I Have Become Thin Skinned (My 1,000th Post!)

(This is my 1,000th post to this blog!) I scratched my cheek after closing the door behind the repair man and I could feel it running across my palm, down my wrist and onto my fore arm. The warm, wet, red liquid that is the lifeline of every human. The liquid, bright red and thin…

Catching My Breath

Today, like every day since I gave my mum a smartphone three years ago, I picked up my phone to send her a text. Every day I would text her to see how she was doing, send a pic of the snow or the rain so she could appreciate the warm tropical climate she lived…

A Revisit Of “Open Lung Biopsy – My Truth”

Twelve years ago today I officially began this journey with Sarcoidosis when I had an open lung biopsy. Four years afterwards I wrote about it. Once more I give you my experience of the worst operation I ever had, but as bad as the experience was, I never regret doing it. I finally gave in…

Is Everyone Deaf Or Do I Have Super Hearing?

I love music. I like all music except for jazz and rap. I listen mostly to pop music. I love any music with a good beat. I love to play music loudly in my car sometimes when it is a song I especially like. In spite of my love of loud music, there is a…

When You Realize That Life Is Just Awesome

Ever have a day when you wake up and realize just how truly blessed you are? I don’t just mean lucky to be alive. I mean truly and wonderfully blessed! A realization that stuff just falls into place for you no matter what! I woke up this morning and had that realization and it really…

Day 40 Of My Mantra Meditation “Challenge” Complete. 

I am practicing meditation for a few years now but mostly guided meditations and not everyday. A lot of the time I would fall asleep during it.  Today I finished a “test” (I prefer test over challenge) of doing a mantra meditation for forty days straight and I have not missed a day.  I will…

When It Rains, It Storms

I posted last time that my friend was going in for testing and they discovered that he has lung cancer. He is not in a really good place, but that is another story. Last week I got a call that my mother was having trouble breathing and that she was going to the nursing home…

The Most Selfish Thing A Person Can Do

I get daily emails of top news stories for my town and surrounding areas and in close proximity are two large bridges that span the mighty Hudson river and a major train line that goes into New York City. Every week, sometimes more than once a week, someone kills themselves by jumping off one of…

Shaking The Family Tree Can Result In A Knock In The Head

For some reason, race plays a big part of statistics when it comes to a lot of things, sarcoidosis especially being one of them. I personally have a pet peeve with questionnaires that require your race for statistical purposes or whatever and that stems from the fact that I come from a long line of…

Wise Words Wednesday : Wayne Dyer

Forgiveness Originally Posted on MAY 10, 2012 Revenge, anger, and hatred are exceedingly low energies that keep you from matching up with the attributes of the universal force. A simple thought of forgiveness toward anyone who might have angered you in the past will raise you to the level of Spirit and aid you in…

Happy Birthday To Me!

Today, I turn 55. You can’t begin to imagine just how happy and proud I am to reach this mile stone. So many people become depressed when they have a birthday and some religions don’t even want to acknowledge it, which really baffles me. A birthday is a wondrous and joyous thing. It marks another…

Here I Go, Again!

I haven’t written anything to this blog for a while and frankly it’s because I have no inspiration. The blog was originally meant to be my posts about living my life with Sarcoidosis, but really, I don’t have very much to say anymore on my condition that hasn’t already been said. Then I got an…

The Weekend Revisit of “Appreciating My Life”

Originally posted April 10, 2012It’s spring, and with it comes new beginnings, new life, new starts. I recently changed all of my bank accounts to another bank as my old bank was bought out. I had to change my work email address as there were technical difficulties with the old one. Little changes, big steps….

Sentimental Power Over Values

Recently, my mother could not walk anymore, and long story short, she now lives in an assisted living home. Since she decided that she will no longer be socializing outside of the home, she distributed her jewelry between her daughters-in-law and her one niece. I inherited my grand step mother’s wedding ring and a small…

Before You Can Really Get Help, Learn About Yourself

Exactly ten years ago today, I got a call from my doctor to confirm that my test results were positive for sarcoidosis. The day before, I came out of the hospital after a three day stay for an open lung biopsy, the test to determine if sarcoidosis was indeed active in my lungs. To date,…

The Saturday Revisit Of “Letting Go Of My Old Self”

Originally Posted March 9, 2012 Letting Go Of My Old Self One thing about having a chronic condition, and in my case, more than one, is that you need to accept that your life, in one way or another, will change forever. I remember the day before I had my defibrillator implanted I knew that…

The Saturday Revisit Of “It’s All Just 50/50”

Originally Posted January 30, 2012 As I approach my fifth year of living with heart failure brought on by sarcoidosis, I think back to the day that I learned that people with cardiac sarcoidosis have a 50% chance of living for five years and a 20% chance of making it to ten years. Then I…

Snapshots Of My Life: It’s Just Freaking Wine

“Green apples” said my best friend sitting next to me. “I get a hint of banana” added another friend sitting to our front It was my turn to illicit a response, and I sat there, forty plus eyes trained anxiously on me, waiting to hear my words of wisdom. After all, I was, so far,…

The Saturday Revisit Of “Why Do People Suffer?”

Originally Posted January 3, 2012 I was telling my wife about an email I received from someone telling me that they have suffered from sarcoidosis for many years, when she interrupted me and asked “Why do people suffer?”. The question stopped me in my tracks and I realized the sheer power of words and their…

Do I Look Like An Old Woman To You?

I am on prednisone now for ten years straight, without ever taking a break. My dosage has been as much as 70mg to as low the current 5mg. I am on what the call a “maintenance” dose, which translates to “because you are on prednisone for so long, your body can't make its own, so…