Not Seeing In Black & White

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For some reason, because I have a blog about sarcoidosis, people automatically assume that I am a black woman, although my blog’s tag line is “One man’s positive journey with sarcoidosis”. I suppose that majority of people that have blogs about sarcoidosis and sarcoidosis support sites are black women, and thus the assumption.

And today I received an email from someone asking what, as a black woman, was my opinion on the fact that black people get sarcoidosis more than white people. Firstly, let’s clear the air.

A) I am not a woman. I am 100% male
B) I am not black. I am not white. I am not asian. I am not middle eastern. I am not Native American. I am human
C) I don’t believe in statistics

I guess if I really want to give a opinion, I can’t look at it from a black man’s point of view, or from a white man’s either. Actually, I can never understand why race always has to play a part in everything. Even in sarcoidosis statistics. Does it really matter when you already have it just how many black people compared to white people have the disease?

And let’s really think about these statistics. Where are the world’s centers for sarcoidosis treatment and research? The answer is New York City, New York and Cleveland, Ohio. The top hospital for sarcoidosis treatment is Mt. Sinai hospital, located at 98th street in New York City, just on the border of Harlem, which is predominantly African American. And Cleveland’s population is approx 53% African American. So wouldn’t it come to reason that since these major centers are in predominantly black areas, won’t most of the people that are recognized for having sarcoidosis be black? If the main treatment centers were in Salt Lake City, Utah, and Greenwich Connecticut, don’t you think the results would swing the other way?

I really do not feel that it matters one bit what race you are when it comes to sarcoidosis. I have the disease and I could give a flying freak what race has the majority of sarcoidosis. It does not matter. I have it and spouting those statistics is not going to cure me or help researches figure out a cure.

So, once again, lets cast aside race and cast aside statistics and just be supportive and try to get this disease more in the spotlight so that there is more funding for finding a cure.

 

Written by Basil Rene

I maintain two separate blogs. One is LifeAsAnAnomaly.com where I discuss my life with sarcoidosis and the other is AChefTalksFood.blog, where as the name implies, I talk about food.

10 comments

  1. I didn’t think you were black. I thought you were a white female, I don’t know why ??? I’m meeting and hearing about more whites with Sarcoidosis then previous years. I think if more whites spoke out the funding would be greater !

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    1. That is funny. Can someone’s writing sound “female”. In a lot of my posts I mention my wife. Do I sound like a white lesbian? This is way too funny. Good thing I am secure in my sexuality otherwise I think I would start developing a complex. Maybe I need to put a disclaimer at the start of my posts “Please note: This blog is written by a man. His race – Doesn’t matter”

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      1. A virtual United Nations!! I have a friend who I am CERTAIN he has fibromyalgia. He has all of the classic symptoms. He has seen tons of doctors, ruled out everything else, but no one is willing to diagnose him with fibro because he’s a man, and “men don’t get fibro”. Sad, sad, sad..

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  2. I just want you to continue doing your “work”. You give us such pertinent information, some clinical, some psychological, and always humanistic. I find your blog, not just informative but “real”. We can all relate to the impact that this sarcoidosis has had on our lives and you give readers hope that if you “live” with sarcoidosis you can have a full, happy and productive life. It truly doesn’t matter what race and what region of the world we come from. I’m a Caribbean woman who is of mixed race – African, East Indian, Indigenous Carib, Portuguese, Scottish, and Italian. I find it very hard to accept that this condition can be relegated to one specific race. Sometimes there are other heredity factors that may come into play. In looking at my family’s medical history when I was diagnosed, we found that there is definitely genetic heart conditions in almost every generation, which impacted, in some cases, more than one family member. Is this the reason for sarcoid in my heart? We still don’t know. So enough with the race talk. We have more than enough to deal with. Thanks Basil, for always keeping us on the right course. Blog On !!!

    Liked by 1 person

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