“Life with sarcoidosis is a nightmare” – Six words that describes most people’s experience on a daily basis with sarcoidosis. Those are the words posted as a comment on my Facebook page by one of my Facebook compatriots, and they speak so much of the frustration she feels having this disease.
And although I do agree that for many, that is how their life feels on a daily basis living with a chronic illness, it’s not that way for me at all.
Don’t get me wrong, life with sarcoidosis is no bed if roses for me either, but I won’t allow it to become a nightmare. So I wrote a one paragraph reply to her statement, which I hope will resonate with some of you out there living a daily nightmare.
“Yes, it can be a nightmare, but you have to wake yourself up from that nightmare and turn things around at some time or continue to sleep through it. The choice is totally yours. The harder you push against something is the harder it pushes back. Sometimes the only way you can get the uninvited guest to leave you alone is to realize that they are not leaving, and leave the door open for their departure, but step out of the doorway and continue to live as best as you can, and hope that eventually they will eventually leave. We don’t realize that when we stand at the door arguing with them, not only are we blocking the way out for them to leave, but we stop living our lives. So try stepping aside for a bit, go clean up the house, and approach them from a different angle and when they aren’t looking, shove them out the door.”