There! I said it and I could care less if you are mad, offended, upset or whatever. You could call me uncaring or cold, mean or nasty, but the truth is I am so fed up with seeing twitter posts in general with the hashtag for sarcoidosis because all they are are just a bunch of depressing messages. Don’t hashtag them sarcoidosis! Hashtag those messages what they are – #depression!
I know depression is a serious thing and people with chronic illness can suffer from depression, and I am not down playing that, but let’s just call a thing a thing. I know what sarcoidosis is, I know what it does and I know people with the disease have taken the charge upon them-self to bring awareness to this disease, but from the outside looking in, if I were a person who knew nothing about the disease and I searched the hashtag sarcoidosis on twitter, I would think it was a form of depression.
Believe me, I know what it feels like to not want to get out of bed in the morning because of pure physical exhaustion. However if someone tweets “Just can’t pull myself out of bed. #sarcoidosis”, that sounds like depression to me. Another tweet I saw was a picture of a sad looking box that said “I feel sad! #sarcoidosis”. No people, that’s not sarcoidosis. That’s depression! Tell me, if someone tweeted “I broke a nail and now I am sad. #sarcoidosis”, wouldn’t that make no sense at all? It has gotten so annoying that I unfollowed a lot of people and organizations on twitter because of their misuse of the sarcoidosis hashtag.
I am not saying for people not to acknowledge their sadness but give it its correct label and stop giving sarcoidosis a confusing definition. If you want to bring awareness, do so, but put a positive twist on it. Instead of saying “Today I just want to cry! #sarcoidosis”, how about “Today my sarcoidosis pain makes me want to cry, but it is not going to keep me from living! #sarcoidosis”
The fact is, either you want to bring awareness to sarcoidosis or you want to bring awareness to yourself. Think about that for a moment and let that sink in. If you want to get sympathy then say so. Just tweet “Today I am in pain and I feel sad. I want everyone to be sympathetic towards me so I am going to let all my followers know and add the hashtag sarcoidosis so even more people can come tell me they are sorry for me! #feelsorryforme”
I know a lot of people out there don’t have support from friends and family and it’s hard and there is no other place to reach out but on social media, but hashtag it what it is – #nosupport. I recently saw an episode of “The Interview” where a prospective employee said she put #beyonce” at the end of all of her tweets even though the tweet had nothing to do with Beyoncé because that would make more people come to her twitter feed. It’s the same thing now with depression and #sarcoidosis.
People in general hate complainers, and after a while tune out what ever they are saying. So if people keep complaining and whining about their sarcoidosis, everyone is going to stop listening. Everyone knows that cancer is a painful, dreadful disease that can be fatal. Unfortunately in some cases, so is sarcoidosis, but do you see the ads on TV for cancer awareness showing a bunch of depressed people curled up in bed? No! They show people fighting. Fighting for their life and for a cure. So please stop giving this disease a life and stop it in its tracks by putting a positive spin on your own life.
Oh, and one more thing! Please stop making your tweet an entire line of hashtags!! Twitter now allows twice the amount of characters, so put your hashtags at the end!! Thanks. I’m getting off of my soap box now.