Shaking The Family Tree Can Result In A Knock In The Head

For some reason, race plays a big part of statistics when it comes to a lot of things, sarcoidosis especially being one of them. I personally have a pet peeve with questionnaires that require your race for statistical purposes or whatever and that stems from the fact that I come from a long line of…

Wise Words Wednesday : Wayne Dyer

Forgiveness Originally Posted on MAY 10, 2012 Revenge, anger, and hatred are exceedingly low energies that keep you from matching up with the attributes of the universal force. A simple thought of forgiveness toward anyone who might have angered you in the past will raise you to the level of Spirit and aid you in…

Pill Pack Is A Great Service, But Not For Me

In 2014 I saw an article about Pill Pack, an online pharmacy that sends out your prescriptions to you prepackaged in little packets according to what time you take them. Each pack is dated and has the time you are supposed to take the meds, and which meds are in the packets for that particular…

Is It Possible To Get Life Insurance When You Have Sarcoidosis?

I came across this article (Click on link below) on how to get life insurance approval despite having sarcoidosis. Unfortunately, this does not hold for cardiac sarcoidosis as if you check any insurance application with anything related to the heart, you are denied faster than a person ordering steak at a vegan restaurant. However, I hope…

Happy Birthday To Me!

Today, I turn 55. You can’t begin to imagine just how happy and proud I am to reach this mile stone. So many people become depressed when they have a birthday and some religions don’t even want to acknowledge it, which really baffles me. A birthday is a wondrous and joyous thing. It marks another…

The Weekend Revisit Of: No Matter What You Do, I Send You Love

When I decided to return to massage school, I was assured by the school that they will work with me and my conditions. The school has been swallowed up by another corporation and the rules have changed. Of course now everyone is back tracking and claiming they never said as such, and that they were…

Prednisone Withdrawal At 3mg

I am beginning to sound like a broken record but this is where I am at with weaning off of prednisone after 11 years of being on the drug non stop. In my last post about the coming off -“Prednisone Withdrawal Symptoms Worse Than The Actual Side Effects“- I described the different types of pain…

My New Oxygen Concentrator Is Less Than Three Pounds And I Love It

I started using oxygen for sleep and exertion in 2007 and at the time I was given those horrendous wine bottle size portable oxygen tanks that weighed a ton and only lasted an hour or two. Those didn’t work for me since my main form of exercise is hiking, so I researched and got my insurance…

The Weekend Revisit of: A Wasted Heart?

  There is no greater gift than that of a second chance at life, and the ultimate gift is for a parent or spouse to decide to donate their loved one’s organs so that another person may have life. When an organ is donated, the recipient has a second chance, an opportunity given by the…

Happy Valentine’s Day And A Little Gift To You

It’s that time again for people in love to express their devotion to each other and for single people to be reminded that they are alone. The one thing that everyone has in common with this is day is chocolate or candy in general. I would love to give everyone of my readers a gift…

The Weekend Revisit of: Dangers of Statistics

DANGERS OF STATISTICS Originally posted April 24, 2012 I read a blog today by a heart failure patient who had just crossed their two-year mark of being diagnosed, and according to them, the statistics state that with their particular condition, they had a 50% chance of living for two years. This person apparently is convinced…

My Dreaded Registering With “The Man” Has Finally Come

Ever since developing cardiac sarcoidosis and getting my AICD implanted, I dreaded that one day it would affect my ability to get my driver’s permit. I love to drive, even in traffic. In summer my job requires that I drive an average of 4,000 miles in that time, and sometimes a 2 1/2 hour trip…

New Rx Can Help With Stress And Other Ailments

I came across this infomercial for the best remedy for stress and a lot of other ailments. Please take a minute to look at it. I have used this Rx for many a year now, and I know it has helped me bounce back from being a few years away from being on a heart…

“Being Hip” Takes On A Whole Different Meaning Now

Sitting in my car in the parking lot of the mall, sipping on a Starbucks Frappucino, waiting for my wife and watching people go by, I try to keep moving around my leg to ease the discomfort of my hip. For the past couple of months my right hip has been aching off and on,…

When Something Isn’t The Right Time

I just finished writing a very detailed post about meditation and the process I use. I wrote it on my laptop in a program separate from WordPress so that my entry wouldn’t post incorrectly, which for some reason happens to me in WordPress. I wrote it,  re-read it, tweaked it and was happy with it…

Here I Go, Again!

I haven’t written anything to this blog for a while and frankly it’s because I have no inspiration. The blog was originally meant to be my posts about living my life with Sarcoidosis, but really, I don’t have very much to say anymore on my condition that hasn’t already been said. Then I got an…

ICD Doesn’t Reduce Mortality in Non-Ischemic HF | Medpage Today

I Can’t believe that they actually did a study to figure this out! And ICD is just to stop firibiulation of the heart. Nothing else. by Crystal Phend  Senior Associate Editor, MedPage Today This article is a collaboration between MedPage Today® and: Medpage Today Implantable cardiac defibrillators (ICD) don’t reduce mortality risk in heart failure…

Why Do I Need To Justify My Apple Watch?

I stood at the counter of the Starbucks, waiting for my mobile order. The ordering line was long and as usual and I could feel the eyes of those in the line on me, watching that I just walked in the door, right past all of them and straight to the pick up counter to…

The Weekend Revisit Of “Crossing Bridges”

Originally posted on April 22, 2012 On a recent trip into NYC for my ICD interrogation, my wife and I took a train down town to see the 9/11 memorial. We have not been there since the buildings fell. Prior to the attacks we were often in the North Tower as my brother had his…

The Weekend Revisit Of “Superman Is Grounded”

Originally Posted April 17, 2012 I went into NYC for an ICD interrogation (Fancy term for reading my defibrillator), a simple procedure where the doctor downloads the information from the device and makes sure everything is okay. That little device – I call him “Buddy” – keeps track of my heart so completely that it…

Prednisone Withdrawal Is No Fun

Today marks exactly 10 years, non stop, that I am on Prednisone for sarcoidosis. The side effects of this medication can be horrendous, but thankfully my experience in those ten years were just mostly mood changes, thining skin and some weight gain. I am told that for being on it so long, my weight gain…