Second Look Sunday: I Need To Stay In Bed On A Sarcoidosis Day

Originally posted January 12, 2014 Everyone with a chronic condition or conditions has had a day, or days where they just are not feeling “right”. I don’t mean the pain or usual symptoms that come with the condition, but a day when you are just not in balance, where your coordination is off, your brain…

Why I Refused A Mask At My Doctor’s Office For My Own Protection.

Yes, I know, I am a major advocate for the wearing of masks in public but yesterday I actually had to refuse a mask at my doctor’s office. I went to the radiology department of my doctor’s group to have a sniff test done and the office exercised all the precautionary protocols for COVID-19, with…

Refusal To Wear A Mask Ends In Death!

People are literally going freaking crazy about having to wear a face mask! What the hell people? It’s just a mask. I have heart failure, stage four scarring of my lungs, hemidiaphragmatic elevation with semi-paralysis (look that shit up) and I have no issue wearing a mask in public. A man, who refused to wear…

Second Look Sunday: I Need Sleep

Originally posted December 2013 It’s been a rough few days for me. On Wednesday night I had a bout of post herpatic neuralgia. I had shingles in my face back in 2008, and to this day I still get times when my left nostril and face either are sensitive to the touch or it feels…

Six Word Story Saturday: “The Piano”

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This Church’s Nativity Depicts The Holy Family Separated At The Border

“Claremont United Methodist Church transformed its Christmas nativity scene into a powerful statement about family separation by caging their figures of Jesus, Mary, and Joseph and releasing a theological statement on the United States’ treatment of refugees. ” — Read on mashable.com/article/claremont-umc-nativity-scene-family-separation/

I Need Some Clarity

A couple of weeks ago I woke up with my vision really wonky. My left eye seemed out of focus and I had flashes of lights. When I looked at anything digital straight on like my clock or phone, there was a spot just to the left that was just blank. I called my eye…

Becoming A Listener

I don’t talk about my conditions to anyone. There are very few people that do know about my conditions. When I do tell someone about my stuff I have come to realize that most people really don’t want to hear another’s problems. They may sympathize, but they really don’t want to hear about your problems….

And Then There Was One

1 mg of Prednisone. That is what I am down to. I haven’t been this low on a dose since starting the drug in 2006. The lowest I was ever able to get to was 3 mg and all hell would break loose, prompting me to go back up prednisone. Now I made it to…

Avoiding The Purity Sales Pitch

Sitting on the over stuffed, over sized grey leather sofa, I face him, amazed by his frizzed out hair and his 70s sense of fashion. He asks me a million and one questions about my health history, going even deeper into my emotional history. No other doctor had done that before. He studies me intently,…

The Weekend Revisit Of: The Only True Healer Is You

I came across a blog recently that was written by a person with some of the same conditions that I have – heart failure and pulmonary hypertension. The tone of the writing was very angry and bitter towards both the diseases and the establishment.

Losing The Battle But Never Giving Up On The Fight

“You may have to fight a battle more than once to win it” – Margaret Thatcher This is my fifth or sixth attempt of coming off of prednisone and again it failed miserably. I started weaning off in November and had pain that was tolerable, and in the middle of February I decreased the dose…

The Weekend Revisit of: A Wasted Heart?

  There is no greater gift than that of a second chance at life, and the ultimate gift is for a parent or spouse to decide to donate their loved one’s organs so that another person may have life. When an organ is donated, the recipient has a second chance, an opportunity given by the…

My Dreaded Registering With “The Man” Has Finally Come

Ever since developing cardiac sarcoidosis and getting my AICD implanted, I dreaded that one day it would affect my ability to get my driver’s permit. I love to drive, even in traffic. In summer my job requires that I drive an average of 4,000 miles in that time, and sometimes a 2 1/2 hour trip…

Why Do I Need To Justify My Apple Watch?

I stood at the counter of the Starbucks, waiting for my mobile order. The ordering line was long and as usual and I could feel the eyes of those in the line on me, watching that I just walked in the door, right past all of them and straight to the pick up counter to…

Do I Look Like An Old Woman To You?

I am on prednisone now for ten years straight, without ever taking a break. My dosage has been as much as 70mg to as low the current 5mg. I am on what the call a “maintenance” dose, which translates to “because you are on prednisone for so long, your body can't make its own, so…

The Sunday Revisit of “My Reply, To A Reply, On My Nurse Rant”

I posted this back in December 16, 2011, and it became a heated discussion with a nurse, so I thought I would revisit it here today, along with the lengthy comments, which were more interesting than the post itself! My Reply, To A Reply, On My Nurse Rant I recently posted a blog entry “Here…

Snapshots Of My Life: Dealing With Nosey People

I have no water at my home for the past three days, and it’s not getting fixed until today. Long story. In any case, we have water stored away for emergencies such as this, but we were running out, so yesterday I went to the supermarket to buy water for bathing etc. I had two…

Who Came Up With Only Twenty Four Hours In A Day?

It has been an exhausting past few months, and admittedly, my blog has suffered the consequences. There is so much I wanted to write about, all sitting at the tips of my typing fingers, but never to make it onto the virtual keypad of my tablet. I am physically and emotionally exhausted. My body is…

And The Family Drama Continues

What is it about families that it seems no one can ever really get along? All families except my wife’s. Everybody in her family gets along so unbelievably, As a matter of fact, I stayed her family, not mine went I went back.  When I went back to my birth land last week i tried my…

The Sunday Morning Revisit Of “Color Me Blessed”

The Sunday Morning Revisits are posts that I wrote a few years back that I think deserve another look. Here is one originally posted November 19, 2011 entitled “Color Me Blessed” I know, I sound like a stuck record about how blessed I am, blah, blah, blah. But I can’t help but look at all…

What Are You Afraid Of Mr. & Ms. Blogger?

When I read a blog post, I want the opportunity to comment or say if I like it. More and more I come across blogs that have the option to comment or to like missing. In WordPress, it is by default on the blog, and you have the option to remove the comment and the…

What Would You Do If Your Best Friend Admitted To Cheating?

I recently came across an incident where two best friends got married to two best friends. One of the people cheated and admitted it to their best friend, and the best friend was in a quandary as to what to do. I wondered how I would handle that sort of situation, and wonder how you…

The Weekend Worthy Revisit: Think You Have Problems?

The Weekend Worthy Revisits are posts that I wrote a few years back that I think deserve another look. Here is one originally posted October 19, 2011 entitled “Think You Have Problems?” October 19, 2011 Very seldom do I ever complain. It is something that sometimes drives my wife crazy because she knows I am…