Taking Care Of Me

It’s been a while since my last post, almost six weeks. A lot has happened health wise with me since then. Lots of testing and fighting with insurance to pay for the major part of the testing and just saying “F**k it!”, and paying for it myself. It has been a small journey, and one…

And Then There Was One

1 mg of Prednisone. That is what I am down to. I haven’t been this low on a dose since starting the drug in 2006. The lowest I was ever able to get to was 3 mg and all hell would break loose, prompting me to go back up prednisone. Now I made it to…

Try To See The Good In Everything

Change is inevitable. No matter how much we want things to stay or go back to how they were, they never are. So why grieve over the past that can never return. Yes, you were healthy and vibrant a year ago and now you have a chronic illness where you feel like crap most of…

The Weekend Revisit: The Passages Of Time

Why is it that time flies? When I was a boy, it seemed as if time took forever to pass through my universe, but now as an adult, a day, a month, a year flies by in the blink of an eye. I have been at this blogging adventure for a little over two years…

Yes, I Am Alive!

Someone that follows my blog sent an email to me the other day, asking if I was alive as I have not been writing. Yes, I am alive! What can I say? I have been busy but honestly I just haven’t had the zeal to write on my blog, write my book or even journal….

Surviving Without Air!

I recently took a vacation and I decided at the last minute not to travel with my supplemental oxygen. What? Are you crazy man? Yep, you read that correctly. I decided to hop on a plane for a 7.5 hour trip with supplemental oxygen. If you are here for the first time, just a quick…

Breathing Easier

When jets are at altitude, the inside of the plane is pressurized to simulate earth at about 8,000 feet. For a person with breathing problems, any altitude above 9,000 feet can cause problems. In the last year I had my fair share of air travel. I have seen the inside of JFK a total of…

The Weekend Revisit Of “The Power Of Positivity”

When I was first diagnosed with heart failure in August 2007, I was told my ejection fraction was 25% and I needed to have an ICD implanted. That was immediately after having surgery to close a hole in my heart, and during that surgery doctors came to the realization that sarcoidosis had gone into the heart….

Day 40 Of My Mantra Meditation “Challenge” Complete. 

I am practicing meditation for a few years now but mostly guided meditations and not everyday. A lot of the time I would fall asleep during it.  Today I finished a “test” (I prefer test over challenge) of doing a mantra meditation for forty days straight and I have not missed a day.  I will…

The Weekend Revisit Of: The Only True Healer Is You

I came across a blog recently that was written by a person with some of the same conditions that I have – heart failure and pulmonary hypertension. The tone of the writing was very angry and bitter towards both the diseases and the establishment.

The Most Selfish Thing A Person Can Do

I get daily emails of top news stories for my town and surrounding areas and in close proximity are two large bridges that span the mighty Hudson river and a major train line that goes into New York City. Every week, sometimes more than once a week, someone kills themselves by jumping off one of…

Wise Words Wednesday : Wayne Dyer #2

Kindness, Always Kindness Originally Posted on MAY 11, 2012 If you find yourself in a confrontation of any kind with anyone, be it a family member or a stranger, before reacting ask yourself, “Is what I am about to say motivated by my need to be right, or my desire to be kind?” Then pick…

Losing The Battle But Never Giving Up On The Fight

“You may have to fight a battle more than once to win it” – Margaret Thatcher This is my fifth or sixth attempt of coming off of prednisone and again it failed miserably. I started weaning off in November and had pain that was tolerable, and in the middle of February I decreased the dose…

Wise Words Wednesday : Wayne Dyer

Forgiveness Originally Posted on MAY 10, 2012 Revenge, anger, and hatred are exceedingly low energies that keep you from matching up with the attributes of the universal force. A simple thought of forgiveness toward anyone who might have angered you in the past will raise you to the level of Spirit and aid you in…

The Weekend Revisit Of: No Matter What You Do, I Send You Love

When I decided to return to massage school, I was assured by the school that they will work with me and my conditions. The school has been swallowed up by another corporation and the rules have changed. Of course now everyone is back tracking and claiming they never said as such, and that they were…

The Weekend Revisit of: A Wasted Heart?

  There is no greater gift than that of a second chance at life, and the ultimate gift is for a parent or spouse to decide to donate their loved one’s organs so that another person may have life. When an organ is donated, the recipient has a second chance, an opportunity given by the…

My Dreaded Registering With “The Man” Has Finally Come

Ever since developing cardiac sarcoidosis and getting my AICD implanted, I dreaded that one day it would affect my ability to get my driver’s permit. I love to drive, even in traffic. In summer my job requires that I drive an average of 4,000 miles in that time, and sometimes a 2 1/2 hour trip…

“Being Hip” Takes On A Whole Different Meaning Now

Sitting in my car in the parking lot of the mall, sipping on a Starbucks Frappucino, waiting for my wife and watching people go by, I try to keep moving around my leg to ease the discomfort of my hip. For the past couple of months my right hip has been aching off and on,…

Why Do I Need To Justify My Apple Watch?

I stood at the counter of the Starbucks, waiting for my mobile order. The ordering line was long and as usual and I could feel the eyes of those in the line on me, watching that I just walked in the door, right past all of them and straight to the pick up counter to…

Prednisone Withdrawal Is No Fun

Today marks exactly 10 years, non stop, that I am on Prednisone for sarcoidosis. The side effects of this medication can be horrendous, but thankfully my experience in those ten years were just mostly mood changes, thining skin and some weight gain. I am told that for being on it so long, my weight gain…

The Weekend Revisit of “Appreciating My Life”

Originally posted April 10, 2012It’s spring, and with it comes new beginnings, new life, new starts. I recently changed all of my bank accounts to another bank as my old bank was bought out. I had to change my work email address as there were technical difficulties with the old one. Little changes, big steps….

The Saturday Revisit Of “Why Do People Suffer?”

Originally Posted January 3, 2012 I was telling my wife about an email I received from someone telling me that they have suffered from sarcoidosis for many years, when she interrupted me and asked “Why do people suffer?”. The question stopped me in my tracks and I realized the sheer power of words and their…