There Is A Solution To People Saying “You Don’t Look Sick”

I was diagnosed with sarcoidosis in 2006, and in my visits of sarcoidosis sites, facebook and twitter, there is always one common complaint from people with the disease, and that is “I get so angry when people tell me 'But you don't look sick'”. Well I found that there is a very easy way to get around that.

It's simple. Don't go around telling everybody you come across that you have a disease, because as harsh as it may sound, 75% of the people you tell really don't give a damn, 15% don't want to hear about it because they are afraid of their own mortality, and such things only bring up those thoughts, 9% just have no idea what to say or do and feel helpless, and only the final 1% are those that really do care.

Also, there is a great thing about the universe, it will always try to please you, so going around announcing to the world “I am sick”, and you are telling the universe, the world and yourself that you are sick, and the universe, the world and your body will do all they can to oblige. Whenever anyone asks me how I am doing, no matter how shitty I feel, I always say “I'm fine, thanks”, because by telling myself I am fine, my body will try to respond as such.

Give it try. Instead of compaining that people dont understand that you are sick, try not giving people the opportunity to question your validity. Just say nothing about your illness, and no one will have any reason to make a snide remark.

 

6 Comments Add yours

  1. lmcurry13 says:

    LOVE, LOVE, LOVE this post! Right on and exactly where I am at with this disease right about now.

    Liked by 1 person

  2. Basil Rene says:

    Thanks. Glad you enjoyed it. It takes a while to get to this point, but when you do, it is very liberating.

    Like

  3. Interesting post. Some fine advice. I would also submit that some of us tend to be a bit too sensitive to that particular question. “You don’t look sick” isn’t necessarily snide or rude or anything but a realistic observation. We are a visual species and we spend our life recognizing and acting upon visual cues. When someone says that they are seriously ill but don’t appear any different that’s not something our brain is necessarily used to processing. So maybe the next time someone comments that “you don’t look sick” we could acknowledge that they’re absolutely correct and isn’t that a pecular, and often frustrating, situation.

    Liked by 1 person

    1. Basil Rene says:

      Actually I have learned to just say thank you and take it as a compliment. But it seems a lot of people are angered and offended by that statement, and I will suffice it to say that it is mostly newly diagnosed and those that are in need of and seeking sympathy. The statement does not validate them and their new “label”. Most that are offended really want someone to sympathize with them. I know it sounds harsh but it is reality. Nothing wrong with needing sympathy, but don’t complain if you are actively seeking it and instead receive criticism or reflection. It’s the price you pay for “putting yourself out there”. I think the longer one lives with a chronic condition the more hardened you become.

      Like

  4. laura says:

    I discussed this with my husband and we came up with this, politely say, Thank you, I’m trying very hard to fight and get and look healthy.

    Liked by 1 person

    1. Basil Rene says:

      Yep, saying thanks just throws them off.

      Like

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