Category: Sarcoidosis

How Did I Get Sarcoidosis?

“How did you get sarcoidosis?” Is the first question posted to me by Alec on the new feature on this blog, Ask Me About My Life With Sarcoidosis. That is a very interesting question that I posed to my doctor when I was first diagnosed in 2006 and since my first involvement with the disease…

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Ask Me About My Life With Sarcoidosis

Introducing a new feature on my blog, “Ask me about my sarcoidosis”. I started this blog as a way to help other people with sarcoidosis to get more information and since I get a few emails every week asking me specific questions about my life with the disease, I decided to start a new segment…

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Ten Questions For A Ten Year Old Blog

I read the words “Would you answer these ten questions in a post?” in a recent email from a fellow blogger who read my post that I am blogging now for ten years and I thought why not. So here goes. Ten questions about ten years of blogging. 1: Why did you start your blog?…

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Second Look Sunday: Do you Suffer With Sarcoidosis?

Originally Posted August 2013 Do you suffer with sarcoidosis? So sorry to hear that. I don’t. I don’t allow anything to make me suffer. If something is making you suffer, then you have allowed it to have power over you. So I don’t use the word suffer in my vocabulary. Change you way of thinking….

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Second Look Sunday: Not Seeing In Black & White

Originally posted July 24th 2013 For some reason, because I have a blog about sarcoidosis, people automatically assume that I am a black woman, although my blog’s tag line is “One man’s positive journey with sarcoidosis”. I suppose that majority of people that have blogs about sarcoidosis and sarcoidosis support sites are black women, and…

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Someone Thinks I Have A Real Neat Blog

I stopped accepting blog awards many years ago for many different reasons, especially after 10 years of blogging, but I was given The Real Neat Blog Award by Cyranny over at Cyranny’s Cove, a really cool blog that I really admire and you should check out too. Part of the award loop is to answer…

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Second Look Sunday: “Lost Keys”

Originally posted June 14, 2013 I am a pretty organized guy for the most part. I file everything away in its place so I can easily locate them. I even keep my keys organized. I don’t have any other keys with the keys for the cars for security purposes, as sometimes I valet park and…

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Second Look Sunday: “How I Live My Life With Sarcoidosis”

Originally posted June 7, 2013 Someone recently wrote to ask me how I live my life with sarcoidosis, and it stumped me. I never really thought about it. Although I have a blog devoted to my life with sarcoidosis, and a Facebook page and a Twitter feed, I really do not dwell on the fact…

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First Official ATS Practice Guidelines For Sarcoidosis – Scienmag

After so many years, it is good to see that positive steps are being taken towards education of doctors about sarcoidosis. First official ATS practice guidelines for Sarcoidosis cover diagnosis and detection – Scienmag: Latest Science and Health News — Read on scienmag.com/first-official-ats-practice-guidelines-for-sarcoidosis-cover-diagnosis-and-detection/

Second Look Sunday: “Some lessons Are More Than Skin Deep”

Originally posted July 17, 2013 Rarely do I go upstairs. I have very little reason to ever go up stairs, and I have no desire to go upstairs unless it is necessary. There is no elevator in the three story building I work at when away on business, and the stairs for some reason seem…

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I Am Still Alive!

On this day in 2006, fourteen whole years ago, a surgeon made three slices in my right torso and extracted three pieces of my lung for examination to confirm suspected sarcoidosis. If you haven’t guessed, I was positive. Stage four they said. Severe scaring they said. One year later that pesky old sarcoidosis made it’s…

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Happy Anniversary To My Blog

Today marks ten years since I started my blog. How time flies. I Started the blog as “Life With Sarcoidosis” and changed the name somewhere along the way. It’s been an interesting journey so far and I look forward to many more years. Thanks to all of you that read my rantings and I hope…

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Second Look Sunday: “Life With Sarcoidosis Is A Nightmare”

Originally Posted June 26, 2013 “Life with sarcoidosis is a nightmare” – Six words that describes most people’s experience on a daily basis with sarcoidosis. Those are the words posted as a comment on my Facebook page by one of my Facebook compatriots, and they speak so much of the frustration she feels having this…

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We Don’t All See Things The Same Way

It is so easy to see the same thing and interpret it totally differently. I know for a fact that the brain can take two totally different events and blend them together and create a whole new truth.

How Will the Coronavirus End? – via The Atlantic

The White House is a ghost town of scientific expertise. A pandemic-preparedness office that was part of the National Security Council was dissolved in 2018. On January 28, Luciana Borio, who was part of that team, urged the government to “act now to prevent an American epidemic,” and specifically to work with the private sector to develop fast, easy diagnostic…

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Preparing For The COVID-19 Outbreak For The Past 14 Years

Today, I am working from home and settling in for the long haul. As the rest of the world goes into a “sudden” hygiene frenzy, my wife and I are settling into what has become normal for us for the past fourteen years. In 2006 we were already minor germaphobes, but when I started to…

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Second Look Sunday: “Frustration Of Forgetting”

Originally posted June 12, 2013 Today I lost my keys. I keep my house and work keys on a separate key chain from my car keys and I could not find them. The thing is, I remember having them in my hand walking to the car yesterday, but after that, nothing. I looked everywhere and…

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This Is Getting Too Close To Home

In less than a week, confirmed COVID-19 (Coronavirus) went from hundreds of miles away to 40 miles away to 5 miles away from my home. I fall into the vulnerable population because of my heart and lung conditions, and so I am being extra cautious. I have had bad flus before and recovered so I…

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