My wife teases me that I think I am Superman, and try to do more than I am really capable of. Even Superman has his kryptonite, and it seems my kryptonite has hit me full blast this week. It is my time of the month as I affectionately refer to it. It’s not what you think. I am a man, (although for some reason people assume that because I have a blog and write about sarcoidosis that I am a black woman. Nope, I am not a woman, I am a multi racial man that happens to have sarcoidosis) and I am having my time of the month with sarcoidosis.
I noticed that with this disease, there are times, and they seem to me more and more to be a regular pattern where I have certain symptoms pop up at the same time all together. Sarcoidosis does have its underlying fatigue, but there seems to be a week in every month where I have no energy at all, I get constant head aches, my memory is crap, and I totally space out.
This is that week. I am really having a messed up week with my brain. I am not remembering things at all unless I write it down. I will do something and totally forgot I did it a minute later. I would get up to do something and as I stand, forget what I was about to do. My ectopic heart beats are very frequent and I am constantly tired.
I know that many people that have sarcoidosis have these feelings all the time, so I am grateful mine appears to be just a week out of every month, but still it is frustrating, and worrisome. I need to be so careful with my medications. Yesterday I took my 10PM meds at 4PM and vice versa. It’s not easy, but I am aware, so that makes it a little easier, as I know I need to really concentrate. A week can seem so long at times.