Even Superman Has His Time Of The Month

My wife teases me that I think I am Superman, and try to do more than I am really capable of. Even Superman has his kryptonite, and it seems my kryptonite has hit me full blast this week. It is my time of the month as I affectionately refer to it. It’s not what you think. I am a man, (although for some reason people assume that because I have a blog and write about sarcoidosis that I am a black woman. Nope, I am not a woman, I am a multi racial man that happens to have sarcoidosis) and I am having my time of the month with sarcoidosis.

I noticed that with this disease, there are times, and they seem to me more and more to be a regular pattern where I have certain symptoms pop up at the same time all together. Sarcoidosis does have its underlying fatigue, but there seems to be a week in every month where I have no energy at all, I get constant head aches, my memory is crap, and I totally space out.

This is that week. I am really having a messed up week with my brain. I am not remembering things at all unless I write it down. I will do something and totally forgot I did it a minute later. I would get up to do something and as I stand, forget what I was about to do. My ectopic heart beats are very frequent and I am constantly tired.

I know that many people that have sarcoidosis have these feelings all the time, so I am grateful mine appears to be just a week out of every month, but still it is frustrating, and worrisome. I need to be so careful with my medications. Yesterday I took my 10PM meds at 4PM and vice versa. It’s not easy, but I am aware, so that makes it a little easier, as I know I need to really concentrate. A week can seem so long at times.


5 Comments Add yours

  1. I hope you don’t mind me commenting. This may be nothing to do with it but men do have a hormonal cycle – their own depending on their fat cells activity in converting testosterone to oestrogen – also men do align with their partners cycle even after only a couple of months. The fact that you are having a regular week every month may be linked to this or can be a stress response to a monthly event that causes a release of cortisol.


    1. Basil Rene says:

      Of course I don’t mind your commenting! I did consider andropause and I do get monthly blood test and everything is normal, as well as testosterone levels. I haven’t been able to link in to anything as yet, other than my biorhythm. A lot of other sarcoidosis people also say that they have these cycles too, so I don’t know if it’s related to the disease. I don’t know what it is, but it can be frustrating. And please feel free to comment at any time!


  2. Ooh, I think this is new word for me, sarcoidosis, though I’m not sure (and I’m not sure why people assume you to be female and dark skinned, maybe I’ll find out after some research). But you forgetting things like that reminds me of my father, to whom I dedicated my “A” post actually. I hope things still work well despite the sarcoidosis.


    1. Basil Rene says:

      Thanks. It is because of “statistics” that people make the assumption of race and sex. The majority of people that are very active in the Sarcoidosis community on the Facebook and Twitter feeds are black women, and then as a result they assume that everyone else is. For some reason also, all the literature is very intent on giving statistics of race where it come to the disease, which I hope to put an end to. I don’t think race matters in anything.


      1. I read “My Story” earlier and realized what you meant in this post. Thanks for the reply 🙂


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