Life Is Such A Roller Coaster Ride

Life in general, and especially when you have a chronic condition, is a roller coaster ride, isn't it? It seems that when ever anything good is happening, everything good happens. And then something negative rolls in, and it seems everything goes down hill. Earlier this year, I was on the crest of the ride. Everything…

An Even Easier Way To Sort Your Medications! Have It Done For You!

I used to take fifteen different medications over four different periods during the day at one point in my journey with Sarcoidosis and its a pain to try to remember what to take and when, especially when the medication you are taking messes with your memory. I originally bought a monthly pill sorter which works…

The Sunday Morning Revisit Of “Color Me Blessed”

The Sunday Morning Revisits are posts that I wrote a few years back that I think deserve another look. Here is one originally posted November 19, 2011 entitled “Color Me Blessed” I know, I sound like a stuck record about how blessed I am, blah, blah, blah. But I can’t help but look at all…

There Is Such A Thing As Too Much Support

One of the biggest complaints of people with chronic illness and chronic pain is that they don't get enough support from family and friends. I have always been an independent person, and never really needed support. My wife is a huge support to me and I don't need it from anyone else. A lot of…

The Weekend Worthy Revisit: Selective Memories

The Weekend Worthy Revisits are posts that I wrote a few years back that I think deserve another look. Here is one originally posted October 17, 2011 entitled “Selective Memories” It has been 49 years, 7 months and 17 days, for a total of 18,128 days since I have come to this planet and as…

The Weekend Worthy Revisit: Think You Have Problems?

The Weekend Worthy Revisits are posts that I wrote a few years back that I think deserve another look. Here is one originally posted October 19, 2011 entitled “Think You Have Problems?” October 19, 2011 Very seldom do I ever complain. It is something that sometimes drives my wife crazy because she knows I am…

The Weekend Worthy Revisit: It’s Just Air

Originally posted October 10, 2011 What is it about vanity? No matter how any of us can profess we are not vain, we are at some intrinsic level. Some where deep inside even the humblest of people lies the vain gene. I don’t think of myself as a vain man, but to some extent, I…

The Weekend Worthy Revisit: The Definition Of Me

Originally Posted on October 3, 2011 When I moved to the US 25 years ago, one of the things the struck me with the culture is people’s need to know what you did for a living. They would meet you, and immediately ask what type of work you did. I realized with time, that no…

The Weekend Worthy Revisit: Forgetting Buddy’s Birthday

  Originally Posted on September 17, 2011 I am great at remembering dates and numbers. I know obscure dates, phones numbers from my childhood, even most of my account numbers and credit card numbers. Today I realized I forgot Buddy’s Birthday. It was his birthday last August 28th, and I forgot. It’s pretty hard for…

The Weekend Worthy Revisit: Slap Me Again

Originally Posted September 24, 2011 For every action, there is an equal and opposite reaction. For every white there is black. For every wonderful day of weather you enjoy, there is probably going to be a rainy one or two coming up. The day must be followed by the night, and vice versa. No matter…

My Guest Post For The PHight Or Flight Project Is Up

Serena over at Phight Or Flight Project invited me to do a blog post on her site about my journey with pulmonary hypertension, and after many rewrites, I finally got a submission to her after a month or so, which she posted yesterday. Here is an excerpt from my post. “I did meditation. I exercised…

Flashback Friday: Living Your Life For You And Not Your Disease

Originally Posted September 11, 2011 I follow this person on Twitter that has an implanted defibrillator and he is campaigning heavily for a patient’s rights to access his or her defibrillator information at will. Although I do agree with him to some extent, a recent tweet of his was an eye opener. It read: “I’m…

Some More Good News

I know that I said I was going to post some photos of my San Francisco trip, but alas, life caught up with me. The past three wells were crazy. My in laws were visiting for my wife's birthday, and work has been so crazy busy that I had time for nothing. My home office…

Flashback Friday: Pushing On Through

Originally Posted on June 17, 2011 My wife and I are very busy at this time of the year, and it seems we are always working or going to appointments. We work together and are pretty much together 24 hours a day. Yet, one day a week we try to have a date night. Just…

Awesomely Amazing Happy Results

I had a right heart catheterization on Monday to determine what is the cause of the increase in my shortness of breath and huge drop in oxygen saturation with exertion. The possibilities were either my pulmonary hypertension worsened or my heart is going back into failure. Turns out, amazingly, it's neither! All of my pulmonary…

V Is For Vacation

This is a Blogging From A To Z Challenge Post April 25th – V I will be taking a few days off from my blog, and I am resigning from the blogging A to Z challenge. I am having my heart catheterization on Monday morning, and I need to just concentrate on me and my…

R Is For Reschedule

This is a Blogging a From A To Z Challenge post April 21st- R I am supposed to have my heart catheterization in two weeks, but it turns out that somehow the date wasn't sitting right with me, and I always follow my intuition. I also found out that there is some work stuff that…

Q Is For Quiet

This is a Blogging From A to Z Challenge post April 18th – Q This year is nine years since being diagnosed with Sarcoidosis, and in that time I found that it is best to be quiet about my conditions, the way I feel and all what’s going on with me. My wife gave me…

O Is For Operations

This is a Blogging From A to Z Challenge post. April 17th – O If you told me nine years ago today that by now I would have five different operations, four of them alone heart related, I would probably have laughed. And then if you would have told me that I would have a…

N Is For Navigation

This is a Blogging A to Z Challenge post April 16th – N When I started along this journey of my life with sarcoidosis and the accompanying conditions of heart failure and pulmonary hypertension, I had to learn quickly how to navigate my way through the medical establishment. Since I have different conditions, I somehow…

E Is For Endurance

This Is A Blogging From A To Z Challenge Post April 6th – E    People with chronic illnesses are often looked upon as weak, pathetic and sorry individuals, people that no longer really have a place in the social circles of past. The truth is, people with chronic illnesses have to endure pain, fatigue,…

C Is For Changes Which Are Good Sometimes – I Hope

THIS IS A BLOGGING A TO Z CHALLENGE POST April 3, 2015 – “C”   2015 is proving to be a year of many changes so far. Some of the changes were stressful, and others were welcome, and yet others were surprising, but needed. And we still have a little over nine months to go…

It’s Time To Let Go

Why stress over someone that won't even check to see if you are alright? Sometimes you just need to distance yourself from people. Nobody is ever “too busy”. If they care, they’ll notice. If they don’t, you know where you stand with them. If they really care, they will make the time. Very often I…

Flashback Friday: Stepping Out Of The Fish Bowl

Originally posted to my blog on May 12, 2011 There is an old saying that “the last one to know they are in a fish bowl is the fish”, and I can say that has been true for me for the past few weeks. I have been angry and whiny and it has been reflecting…