This week I had to go out of town for work, a three hour drive upstate. I take my oxygen concentrator with me so I can have a good night's sleep, and also for those times that I need an oxygen hit. I don't want anyone at my job to know that I use oxygen, so getting the concentrator in and out of the hotel takes a lot of strategy.
I usually get to the hotel before everyone else, and so I can get the concentrator in before every one, but leaving is a different matter. I have to get it into the car before anyone else puts their luggage in, or after everyone leaves. I put a large black garbage bag over it just in case anyone does come across me taking it out to my car.
I usually take out my luggage to the car and if I am driving the SUV, I put the luggage on the back seat. Then I go back and get the concentrator and then put that on the floor behind my seat so it is not rolling all over the place.
This weekend however was one of those foggy brain ones where my mind just seemed to be in a constant fog, and for some reason I did not stick to my routine. I put the concentrator in the car first, then went back in and got my luggage which consists of a carry on piece and a messenger bag with my iPad and meds.
I wheeled out the bag with the messaging bag on top outside the hotel side entrance, close to where I was parked, and closed the door which was giving me trouble to close for some reason. I double checked my pockets to make sure I had my phone and wallet, hopped in the car, connected my phone to the bluetooth so I could listen to some podcasts on the three hour drive home, and left.
About 30 mins out, I had to make a sharp stop at a light and everything on the back seat went to the floor. I looked around and everything that was on the back seat consisted of a spring jacket and a bottle of water. Where the hell was my luggage? I pulled into a parking lot to check if I placed the bags in the trunk, and there was no luggage. I left the bags at the door of the hotel. My iPad, meds, clothes, everything were all just sitting outside a hotel door.
I made the 30 min drive back in 15 mins and in that short time, noticed a lot more than I did going the other way. I pulled up to the side door to see my bags still sitting there, waiting like an abandoned child. I got out and put them ingot the car and though to myself what if I didn’t have to slam on my brakes and made it all the way home to find that I forgot my luggage. I would have to drive the three hour drive back to get it, if someone didn't help themselves to my stuff.
Having sarcoidosis and all it’s added conditions and all the meds that I take can be extremely frustrating with having to live with a brain fog almost constantly. I have to be so much more vigilant and take my time to do stuff. I have to constantly check and double check myself. I have a to do list on my phone, but I have to remember to check it. I have alarms set up, and that helps a bit. But it is so hard to keep up, especially when I am tired.
I can’t com pain though.I still have my senses and can drive and work. At least I am capable to go away frequently for business so that i can forget my luggage and not in a room, bed bound wishing I could be out in the world and forgetting luggage somewhere.