Maintaining A Blog: It Can Be Overwhelming And Sometimes Not At All Rewarding

asleep at work / schoolI started this blog Seven years ago to chronicle my journey with sarcoidosis, and at the time I called it “Life with Sarcoidosis”. I did it mostly for myself as a journal of sorts. I never intended or expected anyone to follow it, but over the years I did gather a small following, and that changed everything.

As I got more followers, readership increased and so did the questions, the advise and request for an answer. People are desperate for answers, especially for a disease that has none. I would get emails every day from people asking what medications they should take and what treatments they should pursue. I even got a very abusive response from someone that I was a fraud if I was not willing to give answers. How could I give answers if I don’t have them. I am not a medical professional. It’s not an advice blog.

It seemed people could not understand that, plus I was getting better and I had less to write about my symptoms and side effects. I was told that my improvement was an anomaly and not the norm, so I changed my blog to Life As An Anomaly because there were other things I could write about, other than my disease.

Therein lies my quandary. I don’t have that much to write about the disease anymore, so I decided I would write more about my life in general. Realistically, no one really cares about some unknown from the east coast. People just want celebrity news. I decided to write anyway, and writing takes time if you want to write what you consider to be quality writing. I like to dedicate at least an hour to each post.

An hour may not seem like much, but I barely have an hour to breathe sometimes. I am constantly going. I am trying to write a book and I haven’t been able to get much of that done. I was hoping to be finished with the book by now, but I have written barely more than a chapter.

When I take my brief spare time and dedicate it to writing on here, and then just one or two people read it, I begin to wonder what is the point of doing this any more. No matter what, ego steps in. I have pondered shutting the blog completely, but my older sarcoidosis posts still continue to get a lot of traffic, and I still get emails with questions, but mostly that my blog has helped some people. Shutting it down when it could have helped another? I pay for the domain name and wonder if I should continue to pay to keep the domain and let people find the blog. Then if I no longer post and keep the blog to just allow seekers to find the old posts, it eventually looks like an “abandoned” blog, and when I come across those, I just move on, and assume others would too if they come across mine.

As you can tell from this post, I am one confused bunny. Do I continue to write and no one reads? Do I stop writing and let people find my old posts, with the knowledge that eventually it will look like a dead blog? What do you think I should do? Please be honest, I don’t need my ego to be polished.

7 Comments Add yours

  1. Ray K. says:

    Basil, I think you’ve said it all. I too have had a long road with sarcoidosis. To name a few, cardiac, spinal, joint, and lymph node sarcoidosis. Also a compromised immunity leading to a disease called cryptococcus. Now with the help of a great team of aggressive doctors a pacemaker/defibrillator and Humira for the bone and joint pain. I’m doing quite well. This disease is a confusing mystery. Your positive blog has helped me get through the worst of days. I think I’ve read just about every post. Although I miss your recent occasional posts my advice is to keep the blog available for viewing with a semi annual update. Whatever you decide. Thank you for all you have done. It’s a valuable tool for someone who is just finding out what this disease is all about. Ray

    Liked by 3 people

    1. Basil Rene says:

      Wow, thanks Ray. If that doesn’t say keep it going, nothing else does.


  2. Oh, how surprised I am, considering that I visited today to let you know I shared a little link to your blog on my latest post, the January 2017 recap.

    I think you should continue. Post what you can when you can. It’s great to know that you are unable to add more stuff about the disease because you are actually feeling/getting better. You could the poster boy of the one who beats sarcoidosis. That should inspire others living with sarcoidosis, too. After all, isn’t living a more normal life their dream? Who wants to live with something like that?

    Above all, this is your blog. Do what you want with it. As long as you are not hurting anybody, then go for it.

    Liked by 1 person

    1. Basil Rene says:

      Thanks J. Much appreciated!

      Liked by 1 person

      1. I should be the one saying that to you 🙂

        Liked by 1 person

  3. Jeni says:

    Hi! I just found your blog and I have sarcoidosis as well. I’m looking forward to reading your posts, and I am very glad you are feeling better!

    Liked by 1 person

    1. Basil Rene says:

      Hi Jeni. Sorry that you have Sarcoidosis. Thanks for the support. What type of Sarcoidosis do you have?


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