F Is For Fear

This is a Blogging A To Z Challenge Post April 7th – F  

E Is For Endurance

This Is A Blogging From A To Z Challenge Post April 6th – E    People with chronic illnesses are often looked upon as weak, pathetic and sorry individuals, people that no longer really have a place in the social circles of past. The truth is, people with chronic illnesses have to endure pain, fatigue,…

C Is For Changes Which Are Good Sometimes – I Hope

THIS IS A BLOGGING A TO Z CHALLENGE POST April 3, 2015 – “C”   2015 is proving to be a year of many changes so far. Some of the changes were stressful, and others were welcome, and yet others were surprising, but needed. And we still have a little over nine months to go…

It’s Time To Let Go

Why stress over someone that won't even check to see if you are alright? Sometimes you just need to distance yourself from people. Nobody is ever “too busy”. If they care, they’ll notice. If they don’t, you know where you stand with them. If they really care, they will make the time. Very often I…

Flashback Friday: Stepping Out Of The Fish Bowl

Originally posted to my blog on May 12, 2011 There is an old saying that “the last one to know they are in a fish bowl is the fish”, and I can say that has been true for me for the past few weeks. I have been angry and whiny and it has been reflecting…

Facebook Page Is Back By Popular Demand

They came by the thousands, banging on my virtual door, demanding that I reopen my FaceBook page! Okay, well it wasn't that many, but some of you requested I open back my FaceBook page so you can have the blog posts delivered to your news feeds, and I have succumbed. Welcome back Facebook users!  …

Flashback Friday: The Nurse

Originally posted to my blog July 31, 2011 I have a real pet peeve with rudeness. It drives me up the wall, especially in the customer service area, and yes, nursing falls under that category too.I have been having a hard time with my breathing in the past couple of days and my chest hurts…

My Intial Thoughts On The Inogen One G3 POC

I recently wrote a blog post about getting rid of my liquid portable oxygen and getting a personal oxygen concentrator [Click here to read the post]. The new unit, an Inogen One G3 Portable Oxygen Concentrator, was delivered on Friday and here are my initial thoughts on the unit. The unit comes with a wall…

Motivational Monday: It Has To Rain, But Not Today

Life with a chronic illness can suck at times, and for many, it seems the down days are more frequent than the up days. But when you do have the up days, make the most of it. Appreciate it. Enjoy it. Appreciate the rainbow and don't sit around waiting for the rain to return.  …

Flashback Friday: Pushing On Through

Originally posted to my blog June 17, 2011 My wife and I are very busy at this time of the year, and it seems we are always working or going to appointments. We work together and are pretty much together 24 hours a day. Yet, one day a week we try to have a date…

Sharing My World: Week #10

Here are my answers to Cee's Photography weekly Share Your World. WHEN YOU LOSE ELECTRICITY IN A STORM, DO YOU LIGHT THE CANDLES OR TURN ON THE FLASHLIGHT? HOW MANY OF EACH DO YOU OWN? Thankfully, we have a generator so if power goes, we're ok. We do have flashlights in case there is ever…

Hey Marketing Department, We’re Not All Over 80!

I have some chronic conditions that apparently medical supply marketers believe only happens to older people. If I look up pulmonary hypertention, I will get photos of grand ma and grand pa with their oxygen tanks, smiling and playing with their grandchildren. If I look up heart failure, it will be pictures of grand ma…

Thumbs Down? Really?

If you read my post about getting a portable oxygen concentrator, and hoping that insurance will pay for it, well, they won't. I am disappointed but not phased. I decided that I will just buy the unit myself. Right now, because of the changes to my insurance plan, I now have to pay $150.00 a…

Flashback Friday: Back From Break

Originally posted to my blog June 3, 2011 Like the consummate theater artist that has played many years out on stage in the same part and needed to get away from the constant day to day grind of being in the public eye, so too did I need to be away from the constant probing…

Happy Birthday To Me!

It's my birthday! I made it to 53! I am so grateful to still be here on this planet. I was told in 2007 that I would need a heart /lung transplant by 2012, and I am still here with my original heart and lungs, functioning well. Yep, it's great to be 53!   Written…

Motivational Monday: Be Happy For This Moment

All too often, life with a chronic illness can be a pain, literally, but I always say I would rather be with the pain at times than have the alternative. Death. This is my life, and I cherish every moment of it. Even the days that may not be the best.   Written by Basil…

Flashback Friday: Let Yourself Be

Originally posted to my blog on May 10, 2011 As I browse the sarcoidosis and heart failure blogs, they all seem to have a common theme going on now, and that is frustration. Frustration with the condition, frustration with friends and family, and frustration with having to keep up appearances.

Why Do Receptionists And Nurses Question You

I am in either a doctor's office at least every month, and every time I go, sometimes the receptionists will do it, but the nurses always do it. They ask me what am I in for today? Why? Do they hold a doctor's degree and will be conferring with the doctor to come up with…

I Stopped Questioning The Universe

    I recently read a post (which inspired this post) over at fellow PAH blogger, Living On O2 For Life entitled “Why?” where she questions her place in the order of things with regards to surviving her pulmonary hypertension and living to adulthood when a child with the same condition died. If you are…

Flashback Friday: If Someone Had Told Me

Originally posted to my blog on May 8, 2011 If someone told me five years ago that today I would have a hole in my heart that would be discovered only after having a mini stroke, I would have laughed.

21 Things You Need To Do To Live With Sarcoidosis

Almost all the emails I get are from people asking how I got better, and I always say that it was a combination of different things. When I recently I told someone that, they told me to give them a checklist of everything that I did. So here is my checklist of everything I think…