Snapshots Of My Life: It’s Just Freaking Wine

“Green apples” said my best friend sitting next to me. “I get a hint of banana” added another friend sitting to our front It was my turn to illicit a response, and I sat there, forty plus eyes trained anxiously on me, waiting to hear my words of wisdom. After all, I was, so far,…

The Saturday Revisit Of “Why Do People Suffer?”

Originally Posted January 3, 2012 I was telling my wife about an email I received from someone telling me that they have suffered from sarcoidosis for many years, when she interrupted me and asked “Why do people suffer?”. The question stopped me in my tracks and I realized the sheer power of words and their…

Do I Look Like An Old Woman To You?

I am on prednisone now for ten years straight, without ever taking a break. My dosage has been as much as 70mg to as low the current 5mg. I am on what the call a “maintenance” dose, which translates to “because you are on prednisone for so long, your body can't make its own, so…

I Should Be Fed Up, But Remarkably I’m Not

In 2006 when I entered Putnam Hospital Center to have a failed bronchoscopy to determine if I had #Sarcoidosis of the lungs, little did I know that journeys to hospitals and medical centers would become the norm. Later that year I had an open lung biopsy, by far the most painful procedure I ever had,…

Who Came Up With Only Twenty Four Hours In A Day?

It has been an exhausting past few months, and admittedly, my blog has suffered the consequences. There is so much I wanted to write about, all sitting at the tips of my typing fingers, but never to make it onto the virtual keypad of my tablet. I am physically and emotionally exhausted. My body is…

Family Politics And Being Able To Let Go

My eldest brother and I never had a close relationship. We are seven years apart and always fought through my childhood. In my teens and twenties, we tolerated each other, and then now we barely communicate. Some years ago, he and his wife became part of a “born again” church, and he wrote to me…

Life Is Such A Roller Coaster Ride

Life in general, and especially when you have a chronic condition, is a roller coaster ride, isn't it? It seems that when ever anything good is happening, everything good happens. And then something negative rolls in, and it seems everything goes down hill. Earlier this year, I was on the crest of the ride. Everything…

The Sunday Morning Revisit Of “Bon Voyage Miss” E

The Weekend Worthy Revisits are posts that I wrote a few years back that I think deserve another look. Here is one originally posted November 5, 2011 entitled “BON VOYAGE MISS E.“ It is funny how some people come into your life that you at first never take notice of, but they end up impacting…

Hey Morning People, Have Some Consideration!

I am not a morning person until I have to be. I work late hours and usually, I dont wake up until 8:30 in the morning, and if I need to get to work early or am traveling for work, I don't get up until 7:00. I don't usually go to bed before 2:00 am…

The Weekend Worthy Revisit: It’s Just Air

Originally posted October 10, 2011 What is it about vanity? No matter how any of us can profess we are not vain, we are at some intrinsic level. Some where deep inside even the humblest of people lies the vain gene. I don’t think of myself as a vain man, but to some extent, I…

My Guest Post For The PHight Or Flight Project Is Up

Serena over at Phight Or Flight Project invited me to do a blog post on her site about my journey with pulmonary hypertension, and after many rewrites, I finally got a submission to her after a month or so, which she posted yesterday. Here is an excerpt from my post. “I did meditation. I exercised…

How Life Treats You All Depends On How You Approach It

  I recently came across this writing and it just goes to show how you enjoy your life all has to do with how you approach it. Read the passage below to the end. Today was the absolute worst day ever And don't try to convince me that There is something good in every day…

Flashback Friday: Pushing On Through

Originally Posted on June 17, 2011 My wife and I are very busy at this time of the year, and it seems we are always working or going to appointments. We work together and are pretty much together 24 hours a day. Yet, one day a week we try to have a date night. Just…

Awesomely Amazing Happy Results

I had a right heart catheterization on Monday to determine what is the cause of the increase in my shortness of breath and huge drop in oxygen saturation with exertion. The possibilities were either my pulmonary hypertension worsened or my heart is going back into failure. Turns out, amazingly, it's neither! All of my pulmonary…

It’s Time To Let Go

Why stress over someone that won't even check to see if you are alright? Sometimes you just need to distance yourself from people. Nobody is ever “too busy”. If they care, they’ll notice. If they don’t, you know where you stand with them. If they really care, they will make the time. Very often I…

My Intial Thoughts On The Inogen One G3 POC

I recently wrote a blog post about getting rid of my liquid portable oxygen and getting a personal oxygen concentrator [Click here to read the post]. The new unit, an Inogen One G3 Portable Oxygen Concentrator, was delivered on Friday and here are my initial thoughts on the unit. The unit comes with a wall…

Hey Marketing Department, We’re Not All Over 80!

I have some chronic conditions that apparently medical supply marketers believe only happens to older people. If I look up pulmonary hypertention, I will get photos of grand ma and grand pa with their oxygen tanks, smiling and playing with their grandchildren. If I look up heart failure, it will be pictures of grand ma…

Thumbs Down? Really?

If you read my post about getting a portable oxygen concentrator, and hoping that insurance will pay for it, well, they won't. I am disappointed but not phased. I decided that I will just buy the unit myself. Right now, because of the changes to my insurance plan, I now have to pay $150.00 a…

How Dare You?! I’m Not Fat. I am Stuffed!

FaceBook just changed their “Feeling Fat” emoji title to “Feeleing Stuffed” after protests from users who said that it promoted online body shaming. I don't know about anyone else, but when I eat too much, I feel fat! My damned pants can't button. I know what it feels like to feel fat. I recently gained…

Adjusting To Day Light Savings Time Gradually

On Sunday, we in the the U.S. change our clocks (in most states) one hour ahead to adjust for day light savings time. For some people, just that simple one hour adjustment can throw them out of whack. It never bothered me, but this year my wife and I are trying something new. Starting today,…