Admittedly, I have not been keeping up with posts to this blog, but life happens and time seems to slip away from me more and more. Hopefully I will be able to get a grip soon and be able to devote time more appropriately to the blog. Until then, here is a quick update of what's been happening in my life.
I recently received the results of the pet scan and nuclear cardiac scan that I recently did, and there is no sign of any sarcoidosis anywhere! Yeah! And the heart scan shows that my heart is the strongest it has been since this all started, and its strength is pretty much that of a normal heart again.
I also did a Vitamin D 1,25 test, a pretty good indicator of whether sarcoidosis is active in the system and my levels are all normal. Add to that my recent pulmonary function test came back with my lung function the best it has been since I was diagnosed with sarcoidosis.
I managed to wean down to 5 mg a day of prednisone, not without a few withdrawal symptoms, but nothing as severe as when I tried three times before, so it's looking good for me to eventually come off completely.
I also managed to lose 10 lbs and looks like I am on the road to returning to my original weight.
My doctors all ask me what it is I am doing and all I can say is, I live a clean, healthy, pretty stress free, positive life. What ever it is I am doing, they say to keep doing it.
My wife and I have personal insurance, which admittedly is a great plan that has paid fully for all my surgeries, doctor’s visits, lab work etc, with only a $10.00 copay and no deductible.
I received a letter that our policy has been discontinued as of 12/31 and must now reapply for a new plan, which basically is one of the Obamacare plans. This means our copay goes up to $50 and we pay 80% of everything after a $1000 deductible. That's a big change considering that my monthly prescription costs of $8,200.00, of which I now pay $50.00 a month after a $100 deductible, is now going to cost me $1,600 a month after a $1,000 deductible. Joy Joy!
I don't complain. It serves no purpose, but the sudden change of temperature in the northeast because of the polar vortex is pretty ugly. I have very little tolerance for the cold anymore so the good thing is, my intolerance is giving me even more incentive to move to Southern California.
The other ugly thing is people's attitudes if I mention how much I loved southern California and would love to live there. Only one person said “Awesome. I hope you can!” Everyone else said something about earthquakes. So what if there are earthquakes? If I die in one, at least I would die happy. Right?
Here's wishing everyone a really awesome week ahead.