1 mg of Prednisone. That is what I am down to. I haven’t been this low on a dose since starting the drug in 2006. The lowest I was ever able to get to was 3 mg and all hell would break loose, prompting me to go back up prednisone. Now I made it to…
Tag: patience
Avoiding The Purity Sales Pitch
Sitting on the over stuffed, over sized grey leather sofa, I face him, amazed by his frizzed out hair and his 70s sense of fashion. He asks me a million and one questions about my health history, going even deeper into my emotional history. No other doctor had done that before. He studies me intently,…
Try To See The Good In Everything
Change is inevitable. No matter how much we want things to stay or go back to how they were, they never are. So why grieve over the past that can never return. Yes, you were healthy and vibrant a year ago and now you have a chronic illness where you feel like crap most of…
The Weekend Revisit: The Passages Of Time
Why is it that time flies? When I was a boy, it seemed as if time took forever to pass through my universe, but now as an adult, a day, a month, a year flies by in the blink of an eye. I have been at this blogging adventure for a little over two years…
Breathing Easier
When jets are at altitude, the inside of the plane is pressurized to simulate earth at about 8,000 feet. For a person with breathing problems, any altitude above 9,000 feet can cause problems. In the last year I had my fair share of air travel. I have seen the inside of JFK a total of…
Is Everyone Deaf Or Do I Have Super Hearing?
I love music. I like all music except for jazz and rap. I listen mostly to pop music. I love any music with a good beat. I love to play music loudly in my car sometimes when it is a song I especially like. In spite of my love of loud music, there is a…
When Sh!t Hits The Fan, You Either Hold Your Breath Or Count Your Blessings
Last night as I started to doze off, there was a loud alarm sound coming from my bathroom. Instantly I thought it was the house alarm, but just as quickly realized how dumb the thought was as the siren is no where near the bathroom. Then I realized it was my oxygen concentrator. I got…
A Conversation at Dunkin’ Donuts
I never go to Dunkin Donuts but I had a mean cravng for coffee and although it is 34°F, I wanted a frozen coffee. I don’t know Dunkin’s menu and this being a kiosk at the airport didn’t have a menu board. Me: “Hi. What type of frozen coffee drinks do you have?” Woman: “Hot…
#Sarcoidosis Tweets Are The Whiniest Tweets There Are On The Planet
There! I said it and I could care less if you are mad, offended, upset or whatever. You could call me uncaring or cold, mean or nasty, but the truth is I am so fed up with seeing twitter posts in general with the hashtag for sarcoidosis because all they are are just a bunch…
Stumbling Is Another Opportunity To Dust Myself Off And Start Over
What can I say about this disease. It seems I make a step forward and then another one back or sometimes even two. For those of you that are now coming across my blog for the first time, I have a disease known as sarcoidosis and in 2007, I found out that it was in…
Day 40 Of My Mantra Meditation “Challenge” Complete.
I am practicing meditation for a few years now but mostly guided meditations and not everyday. A lot of the time I would fall asleep during it. Today I finished a “test” (I prefer test over challenge) of doing a mantra meditation for forty days straight and I have not missed a day. I will…
The Weekend Revisit Of: The Only True Healer Is You
I came across a blog recently that was written by a person with some of the same conditions that I have – heart failure and pulmonary hypertension. The tone of the writing was very angry and bitter towards both the diseases and the establishment.
The Weekend Revist Of: A “Thinking Out Loud Post” – Waiting
Ever wonder why we wait so long at the doctor’s office? It seems there are more people in the waiting room every time I go to my cardiologist. Today I had an appointment at 11:15 and as I was checking in, another person came in and checked in for the same time for the same…
The Most Selfish Thing A Person Can Do
I get daily emails of top news stories for my town and surrounding areas and in close proximity are two large bridges that span the mighty Hudson river and a major train line that goes into New York City. Every week, sometimes more than once a week, someone kills themselves by jumping off one of…
Wise Words Wednesday : Wayne Dyer #2
Kindness, Always Kindness Originally Posted on MAY 11, 2012 If you find yourself in a confrontation of any kind with anyone, be it a family member or a stranger, before reacting ask yourself, “Is what I am about to say motivated by my need to be right, or my desire to be kind?” Then pick…
Losing The Battle But Never Giving Up On The Fight
“You may have to fight a battle more than once to win it” – Margaret Thatcher This is my fifth or sixth attempt of coming off of prednisone and again it failed miserably. I started weaning off in November and had pain that was tolerable, and in the middle of February I decreased the dose…
The Weekend Revisit Of: No Matter What You Do, I Send You Love
When I decided to return to massage school, I was assured by the school that they will work with me and my conditions. The school has been swallowed up by another corporation and the rules have changed. Of course now everyone is back tracking and claiming they never said as such, and that they were…
My Dreaded Registering With “The Man” Has Finally Come
Ever since developing cardiac sarcoidosis and getting my AICD implanted, I dreaded that one day it would affect my ability to get my driver’s permit. I love to drive, even in traffic. In summer my job requires that I drive an average of 4,000 miles in that time, and sometimes a 2 1/2 hour trip…
Why Do I Need To Justify My Apple Watch?
I stood at the counter of the Starbucks, waiting for my mobile order. The ordering line was long and as usual and I could feel the eyes of those in the line on me, watching that I just walked in the door, right past all of them and straight to the pick up counter to…
The Weekend Revisit Of “Crossing Bridges”
Originally posted on April 22, 2012 On a recent trip into NYC for my ICD interrogation, my wife and I took a train down town to see the 9/11 memorial. We have not been there since the buildings fell. Prior to the attacks we were often in the North Tower as my brother had his…
The Weekend Revisit of “Appreciating My Life”
Originally posted April 10, 2012It’s spring, and with it comes new beginnings, new life, new starts. I recently changed all of my bank accounts to another bank as my old bank was bought out. I had to change my work email address as there were technical difficulties with the old one. Little changes, big steps….
Last Night I Met The Man Of My Dreams
Last night my wife was listening to an audio book about Edgar Cayce and his visitation by an Angel. I thought to myself how cool it would be to be visited in person by an Angel and fell asleep listening to the book. I had the most amazing dream. I dreamt that I was walking…
And The Family Drama Continues
What is it about families that it seems no one can ever really get along? All families except my wife’s. Everybody in her family gets along so unbelievably, As a matter of fact, I stayed her family, not mine went I went back. When I went back to my birth land last week i tried my…
The Weekend Worthy Revisit: The Definition Of Me
Originally Posted on October 3, 2011 When I moved to the US 25 years ago, one of the things the struck me with the culture is people’s need to know what you did for a living. They would meet you, and immediately ask what type of work you did. I realized with time, that no…
I Am Not A Foodie, So Don’t Call Me One Because I Am A Chef
I am a formally trained chef. I attended the prestigious Culinary institute of America in Hyde Park, NY, the only college in the world dedicated solely to the culinary arts. I was on the Dean's list for every semester. I was, at the time, the only student ever recruited by the school to be a…
There Is A Blogger’s Etiquette
I follow a few blogs, most of them on WordPress, and I go through my reader feed every morning and read the highlights of each new post, and if the teaser catches my fancy, I will read more, and even the entire thing if I like it. I would then click on the little “like”…
