Sarcoidosis May Be Treated with Mycophenolate Mofetil, Small Study Says

Given its good safety profile and lack of lung toxicity, some sarcoidosis patients have been successfully treated with MMF as a corticosteroid-sparing agent when needed. 

— Read on

2 Comments Add yours

  1. BK says:

    I have cardiac sarc and started taking cellcept or MMF at the direction of Dr. Chen at the Sarcoidosis Clinic at Johns Hopkins in Baltimore. I was taking 3 grams a day which is a large dose. I took MMF for almost a decade until during an annual physical my PCP noted my white blood count was dangerously low to the point he warned me if you have a sore throat or anything you need you come see me immediately. I stopped taking it after I determined that MMF was causing me to have neurological issues such as insomnia, anxiety, paranoia, etc. I also started experiencing dangerous arrhythmias. After stopping and to this day my wbc and rbc are abnormal to the point I was referred to a hematologist who said it the after effect of the MMF. MMF probably saved me and I would go back on if I had to but everything comes with a cost.

    Liked by 1 person

    1. Basil Rene says:

      The side effects of these meds can be so extreme. We’re damned if we take them and damned if we don’t! Hope you are better. Thanks for stopping by!


Please feel free to leave a comment

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.