Keep Your Life On A Need To Know Basis

I spend a lot more time at doctor's offices and labs than the average person, at least once a month. At least. My doctors thankfully almost always run on time, so seldom do I ever have to wait more than five minutes before I am called in. But, even in that short time span, almost…

Recovery Should Be Like A Slow Walk Down A Flowered Path

Today marks three weeks since I had my defibrillator replaced, and I was thinking, wouldn't it be great if recovery from surgery was as easy and delightful as walking down a flowered path? Who am I kidding? This surgery marks is my fifth one since being diagnosed with sarcoidosis in 2007, and as far as…

Flash Back Friday – Buckle Up Idiot

Originally Posted January 8, 2011 Anyone getting into my car, front seat or back seat must put on their seat belts. If anyone protests, I don’t drive off or they can get the hell out of my car. Passengers in the back seat often think they don’t need to and ask “why?”, and I tell…

A Letter From God

Originally posted on My Good Time Stories:
Photo Credit: Unknown WOW! Please take a minute to read this adorable story on FaceBook a while ago and thought that you might enjoy iy! —>Our 14-year-old dog Abbey died last month. The day after she passed away my 4-year-old daughter Meredith was crying and talking about how…

Flash Back Friday – Longing For The Little Things

Originally Posted January 7, 2011 I had to wake up early the other morning to get into the city for my doctors’ appointments and it was a cold winter’s morning here in upstate New York. As went into the bathroom the air was cold and I turned on the shower, which quickly heated up and…

There Is A Solution To People Saying “You Don’t Look Sick”

I was diagnosed with sarcoidosis in 2006, and in my visits of sarcoidosis sites, facebook and twitter, there is always one common complaint from people with the disease, and that is “I get so angry when people tell me 'But you don't look sick'”. Well I found that there is a very easy way to…

Anatomy Of A Surgery – My ICD Replacement

On Tuesday I had my ICD (Implanted defibrillator) replaced as my original one that was implanted in 2007 because of heart failure due to sarcoidosis, battery reached its threshold. I looked on the internet to find any one else’s experience with having the surgery, but no such luck. All I could find was the device…

What Do You Mean I Can’t Shower For Three Days?!

In a few days I will have my implanted defibrillator replaced as my current one has reached its battery threshold, and I received the post op restrictions from my doctor's office. Among the instructions is no showers for three days.

Today On Fire, Tomorrow On Ice

Yesterday I helped my wife in the garden to get some heavy lifting and planting done before my surgery next week as I will be restricted in my lifting for a few weeks, and I had a ton of energy yesterday and today I am drained. So it is with sarcoidosis.

Flash Back Friday – Have A Little Faith

Originally posted JANUARY 6, 2011 I received an email from a reader. Here is what it said, and below is my response. Hello, I found your blog last year and have followed your entries regularly. I find your entries witty. I have cardiac sarcoidosis and was diagnosed in 2008. I was told that I would…