Learn To Use Your Smartphone To Enjoy Better Health

I started using a smartphone before there was even an Apple iPhone. Remember the Palm Treo? The world’s first smartphone? As a matter of fact I started to use PDAs, Personal Digital Assistants, the precursor to the smartphone way back in 1990. I had a Toshiba PDA and believe it or not, I still have…

I Have Become Thin Skinned (My 1,000th Post!)

(This is my 1,000th post to this blog!) I scratched my cheek after closing the door behind the repair man and I could feel it running across my palm, down my wrist and onto my fore arm. The warm, wet, red liquid that is the lifeline of every human. The liquid, bright red and thin…

Another Of Life’s Little Battles

What a roller coaster ride the past couple of months have been with my journey with sarcoidosis. Last year, after twelve years of constantly being on prednisone, I was finally weaning off the drug slowly. In November I had my usual echocardiogram which came back having my heart function ejection fraction at 35%. To say…

The Weekend Revisit Of “When The Universe Slaps You In The Face”

Sometimes, when you complain about the little things, the Universe takes it upon it self to remind you why you should just shut up and stride on. I am not one to complain, and I find complaining and complainers irritating, but here I am complaining about complainers! Anyhow, I recently wrote a post about An…

Pushing Through The Wall

Twelve years, five months and thirty days. That’s a hell of a long time to be on Prednisone constantly, without a break. I wrote about this drug so many times on this blog and its horrendous side effects that I am not going to list them here again. If you are familiar with pred, you…

Avoiding The Purity Sales Pitch

Sitting on the over stuffed, over sized grey leather sofa, I face him, amazed by his frizzed out hair and his 70s sense of fashion. He asks me a million and one questions about my health history, going even deeper into my emotional history. No other doctor had done that before. He studies me intently,…

The Weekend Revisit Of “Making It Through On Love”

I am a very, very blessed man, and I know it. I get a few emails in response to “My Story” where I give a brief synopsis of my journey with sarcoidosis and heart failure, and I get at least one email a week commenting on how “hard” my experience has been, or asking for…

The Weekend Revisit Of “Facing Challenges”

That which challenges you, you either face head on or you avoid completely, but if you chose to avoid it, rest assured that you will face it another day. ~ Basil Rene (I Think) THE Steps Well I am pretty sure I came up with that one, but I am also sure it has been…

A Revisit Of “Open Lung Biopsy – My Truth”

Twelve years ago today I officially began this journey with Sarcoidosis when I had an open lung biopsy. Four years afterwards I wrote about it. Once more I give you my experience of the worst operation I ever had, but as bad as the experience was, I never regret doing it. I finally gave in…

The Weekend Revisit Of: Doctors For The Other Side

There is a certain specialty doctor that I have heard my other doctors complain about. They call they the “Sell Out” doctors. These are doctors that leave their practice to work for an insurance company. What’s their job there? Do they examine employees of the insurance company at the nurse’s office? Are insurance companies so…

When “Home” Isn’t Home Anymore

When I was 19, I made my first trip to the US on vacation and fell in love. I drove into New York on a chilly June night from JFK and knew this was my home, this is where I was meant to be. I came back every year for vacation after that and eventually I…

When It Rains, It Storms

I posted last time that my friend was going in for testing and they discovered that he has lung cancer. He is not in a really good place, but that is another story. Last week I got a call that my mother was having trouble breathing and that she was going to the nursing home…

Knowing When To Support Quietly

“I’m having surgery on Monday” were the words that came up on my iPhone screen two weeks ago from a longtime friend. I’m not going into the details of the conversation, but it turns out that he has early stage lung cancer. He hasn’t gotten an exact diagnosis as yet, but he isn’t handling it…

My New Oxygen Concentrator Is Less Than Three Pounds And I Love It

I started using oxygen for sleep and exertion in 2007 and at the time I was given those horrendous wine bottle size portable oxygen tanks that weighed a ton and only lasted an hour or two. Those didn’t work for me since my main form of exercise is hiking, so I researched and got my insurance…