Twelve years ago today I officially began this journey with Sarcoidosis when I had an open lung biopsy. Four years afterwards I wrote about it. Once more I give you my experience of the worst operation I ever had, but as bad as the experience was, I never regret doing it.
I finally gave in to my doctor’s pleas, and went to the hospital for an open lung biopsy to get a definitive diagnosis for Sarcoidosis. A couple of months prior, I had a bronchoscopy which yielded nothing. I have a resistance to anesthesia, and apparently I tried to pull the tube out of my throat during the procedure, so they had to stop without getting a sample lung tissue.
Prior to going in for the operation I could find no detailed information about the procedure other than basic information. I needed to know what to expect, well because I like to prepare mentally for what’s ahead.
My pulmonologist referred me to a thoracic surgeon and I asked him to tell me in detail what was going to happen and what I can expect afterwards. He was pretty detailed on the surgery part, but ended his description with “and you’ll be up and around in a couple of days”. How misleading those words were. I will not bother to go into the actual operation as I was unconscious for that, and those details are now readily available on the internet. What I will describe is my experience after the operation.
My wife said that I was in surgery for five hours, and she of course was freaking out that something was wrong because according to the surgeon, it should not take any more than a couple of hours. I woke up in a double hospital room with me being the only occupant and the first thing that I noticed was the pain. I felt as if I was hit by a bus on my right side while crossing a street. My wife came into the room and the look in her eyes said everything.
I had to compression devices wrapped around my lower legs that would inflate and squeeze and then release. This was a continuous action that proved to be somewhat uncomfortable. It felt like I had on socks that went all the way up to my knees, and they were way too tight. This device was left on my legs for 24 hours. I was told that device was meant to prevent clots forming in my legs.
I had a terrible urge to cough as I woke up and when I did, the pain was like if the bus slammed into my side one more time, with the strangest sensation of what I can only describe as “bubbles” moving around under my ribs, which made me feel to cough more. I would try to suppress the cough due to the pain, but to no avail. There was a tube, about two inches in diameter coming out of my torso on the right, midway between my chest and waist, that lead down to a large bottle on the ground at the side of my bed. As I coughed, bloody liquid shot through the tube and into the bottle. This was continuously monitored by the nurses.
As I coughed, instead of bringing up phlegm, I would cough up gobs of blood clots and small pieces of lung. This, nurses also said was normal and they monitored what I was coughing up constantly to make sure it was not fresh blood. The coughing up of clots slowly ceased after a few hours, but the liquid shooting out the side continued right through the night into the next morning and eventually stopped by mid morning.
For those first 24 hours I had to lay in bed on my back with the bed elevated about 45 degrees. At first, right as I woke up after the operation, I did not need to urinate, and one of the nurses got all fussy and wanted to insert a catheter. I told her no, that they could wait to see if I did have to go in a few hours because I had nothing to eat or drink for the past 12 hours. Eventually, after a couple of hours, just as they wanted to put in a catheter, I urinated so much, I almost filled up the bed bottle. The nurses also measured and kept track of how much I passed.
After lunch on the second day, my surgeon came and told me it was time to remove the tube. He indicated to the nurse that he was ready and an announcement was made over the hospital’s PA system that there was a code (something) at my room. Soon after a cart, which looked like a “crash cart” was wheeled outside of my room. This I later learned was in case my lung collapsed when they removed the tube from my side.
My surgeon asked if I was ready and started to pull what seemed like two feet of tube out of my torso. When the end finally emerged, with considerable discomfort I would add, the surgeon slapped some special bandage to the hole to seal it. The nurse asked him if everything was okay and he said yes, so they then announced on the PA, “Code (something) stand down”, and the cart was wheeled away.
I was checked for vitals etc., and then a couple of hours later they came and wheeled me down to x-ray, so it was my first time getting out of bed. The pain to get up and then sit in the wheel chair was excruciating. I thought I was going to throw up. When I got to the x-ray department, I needed to urinate badly and got out of the chair and walked the few step to the bathroom and thought I was going to pass out.
I stayed in the hospital one more night and was discharged after the second night. The walk to the car was horrendous and the drive home was torture when ever my wife hit a bump in the road, it felt like my right side was going to explode.
It eventually took a month for me to be able to sleep laying flat without pain, and about two months to fully recover. I often wonder how patients with cancer who need to have an open lung biopsy can survive if their systems are already so low.
My advice to anyone about to have any surgery, be sure to research what really happens to you afterwards, because the doctors will never tell you the truth.
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