The Weekend Revisit Of: I know What It Is Like To Be Me

If you devote yourself to the positives in your life, the negatives will begin to divorce you. — Philip Arnold I received an email from a reader the other day who chastised me for always “being happy”, and that I was full of “sh*t”, that no one with a chronic illness, especially as many as…

The Weekend Revisit Of: Sarcoidosis Knows No Color

I recently posted an entry called “Winter Is Tearing Me Apart“, in which I talked about my skin tearing due to the cold dry weather, and in that post I had a photo of my red, torn knuckles. Unbelievably, I received an email from a reader that said ” … saw your photo on the…

The Weekend Revisit Of: The Power Of Social Media

A funny thing happened yesterday. In my last post I wrote about my medication being denied by the insurance company. I also tweeted about it, and I received a tweet from Aetna saying that they would like to review the case once more. They weren’t willing to review the case when my doctor appealed the decision,…

The Weekend Revisit Of: Calls From Buddy

  I got home today and on my home voice mail was a message from my electrocardiologist’s office saying that they received my AICD Interrogation transmission. At those first words, I became a bit nervous. I took a deep breath and my heart rate increased a bit. Buddy, (my defibrillator),  communicates wirelessly to a device at…

The Weekend Revisit Of: Did You Say I Don’t Look Like Arnold?

I have experienced quite of few changes with the development of sarcoidosis and the accompanying conditions of heart failure and pulmonary hypertension. I put on 30 pounds, a lot of my muscle definition has gone and now my doctor tells me I am starting to develop Gynecomastia. Yep, I am getting man boobs, and with the…

The Weekend Revisit Of: Medication Denied!

The other day I went to the pharmacy to collect my medications and was told my insurance company, Aetna, decided that they will no longer be covering my prescription for Diovan, a medication used for heart failure patients. I am on Diovan for 7 years now and all of a sudden Aetna decided not to…

Life’s Little Detour

What do you do when you are on a trip and along the way their is road construction? The road is rough and it is being repaved and there is heavy, heavy traffic?

The Weekend Revisit Of: It’s My Time, So Get Over It

POSTED ON JANUARY 16, 2013 BY BASIL RENE IT’S MY TIME, SO GET OVER IT Skip to entry content I am a perfectionist, I admit it. If I do a project I do it to its fullest, and even beyond. I do this not to impress anyone or score points. I do it even if no…

Stories From My Life: Time Traveling

A visit to records I walked into the ultra modern lobby of the building that housed the medical records for my pulmonologist. The shiny new, brightly lit, stainless steel lined elevator whipped me quickly to the floor that the offices were located. As the elevator stopped and I waited for the door to open, rather…

Stop Cursing God For Your Damned Sorrows Already

I read a blog post today and the person was complaining about God punishing them by giving them sarcoidosis. To think that God is punishing you means that you obviously did some pretty bad shit in the first place for you to think you deserve to get sick and that God has singled you out…

The Weekend Revisit Of: Sleep, Why Do You Evade Me?

I was in bed at 12:30 last night. That’s an early night for me. I was tired and I hit the sack, closed my eyes and – nothing. I could not fall asleep. I tossed and I turned until I looked at the clock and it was 2:00 am. I decided I would read some…

Sarcoidosis May Be Treated with Mycophenolate Mofetil, Small Study Says

Given its good safety profile and lack of lung toxicity, some sarcoidosis patients have been successfully treated with MMF as a corticosteroid-sparing agent when needed.  — Read on sarcoidosisnews.com/2019/10/07/mycophenolate-mofetil-may-be-effective-as-alternative-sarcoidosis-treatment-small-study-suggests/

What Happened To All The Sarcoidosis Awareness Blogs?

As of August 24, 2019, there were about blog 85 posts on WordPress with the tag sarcoidosis. Of those posts, approximately 89% of them are from me. What happened to all those people that are tweeting over and over and over that there needs to be more awareness of the disease so that there can…

The Weekend Revisit Of: Panic Attack Number One

Yesterday I went to the lab, which is in a nearby Hospital to do my monthly blood work up. Yesterday was six vials. I should start selling the stuff. It’s embarrassing that I know everyone in the lab on a first name basis. Anyhow, as I was walking through the hospital I saw some signs…

Sarcoidosis and Mental Health – Sarcoidosis UK

Mental health includes your emotional, psychological, and social well-being. It affects how you think, feel and act and so helps determine how you handle everything life throws at you, good and bad. Mental health doesn’t always stay the same and can change as circumstances change through different stages of your life. If you experience mental…

The Importance of Boosting the Immune System – Sarcoidosis News

The immune system removes toxins from the body, staves off infections, and helps in the fight against illness. For someone with a chronic health condition, the immune system is already compromised and working overtime. Thus, boosting the immune system is especially important during cold and flu season — Read on sarcoidosisnews.com/2019/09/25/immune-system-boost-natural-remedies-lifestyle/

The Weekend Revisit of: Memory? What Memory?

MEMORY? WHAT MEMORY? Skip to entry content My memory sucks. That’s it plain and simple. I am telling myself that it is because of all the different medications that I am on, but it’s no consolation. I have these moments where I totally blank out on things. I have absolutely no recollection. The night before…

Exercise Is My Double Edged Sword

It sounds counterintuitive, but when you have heart failure you still need to exercise that muscle. No matter what, it is a muscle and not giving it a workout will only end up with it getting weaker. I have always been a very active person, hiking, bike riding etc. I still like to keep active…

The Weekend Revisit of: “The Prednisone Demon Revisited”

I wrote about him before, singing my song of impatience with he that causes the impatience, being angry with he that causes the anger. Yes, my old nemesis, the Prednisone Demon. He has been in my life for six years now, sometimes being a strong influence and at times, just sitting in the background, waiting….

Wednesday Words Of Wisdom: Loneliness

  ©️2019 Basil Rene. All Rights Reserved. Images©️Basil Rene or Sourced From Mematic &/or Giphy Who Holds ©️Info For All Photographs In Thier Application

Sometimes Frustration Cancels Out Positivity, But Just Briefly

No matter how positive you are about life, there are times when that positivity gets thrown out the window and replaced by unadulterated frustration, especially when living with a chronic illness like sarcoidosis. If you follow my blog you know that I am an anomaly, and doctors have no explanation as to how I am…

The Weekend Revisit Of: “Count Your Blessings”

Originally Posted September 8, 2012 ©️2019 Basil Rene. All Rights Reserved  Images©️Basil Rene or Sourced From Mematic &/or Giphy Who Holds ©️Info For All Photographs In Thier Application 

Diagnosis and Treatment of Neurosarcoidosis

Neurosarcoidosis is not as prevalent as the pulmonary form and affects approximately 5-10% of people diagnosed. Any part of the nervous system can be affected including the brain, spinal cord, meninges, peripheral nerves, and cranial nerves. The most common presentation is cranial neuropathy with the facial nerves most frequently involved. Approximately 50-70% of people diagnosed with neurosarcoidosis…

Equine Sarcoidosis? Yep, There Really Is Such A Thing

You really do learn something new everyday. I just heard for the first time about Equine Sarcoidosis. Sarcoids are the most common cutaneous skin tumor of horses that come in various forms with varying degrees of virulence. Read more at okfronline.com/2019/09/equine-sarcoids/ ©️2019 Basil Rene. All Rights Reserved

Sarcoidosis – Symptoms And Causes – Mayo Clinic

The cause of sarcoidosis is unknown, but experts think it results from the body’s immune system responding to an unknown substance. Some research suggests that infectious agents, chemicals, dust and a potential abnormal reaction to the body’s own proteins (self-proteins) could be responsible for the formation of granulomas in people who are genetically predisposed. There…