Second Look Sunday: Traveling And Diuretics

Originally posted January 23, 2014 It is amazing how you need to plan your life when you have chronic conditions. Simple things like a road trip become an event. I need to figure out if I need to walk with my portable liquid oxygen or my concentrator. How many days of medication I need. If…

Superman Is Grounded

When I was given the news in 2007 that sarcoidosis affected my heart and that I had 5 to 10 years before I would need a heart and lung transplant, I was determined to prove doctors wrong. There was no way I was having a transplant. I was going to live way beyond the ten…

I Am Still Alive!

On this day in 2006, fourteen whole years ago, a surgeon made three slices in my right torso and extracted three pieces of my lung for examination to confirm suspected sarcoidosis. If you haven’t guessed, I was positive. Stage four they said. Severe scaring they said. One year later that pesky old sarcoidosis made it’s…

Exercise Is My Double Edged Sword

It sounds counterintuitive, but when you have heart failure you still need to exercise that muscle. No matter what, it is a muscle and not giving it a workout will only end up with it getting weaker. I have always been a very active person, hiking, bike riding etc. I still like to keep active…

Sometimes Frustration Cancels Out Positivity, But Just Briefly

No matter how positive you are about life, there are times when that positivity gets thrown out the window and replaced by unadulterated frustration, especially when living with a chronic illness like sarcoidosis. If you follow my blog you know that I am an anomaly, and doctors have no explanation as to how I am…

Sarcoidosis – Symptoms And Causes – Mayo Clinic

The cause of sarcoidosis is unknown, but experts think it results from the body’s immune system responding to an unknown substance. Some research suggests that infectious agents, chemicals, dust and a potential abnormal reaction to the body’s own proteins (self-proteins) could be responsible for the formation of granulomas in people who are genetically predisposed. There…

The Weekend Revisit Of: “Happy Birthday Buddy”

Buddy is five today! Five years ago, buddy entered my world and changed it forever. Of course buddy was never planned for. How do you plan for someone like Buddy? I still remember the emotions I felt the day before I got buddy. I knew that the next day nothing I did would ever be…

Defying The Rules And Living

When I first discovered that I had a hole in my heart, I was told that for six months afterwards I would need to take it easy. I needed to give the heart time to grow tissue over the plug that was placed in the hole, otherwise, if I fell too hard or anything like…

Calgary Doctor Monitors Heart Failure Patients With Wireless Sensor | Calgary Herald

Ok. This is really scary to me! A Calgary doctor is using a tiny wireless sensor to monitor heart failure patients.As part of a clinical pilot program and research study with the University of Calgary, Foothills Medical Centre heart failure specialist. — Read on calgaryherald.com/news/local-news/wireless-sensor-allows-calgary-doctor-to-monitor-heart-failure-patients