How Did I Get Sarcoidosis?

“How did you get sarcoidosis?” Is the first question posted to me by Alec on the new feature on this blog, Ask Me About My Life With Sarcoidosis. That is a very interesting question that I posed to my doctor when I was first diagnosed in 2006 and since my first involvement with the disease…

First Official ATS Practice Guidelines For Sarcoidosis – Scienmag

After so many years, it is good to see that positive steps are being taken towards education of doctors about sarcoidosis. First official ATS practice guidelines for Sarcoidosis cover diagnosis and detection – Scienmag: Latest Science and Health News — Read on

Coronavirus Might Attack the Brain, Too – Elemental

Early analyses of Covid-19 patients in January told of the most common symptoms: fever, cough, and difficulty breathing. More diagnosed cases and research revealed less common symptoms, such as neurological ones. — Read on

Second Look Sunday: “Frustration Of Forgetting”

Originally posted June 12, 2013 Today I lost my keys. I keep my house and work keys on a separate key chain from my car keys and I could not find them. The thing is, I remember having them in my hand walking to the car yesterday, but after that, nothing. I looked everywhere and…

The Weekend Revisit Of: The Power Of Social Media

A funny thing happened yesterday. In my last post I wrote about my medication being denied by the insurance company. I also tweeted about it, and I received a tweet from Aetna saying that they would like to review the case once more. They weren’t willing to review the case when my doctor appealed the decision,…

The Weekend Revisit Of: Did You Say I Don’t Look Like Arnold?

I have experienced quite of few changes with the development of sarcoidosis and the accompanying conditions of heart failure and pulmonary hypertension. I put on 30 pounds, a lot of my muscle definition has gone and now my doctor tells me I am starting to develop Gynecomastia. Yep, I am getting man boobs, and with the…

The Weekend Revisit Of: Medication Denied!

The other day I went to the pharmacy to collect my medications and was told my insurance company, Aetna, decided that they will no longer be covering my prescription for Diovan, a medication used for heart failure patients. I am on Diovan for 7 years now and all of a sudden Aetna decided not to…

The Weekend Revisit Of: Sleep, Why Do You Evade Me?

I was in bed at 12:30 last night. That’s an early night for me. I was tired and I hit the sack, closed my eyes and – nothing. I could not fall asleep. I tossed and I turned until I looked at the clock and it was 2:00 am. I decided I would read some…

Sarcoidosis May Be Treated with Mycophenolate Mofetil, Small Study Says

Given its good safety profile and lack of lung toxicity, some sarcoidosis patients have been successfully treated with MMF as a corticosteroid-sparing agent when needed.  — Read on

The Weekend Revisit Of: Panic Attack Number One

Yesterday I went to the lab, which is in a nearby Hospital to do my monthly blood work up. Yesterday was six vials. I should start selling the stuff. It’s embarrassing that I know everyone in the lab on a first name basis. Anyhow, as I was walking through the hospital I saw some signs…

The Importance of Boosting the Immune System – Sarcoidosis News

The immune system removes toxins from the body, staves off infections, and helps in the fight against illness. For someone with a chronic health condition, the immune system is already compromised and working overtime. Thus, boosting the immune system is especially important during cold and flu season — Read on

The Weekend Revisit of: “The Prednisone Demon Revisited”

I wrote about him before, singing my song of impatience with he that causes the impatience, being angry with he that causes the anger. Yes, my old nemesis, the Prednisone Demon. He has been in my life for six years now, sometimes being a strong influence and at times, just sitting in the background, waiting….