Second Look Sunday: “Life With Sarcoidosis Is A Nightmare”

Originally Posted June 26, 2013 “Life with sarcoidosis is a nightmare” – Six words that describes most people’s experience on a daily basis with sarcoidosis. Those are the words posted as a comment on my Facebook page by one of my Facebook compatriots, and they speak so much of the frustration she feels having this…

How Will the Coronavirus End? – via The Atlantic

The White House is a ghost town of scientific expertise. A pandemic-preparedness office that was part of the National Security Council was dissolved in 2018. On January 28, Luciana Borio, who was part of that team, urged the government to “act now to prevent an American epidemic,” and specifically to work with the private sector to develop fast, easy diagnostic…

Preparing For The COVID-19 Outbreak For The Past 14 Years

Today, I am working from home and settling in for the long haul. As the rest of the world goes into a “sudden” hygiene frenzy, my wife and I are settling into what has become normal for us for the past fourteen years. In 2006 we were already minor germaphobes, but when I started to…

This Is Getting Too Close To Home

In less than a week, confirmed COVID-19 (Coronavirus) went from hundreds of miles away to 40 miles away to 5 miles away from my home. I fall into the vulnerable population because of my heart and lung conditions, and so I am being extra cautious. I have had bad flus before and recovered so I…

Could My Love Really Be Turning Against Me?!

I remember too well the day we met, almost thirteen years ago, a cool morning, the sun high in the cloudless New York City sky. We were introduced by, of all people, an Ayurvedic doctor that I had only met 30 minutes before. He said we would be good for each other. At first I was…

The Weekend Revisit Of: Gazing Into Truth

I look at the white framed image of the man in front of me, his face revealing nothing of what really lies with in his soul, except his eyes. The eyes tell it all, their perfect brown circles staring out, trying to express neutrality, but can’t. They express the true meaning of the man, his…

The Weekend Revisit Of: An Anthem For My Life With Sarcoidosis

When I am alone in the car, I like to listen to [podcasts] that I can learn something from. I would sometimes listen to [audiobooks]. They all help to keep me alert when I am driving alone. The other day I was listening to an interview and the host was interviewing the author of some…

The Weekend Revisit Of: Be Honest – Stay Healthy

Today I went to Starbucks and ran into a woman I went to massage school with back in 2008. We hugged and exchanged the usual pleasantries and quickly updated each other on where we were in the past five years. She knows of my conditions, at least basically, because I had to leave school because…

The Weekend Revisit Of: An Echo Gone Wrong

I went in for an echocardiogram last week to see if I still had shunting at my PFO closure (if the hole my heart was still not fully closed and if there was oxygenated blood still mixing with oxygenated blood), and it turn out to be quite the adventure. I went to my new cardiologist’s office…

The Weekend Revisit Of: Sarcoidosis Knows No Color

I recently posted an entry called “Winter Is Tearing Me Apart“, in which I talked about my skin tearing due to the cold dry weather, and in that post I had a photo of my red, torn knuckles. Unbelievably, I received an email from a reader that said ” … saw your photo on the…

The Weekend Revisit Of: Calls From Buddy

  I got home today and on my home voice mail was a message from my electrocardiologist’s office saying that they received my AICD Interrogation transmission. At those first words, I became a bit nervous. I took a deep breath and my heart rate increased a bit. Buddy, (my defibrillator),  communicates wirelessly to a device at…

The Weekend Revisit Of: Did You Say I Don’t Look Like Arnold?

I have experienced quite of few changes with the development of sarcoidosis and the accompanying conditions of heart failure and pulmonary hypertension. I put on 30 pounds, a lot of my muscle definition has gone and now my doctor tells me I am starting to develop Gynecomastia. Yep, I am getting man boobs, and with the…