The Weekend Revisit Of “Crossing Bridges”

Originally posted on April 22, 2012 On a recent trip into NYC for my ICD interrogation, my wife and I took a train down town to see the 9/11 memorial. We have not been there since the buildings fell. Prior to the attacks we were often in the North Tower as my brother had his…

Before You Can Really Get Help, Learn About Yourself

Exactly ten years ago today, I got a call from my doctor to confirm that my test results were positive for sarcoidosis. The day before, I came out of the hospital after a three day stay for an open lung biopsy, the test to determine if sarcoidosis was indeed active in my lungs. To date,…

Do I Look Like An Old Woman To You?

I am on prednisone now for ten years straight, without ever taking a break. My dosage has been as much as 70mg to as low the current 5mg. I am on what the call a “maintenance” dose, which translates to “because you are on prednisone for so long, your body can't make its own, so…

I Should Be Fed Up, But Remarkably I’m Not

In 2006 when I entered Putnam Hospital Center to have a failed bronchoscopy to determine if I had #Sarcoidosis of the lungs, little did I know that journeys to hospitals and medical centers would become the norm. Later that year I had an open lung biopsy, by far the most painful procedure I ever had,…

The Wisdom Of Angelina Jolie

Angelina Jolie is a beautiful, talented actress and a phenomenal humanitarian. Recently, when she learned that she had the gene for breast cancer, she took preventative steps and had a double mastectomy. Recently again, she had a blood test that showed she had markers for possible early cancer, and she had her ovaries removed. The…

Flash Back Friday – Unsupported

Originally posted JANUARY 26, 2011 When I first was diagnosed with sarcoidosis, my doctor suggested I join a sarcoidosis support group. I never did. Then when I discovered I had heart failure, my cardiologist suggest I join a heart failure support group. I never did. Then when I discovered I had pulmonary hypertension, the manufacturer…

Plane, Trains And Sneezing People!

“AH-CHOO”! I hear it behind me, in front of me, at the side of me and instantly I hold my breath and go the opposite direction as fast as I can. That's easy enough when I am in a supermarket or out in the open. But what can I do when I am in a…

Flash Back Friday – Longer And Longer

Originally Posted January 12, 2011 The other day we took down our Christmas decorations, something that would usually take me an hour or two in the past. To take them down and store them in the attic took me almost five hours this time, and I still haven’t gotten to the outdoor stuff. Heart failure…

Flash Back Friday – Prednisone: My Nemesis

Originally Posted January 11, 2011 See the end of this post for an update on this post It’s confirmed, I’m pre-diabetic. I had a blood test called an AC1hemoglobin blood test which checks yourblood sugar levels for the last three months, and a pre-diabetic range is 5.7% – 6.4%. At 6.5% your are diabetic. I’m…

Keep Your Life On A Need To Know Basis

I spend a lot more time at doctor's offices and labs than the average person, at least once a month. At least. My doctors thankfully almost always run on time, so seldom do I ever have to wait more than five minutes before I am called in. But, even in that short time span, almost…