I had a right heart catheterization on Monday to determine what is the cause of the increase in my shortness of breath and huge drop in oxygen saturation with exertion. The possibilities were either my pulmonary hypertension worsened or my heart is going back into failure.
Turns out, amazingly, it's neither! All of my pulmonary pressures are normal and my heart pressures are normal. What does that mean? It means that I no longer have pulmonary hypertension and my heart is no longer in failure! My doctor is simply amazed. Another thing that will have them all baffled. Heck, even I am amazed. Supposedly no one ever recovers from cardiac sarcoidosis, farless both heart failure and pulmonary hypertension.
It looks like the medicine that I take for pulmonary hypertension is actually making things worse, so he took me off of it. Yay! Another medicine off the list (especially this one which is almost $8,000.00 a month now). My saturation decrease may be just a lung issue, so after I am off of Tracleer for two months, I will see how I am feeling, and we will go ahead from there.
I am off of Tracleer now since Sunday night and I swear that my breathing has already improved and my ectopic heart beats have decreased. Who knows, maybe I will be able to come off of supplemental oxygen too. Maybe I should have waited a bit before putting out $2,800.00 for my portable oxygen concentrator.