2013 in review

The WordPress.com stats helper monkeys prepared a 2013 annual report for this blog. Here’s an excerpt: The concert hall at the Sydney Opera House holds 2,700 people. This blog was viewed about 23,000 times in 2013. If it were a concert at Sydney Opera House, it would take about 9 sold-out performances for that many…

Flashback Monday -We’re To Help, But Please Don’t Ask Us Anything

Originally Posted on September 27, 2010 I get a specialty medication for my Pulmonary Arterial Hypertension or PAH, that is very expensive and has to be delivered to me by over night UPS. Along with receiving this specialty medication is that you are signed up in their program, meant to provide information and answwer any questions you have with your disease or…

Flashback Monday -Staying In Style

Originally Posted on September 26, 2010   As sarcoidosis patients, inevitably we will all end up in the hospital at some point in time, and for some of us, it seems we spend more time in there than out. One of the things most hated is to put on the dreaded hospital gown with its opening in the…

Flashback Monday -So What’s Good In Your Life?

Originally Posted on September 24, 2010 I took my car for a maintenance service and while there, there was a woman who would tell everyone she met that she was having hip replacement surgery on Monday and then go into the story of all her surgeries. I am a very private person, which seems like an…

Sleep. I Need Sleep

It’s been a rough few days for me. On Wednesday night I had a bout of post herpatic neuralgia. I had shingles in my face back in 2008, and to this day I still get times when my left nostril and face either are sensitive to the touch or it feels like I have ants…

Flashback Monday -Be Afraid. Be Very Afraid.

Originally Posted on September 23, 2010   Recently, a cardiac nurse, Miriam Leverington, was stopped for speeding and she made a remark to the police officer that stopped her. She told him “I hope you are not ever my patient”. The police officer filed a complaint with the hospital where she worked, and said that her remark was basically…

Resilience

Resilience – an ability to recover from or adjust easily to misfortune or change If you follow my blog, you already know the list of my conditions as a result of having sarcoidosis. If you don’t, then check out “My Story” above in the tabs. I experienced a lot of life changes due to my…

Putting Things Into Perspective

Today I had no intention or desire to go to my therapist. You may have read before the previous post that I started Buddhist psychotherapy. Today I was in no mood to talk. It was a long weekend, I was really really tired and in no mood for dealing with anything. But I decided to…

Flashback Monday – Bad Air Quality Days Do Take Their Toll

Originally Posted on September 22, 201 For pulmonary sarcoidosis,COPD and cardiac patients, bad air quality days are torture. Bad air quality days are determined by the amount of ground ozone and fine particles in the air on a given day. I get an email the day before from Clean Air NY, if the air quality will be bad. I feel…