The Weekend Revisit Of: The Only True Healer Is You

I came across a blog recently that was written by a person with some of the same conditions that I have – heart failure and pulmonary hypertension. The tone of the writing was very angry and bitter towards both the diseases and the establishment.

Losing The Battle But Never Giving Up On The Fight

“You may have to fight a battle more than once to win it” – Margaret Thatcher This is my fifth or sixth attempt of coming off of prednisone and again it failed miserably. I started weaning off in November and had pain that was tolerable, and in the middle of February I decreased the dose…

The Weekend Revisit Of: No Matter What You Do, I Send You Love

When I decided to return to massage school, I was assured by the school that they will work with me and my conditions. The school has been swallowed up by another corporation and the rules have changed. Of course now everyone is back tracking and claiming they never said as such, and that they were…

The Weekend Revisit Of “Crossing Bridges”

Originally posted on April 22, 2012 On a recent trip into NYC for my ICD interrogation, my wife and I took a train down town to see the 9/11 memorial. We have not been there since the buildings fell. Prior to the attacks we were often in the North Tower as my brother had his…

The Saturday Revisit Of “Why Do People Suffer?”

Originally Posted January 3, 2012 I was telling my wife about an email I received from someone telling me that they have suffered from sarcoidosis for many years, when she interrupted me and asked “Why do people suffer?”. The question stopped me in my tracks and I realized the sheer power of words and their…

Who Came Up With Only Twenty Four Hours In A Day?

It has been an exhausting past few months, and admittedly, my blog has suffered the consequences. There is so much I wanted to write about, all sitting at the tips of my typing fingers, but never to make it onto the virtual keypad of my tablet. I am physically and emotionally exhausted. My body is…

Life Is Such A Roller Coaster Ride

Life in general, and especially when you have a chronic condition, is a roller coaster ride, isn't it? It seems that when ever anything good is happening, everything good happens. And then something negative rolls in, and it seems everything goes down hill. Earlier this year, I was on the crest of the ride. Everything…

God Always Answers, You Just Have To Listen

I walked in the rain today. I didn't get trapped or anything like that. I deliberately walked in the rain, and I loved it. It brought back one of my biggest joys as a boy. Every opportunity I could, as soon as the rain started to fall, I would strip of my shirt and run…

Flashback Friday: Stepping Out Of The Fish Bowl

Originally posted to my blog on May 12, 2011 There is an old saying that “the last one to know they are in a fish bowl is the fish”, and I can say that has been true for me for the past few weeks. I have been angry and whiny and it has been reflecting…

This Inter-Dimensional Travel Is Exhausting

What a weird day. I must be doing some major Inter-dimension travel. Last week I spoke to my doctor's nurse to arrange some tests and to make an appointment to see him. She told me she would put in the orders for the tests and gave an appointment to see my doctor at 10:45 yesterday….

Motivational Monday: It Has To Rain, But Not Today

Life with a chronic illness can suck at times, and for many, it seems the down days are more frequent than the up days. But when you do have the up days, make the most of it. Appreciate it. Enjoy it. Appreciate the rainbow and don't sit around waiting for the rain to return.  …

Flashback Friday: Pushing On Through

Originally posted to my blog June 17, 2011 My wife and I are very busy at this time of the year, and it seems we are always working or going to appointments. We work together and are pretty much together 24 hours a day. Yet, one day a week we try to have a date…

Flashback Friday: If Someone Had Told Me

Originally posted to my blog on May 8, 2011 If someone told me five years ago that today I would have a hole in my heart that would be discovered only after having a mini stroke, I would have laughed.

21 Things You Need To Do To Live With Sarcoidosis

Almost all the emails I get are from people asking how I got better, and I always say that it was a combination of different things. When I recently I told someone that, they told me to give them a checklist of everything that I did. So here is my checklist of everything I think…

Flashback Friday: Ready, Aim, Heal

Originally posted March 9, 2011 I started this blog last year on the 4th anniversary of my open lung biopsy which definitively diagnosed my pulmonary sarcoidosis. I started it not as an informative blog, but as a blog about my personal experiences with the disease sarcoidosis. If you are a follower of my blog, you…

Flashback Friday: Every Now And Zen You Need To Wrap A Nap

Originally posted March 8, 2011 One thing that I have learned to do and really look forward to everyday, is to take a nap. For health reasons, it is really good for you, and it is something I never did before because I always felt that I would “miss something”. I try to nap for…

An Anniversary Of Angelic Intervention

Thirty three years ago tonight, at the age of nineteen, a neighbor that was about my age, who I really did not know very well, saw me in my front yard and came over to talk. He pointed to a house about three houses away from mine, obliquely opposite, and asked me if I ever…

Flashback Friday: For Joyce

In May 2007, the week before I started my second semester of massage school, I had a TIA or mini stroke. This started me on the road to discovery that I had a hole in my heart and eventually to the fact I have heart failure. I had a barrage of tests, MRIs, x-rays, blood…

Stuff Happens. Just Take It In Stride And Smile

I just finished the best vacation I ever had, a week in sunny beautiful Southern California. The entire time we were there we continued to live in east coast time to keep with my medicine schedule, which worked out perfectly. We decided to take the red eye home, leaving CA at midnight eastern time, getting…

Quiet Like A Low Tide, But My Tide Is Coming Back In

Since my surgery in July to replace my implanted defibrillator, just like a beach at low tide, my blog has been pretty quiet, and many of you have written in to see how I am doing and I really do appreciate the thoughts. Yes, I have been quiet on here, and I hope that I…

Flash Back Friday – Longer And Longer

Originally Posted January 12, 2011 The other day we took down our Christmas decorations, something that would usually take me an hour or two in the past. To take them down and store them in the attic took me almost five hours this time, and I still haven’t gotten to the outdoor stuff. Heart failure…

Recovery Should Be Like A Slow Walk Down A Flowered Path

Today marks three weeks since I had my defibrillator replaced, and I was thinking, wouldn't it be great if recovery from surgery was as easy and delightful as walking down a flowered path? Who am I kidding? This surgery marks is my fifth one since being diagnosed with sarcoidosis in 2007, and as far as…

Flash Back Friday – Longing For The Little Things

Originally Posted January 7, 2011 I had to wake up early the other morning to get into the city for my doctors’ appointments and it was a cold winter’s morning here in upstate New York. As went into the bathroom the air was cold and I turned on the shower, which quickly heated up and…

Today On Fire, Tomorrow On Ice

Yesterday I helped my wife in the garden to get some heavy lifting and planting done before my surgery next week as I will be restricted in my lifting for a few weeks, and I had a ton of energy yesterday and today I am drained. So it is with sarcoidosis.