The Weekend Revisit Of: I know What It Is Like To Be Me

If you devote yourself to the positives in your life, the negatives will begin to divorce you. — Philip Arnold I received an email from a reader the other day who chastised me for always “being happy”, and that I was full of “sh*t”, that no one with a chronic illness, especially as many as…

Stop Cursing God For Your Damned Sorrows Already

I read a blog post today and the person was complaining about God punishing them by giving them sarcoidosis. To think that God is punishing you means that you obviously did some pretty bad shit in the first place for you to think you deserve to get sick and that God has singled you out…

The Weekend Revisit Of: Muscle Pain You Can’t Help

I have muscle pain, and it has bothered me for three days now. It’s not a general pain all over, but in one particular muscle, my pectoralis major. That muscle that sits right in your chest. The pain is only in my left pec, and it is a pain that I want to reach in and…

The Weekend Revisit Of: The Only True Healer Is You

I came across a blog recently that was written by a person with some of the same conditions that I have – heart failure and pulmonary hypertension. The tone of the writing was very angry and bitter towards both the diseases and the establishment.

Losing The Battle But Never Giving Up On The Fight

“You may have to fight a battle more than once to win it” – Margaret Thatcher This is my fifth or sixth attempt of coming off of prednisone and again it failed miserably. I started weaning off in November and had pain that was tolerable, and in the middle of February I decreased the dose…

Prednisone Withdrawal At 3mg

I am beginning to sound like a broken record but this is where I am at with weaning off of prednisone after 11 years of being on the drug non stop. In my last post about the coming off -“Prednisone Withdrawal Symptoms Worse Than The Actual Side Effects“- I described the different types of pain…

“Being Hip” Takes On A Whole Different Meaning Now

Sitting in my car in the parking lot of the mall, sipping on a Starbucks Frappucino, waiting for my wife and watching people go by, I try to keep moving around my leg to ease the discomfort of my hip. For the past couple of months my right hip has been aching off and on,…

Prednisone Withdrawal Is No Fun

Today marks exactly 10 years, non stop, that I am on Prednisone for sarcoidosis. The side effects of this medication can be horrendous, but thankfully my experience in those ten years were just mostly mood changes, thining skin and some weight gain. I am told that for being on it so long, my weight gain…

Do I Look Like An Old Woman To You?

I am on prednisone now for ten years straight, without ever taking a break. My dosage has been as much as 70mg to as low the current 5mg. I am on what the call a “maintenance” dose, which translates to “because you are on prednisone for so long, your body can't make its own, so…

The Sunday Revisit of “My Reply, To A Reply, On My Nurse Rant”

I posted this back in December 16, 2011, and it became a heated discussion with a nurse, so I thought I would revisit it here today, along with the lengthy comments, which were more interesting than the post itself! My Reply, To A Reply, On My Nurse Rant I recently posted a blog entry “Here…

Flashback Friday: The Nurse

Originally posted to my blog July 31, 2011 I have a real pet peeve with rudeness. It drives me up the wall, especially in the customer service area, and yes, nursing falls under that category too.I have been having a hard time with my breathing in the past couple of days and my chest hurts…

Motivational Monday: It Has To Rain, But Not Today

Life with a chronic illness can suck at times, and for many, it seems the down days are more frequent than the up days. But when you do have the up days, make the most of it. Appreciate it. Enjoy it. Appreciate the rainbow and don't sit around waiting for the rain to return.  …

Flashback Friday: Pushing On Through

Originally posted to my blog June 17, 2011 My wife and I are very busy at this time of the year, and it seems we are always working or going to appointments. We work together and are pretty much together 24 hours a day. Yet, one day a week we try to have a date…

Flashback Friday: Back From Break

Originally posted to my blog June 3, 2011 Like the consummate theater artist that has played many years out on stage in the same part and needed to get away from the constant day to day grind of being in the public eye, so too did I need to be away from the constant probing…

Motivational Monday: Be Happy For This Moment

All too often, life with a chronic illness can be a pain, literally, but I always say I would rather be with the pain at times than have the alternative. Death. This is my life, and I cherish every moment of it. Even the days that may not be the best.   Written by Basil…

Winter Is Ripping Apart My Hands

I'll admit that I am a germaphobe to a certain extent, but I am not OCD. I do wash my hands a lot, I am a chef after all and this winter is torture on my hands. The skin is already thin from being on prednisone for so many years, and add to that the…

Happy Valentine’s Day?

Valentine's Day. A day of so many emotions for so many people. There are those young ladies, and men, that are hoping, expecting, yearning for that elusive proposal over a candle lit dinner at a dimly lit, expensive restaurant tonight. There are those men, and women that are stressed out because they are going to…

Be Patient

  Written by Basil Rene © 2014 All Rights Reserved