Second Look Sunday: “Life With Sarcoidosis Is A Nightmare”

Originally Posted June 26, 2013 “Life with sarcoidosis is a nightmare” – Six words that describes most people’s experience on a daily basis with sarcoidosis. Those are the words posted as a comment on my Facebook page by one of my Facebook compatriots, and they speak so much of the frustration she feels having this…

Second Look Sunday: “Frustration Of Forgetting”

Originally posted June 12, 2013 Today I lost my keys. I keep my house and work keys on a separate key chain from my car keys and I could not find them. The thing is, I remember having them in my hand walking to the car yesterday, but after that, nothing. I looked everywhere and…

This Is Getting Too Close To Home

In less than a week, confirmed COVID-19 (Coronavirus) went from hundreds of miles away to 40 miles away to 5 miles away from my home. I fall into the vulnerable population because of my heart and lung conditions, and so I am being extra cautious. I have had bad flus before and recovered so I…

Stories From My Life: Time Traveling

A visit to records I walked into the ultra modern lobby of the building that housed the medical records for my pulmonologist. The shiny new, brightly lit, stainless steel lined elevator whipped me quickly to the floor that the offices were located. As the elevator stopped and I waited for the door to open, rather…

The Weekend Revisit Of: Panic Attack Number One

Yesterday I went to the lab, which is in a nearby Hospital to do my monthly blood work up. Yesterday was six vials. I should start selling the stuff. It’s embarrassing that I know everyone in the lab on a first name basis. Anyhow, as I was walking through the hospital I saw some signs…

The Weekend Revisit of: Memory? What Memory?

MEMORY? WHAT MEMORY? Skip to entry content My memory sucks. That’s it plain and simple. I am telling myself that it is because of all the different medications that I am on, but it’s no consolation. I have these moments where I totally blank out on things. I have absolutely no recollection. The night before…

Sometimes Frustration Cancels Out Positivity, But Just Briefly

No matter how positive you are about life, there are times when that positivity gets thrown out the window and replaced by unadulterated frustration, especially when living with a chronic illness like sarcoidosis. If you follow my blog you know that I am an anomaly, and doctors have no explanation as to how I am…

Biotechs Are Fighting To Treat Sarcoidosis And Other Autoimmune Disease

While we mostly think of disease as being caused by bacteria or viruses, an illness can often occur when the body’s own defenses turn against itself. Here we’ll take a look at seven rare autoimmune diseases you may not have heard of and what biotechs are doing to treat them. — Read on labiotech.eu/features/rare-autoimmune-diseases-biotech/

The Weekend Revisit Of: “Just Another Day”

Today I performed my civic duty and answered my county’s summons to appear for jury duty. Why, if we are a democratic society, are forced to appear for this task? If it were truly democratic, then we should be allowed to volunteer. But that’s another blog altogether. My back is still hurting after a week and…

The Weekend Revisit Of “How Do You Fix A Fix?”

Five years ago I had a mini stroke which led to the discovery of my PFO (Patent Foramen Ovalae or hole in the heart), and eventually to the discovery of my heart failure. I had the PFO fixed and how that works is they place a plug much like a small double umbrella in the…

Sarcoidosis News: One Woman’s Case Gives New Hope Against Disfiguring Sarcoidosis

In very preliminary findings, an existing rheumatoid arthritis drug appeared to cure one woman of a rare but potentially life-threatening condition known as sarcoidosis. — Read on consumer.healthday.com/kids-health-information-23/immunization-news-405/one-woman-s-case-gives-new-hope-against-disfiguring-sarcoidosis-740933.html

The Weekend Revisit Of “Riding Elevators”

The thing about most people with sarcoidosis is the fact we all mostly have suppressed immune systems due to our medications. I hate riding elevators in flu season because inevitably some sneezy person always gets on. I came across this on the Internet the other day and I don’t know if it does work, but…

I Need Some Clarity

A couple of weeks ago I woke up with my vision really wonky. My left eye seemed out of focus and I had flashes of lights. When I looked at anything digital straight on like my clock or phone, there was a spot just to the left that was just blank. I called my eye…

Learn To Use Your Smartphone To Enjoy Better Health

I started using a smartphone before there was even an Apple iPhone. Remember the Palm Treo? The world’s first smartphone? As a matter of fact I started to use PDAs, Personal Digital Assistants, the precursor to the smartphone way back in 1990. I had a Toshiba PDA and believe it or not, I still have…

I Have Become Thin Skinned (My 1,000th Post!)

(This is my 1,000th post to this blog!) I scratched my cheek after closing the door behind the repair man and I could feel it running across my palm, down my wrist and onto my fore arm. The warm, wet, red liquid that is the lifeline of every human. The liquid, bright red and thin…

Another Of Life’s Little Battles

What a roller coaster ride the past couple of months have been with my journey with sarcoidosis. Last year, after twelve years of constantly being on prednisone, I was finally weaning off the drug slowly. In November I had my usual echocardiogram which came back having my heart function ejection fraction at 35%. To say…

The Weekend Revisit Of “When The Universe Slaps You In The Face”

Sometimes, when you complain about the little things, the Universe takes it upon it self to remind you why you should just shut up and stride on. I am not one to complain, and I find complaining and complainers irritating, but here I am complaining about complainers! Anyhow, I recently wrote a post about An…

Pushing Through The Wall

Twelve years, five months and thirty days. That’s a hell of a long time to be on Prednisone constantly, without a break. I wrote about this drug so many times on this blog and its horrendous side effects that I am not going to list them here again. If you are familiar with pred, you…

Avoiding The Purity Sales Pitch

Sitting on the over stuffed, over sized grey leather sofa, I face him, amazed by his frizzed out hair and his 70s sense of fashion. He asks me a million and one questions about my health history, going even deeper into my emotional history. No other doctor had done that before. He studies me intently,…

The Weekend Revisit Of “Making It Through On Love”

I am a very, very blessed man, and I know it. I get a few emails in response to “My Story” where I give a brief synopsis of my journey with sarcoidosis and heart failure, and I get at least one email a week commenting on how “hard” my experience has been, or asking for…