Second Look Sunday: Give Me This Day My Daily Pain

Originally posted February 18, 2014 Everyday, I open my eyes and I say “Thank You for another day!” to the universe, to God, to who ever is out there looking down on us as I try to connect spiritually. And then I take a deep conscious breath, deep into my chest, and I am almost…

The Weekend Revisit Of: I know What It Is Like To Be Me

If you devote yourself to the positives in your life, the negatives will begin to divorce you. — Philip Arnold I received an email from a reader the other day who chastised me for always “being happy”, and that I was full of “sh*t”, that no one with a chronic illness, especially as many as…

Stop Cursing God For Your Damned Sorrows Already

I read a blog post today and the person was complaining about God punishing them by giving them sarcoidosis. To think that God is punishing you means that you obviously did some pretty bad shit in the first place for you to think you deserve to get sick and that God has singled you out…

The Weekend Revisit Of: Muscle Pain You Can’t Help

I have muscle pain, and it has bothered me for three days now. It’s not a general pain all over, but in one particular muscle, my pectoralis major. That muscle that sits right in your chest. The pain is only in my left pec, and it is a pain that I want to reach in and…

The Weekend Revisit Of: The Only True Healer Is You

I came across a blog recently that was written by a person with some of the same conditions that I have – heart failure and pulmonary hypertension. The tone of the writing was very angry and bitter towards both the diseases and the establishment.

Losing The Battle But Never Giving Up On The Fight

“You may have to fight a battle more than once to win it” – Margaret Thatcher This is my fifth or sixth attempt of coming off of prednisone and again it failed miserably. I started weaning off in November and had pain that was tolerable, and in the middle of February I decreased the dose…

Prednisone Withdrawal At 3mg

I am beginning to sound like a broken record but this is where I am at with weaning off of prednisone after 11 years of being on the drug non stop. In my last post about the coming off -“Prednisone Withdrawal Symptoms Worse Than The Actual Side Effects“- I described the different types of pain…

“Being Hip” Takes On A Whole Different Meaning Now

Sitting in my car in the parking lot of the mall, sipping on a Starbucks Frappucino, waiting for my wife and watching people go by, I try to keep moving around my leg to ease the discomfort of my hip. For the past couple of months my right hip has been aching off and on,…

Prednisone Withdrawal Is No Fun

Today marks exactly 10 years, non stop, that I am on Prednisone for sarcoidosis. The side effects of this medication can be horrendous, but thankfully my experience in those ten years were just mostly mood changes, thining skin and some weight gain. I am told that for being on it so long, my weight gain…

Do I Look Like An Old Woman To You?

I am on prednisone now for ten years straight, without ever taking a break. My dosage has been as much as 70mg to as low the current 5mg. I am on what the call a “maintenance” dose, which translates to “because you are on prednisone for so long, your body can't make its own, so…