprah Radio, Dr. Laura, and any others that I can learn something from. Not the political talk radio stations though. Those annoy me. I would sometimes listen to the comedy channels too. They all help to keep me alert when I am driving alone.

The other day on one of the channels the host was interviewing the author of some new self help book for women, and as I was about to change the channel, the author asked and intriguing question of the host. She asked him “What is the anthem of your life right now. If you could think of a song, what would describe your journey?” I changed the channel at that point, but the question really intrigued me, and I tried to think of a song that would describe not my entire life (because that would be a whole catalog of songs), but just my life with sarcoidosis. I thought and thought, and I could not come up with anything.

A few days later I was listening to a CD in the car and a song I heard many a time came on, and I listen to the lyrics, really listened to it, and I realized that this song pretty much was my anthem for my life with sarcoidosis. The time I found out I had sarcoidosis and not knowing what the hell it was. My open lung biopsy, the most painful surgery I ever had, to prove I had it. My three heart surgeries. Being told I would need a heart and lung transplant and making a pledge, that would never happen. Being told that I only had a 50% chance of living 5 years. Being told my heart would never improve. And in turn, my defying all the odds, and having my heart go from 25% LVEF to 65%. Being able to be active with heart failure, pulmonary hypertension, and sarcoidosis of the heart and lungs. To be able to be positive and fight for my beliefs and not always listening to doctors word as the law.

And this song, “You Haven’t Seen The Last Of Me” by Cher say it all. Below is a video with the lyrics and the song. Maybe it too would ring a bell with some of you.

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