And Then There Was One

1 mg of Prednisone. That is what I am down to. I haven’t been this low on a dose since starting the drug in 2006. The lowest I was ever able to get to was 3 mg and all hell would break loose, prompting me to go back up prednisone. Now I made it to…

Avoiding The Purity Sales Pitch

Sitting on the over stuffed, over sized grey leather sofa, I face him, amazed by his frizzed out hair and his 70s sense of fashion. He asks me a million and one questions about my health history, going even deeper into my emotional history. No other doctor had done that before. He studies me intently,…

Losing The Battle But Never Giving Up On The Fight

“You may have to fight a battle more than once to win it” – Margaret Thatcher This is my fifth or sixth attempt of coming off of prednisone and again it failed miserably. I started weaning off in November and had pain that was tolerable, and in the middle of February I decreased the dose…

“Being Hip” Takes On A Whole Different Meaning Now

Sitting in my car in the parking lot of the mall, sipping on a Starbucks Frappucino, waiting for my wife and watching people go by, I try to keep moving around my leg to ease the discomfort of my hip. For the past couple of months my right hip has been aching off and on,…

Prednisone Withdrawal Is No Fun

Today marks exactly 10 years, non stop, that I am on Prednisone for sarcoidosis. The side effects of this medication can be horrendous, but thankfully my experience in those ten years were just mostly mood changes, thining skin and some weight gain. I am told that for being on it so long, my weight gain…

Prednisone Demon Begone

I recently posted that my latest bone scan revealed osteoporosis in my spine. This has finally convinced my doctor to take me completely off of prednisone! Yea! I am on this demon, mood swing, hunger causing, bone reducing, diabetes causing, tendon weakening drug for ten years this coming April and I have tried to come…

Do I Look Like An Old Woman To You?

I am on prednisone now for ten years straight, without ever taking a break. My dosage has been as much as 70mg to as low the current 5mg. I am on what the call a “maintenance” dose, which translates to “because you are on prednisone for so long, your body can't make its own, so…

The Sunday Revisit Of “A Pill Doesn’t Weigh Anything”

Originally Posted December 6, 2011 When I was first diagnosed with Sarcoidosis in 2006, my BMI was 22. With a healthy BMI being between 18.5-24.9, I was slim and “normal”. Now five and a half years later, with no pause in taking prednisone, my BMI is now 27.1, which translates to being 30 pounds overweight….

Flashback Friday: Stepping Out Of The Fish Bowl

Originally posted to my blog on May 12, 2011 There is an old saying that “the last one to know they are in a fish bowl is the fish”, and I can say that has been true for me for the past few weeks. I have been angry and whiny and it has been reflecting…

Flashback Friday: Pushing On Through

Originally posted to my blog June 17, 2011 My wife and I are very busy at this time of the year, and it seems we are always working or going to appointments. We work together and are pretty much together 24 hours a day. Yet, one day a week we try to have a date…

Snapshots Of My Life: Am I Seeing Things?

The other night I was outside walking the dog, and this large green, dragonfly looking thing flew over us and hovered for a bit, and when I looked up I swear it had a human like face. I think that I have been taking too many prescription drugs for too long. I wrote this post…

Winter Is Ripping Apart My Hands

I'll admit that I am a germaphobe to a certain extent, but I am not OCD. I do wash my hands a lot, I am a chef after all and this winter is torture on my hands. The skin is already thin from being on prednisone for so many years, and add to that the…

Flashback Friday: If Someone Had Told Me

Originally posted to my blog on May 8, 2011 If someone told me five years ago that today I would have a hole in my heart that would be discovered only after having a mini stroke, I would have laughed.

I Found A Solution To My Dilemma Of Shaving

After years of being on prednisone for my sarcoidosis, my skin has thinned and sensitive. Add to that blood thinners, and I bruise if you look at me to hard. O shaving has become a chore and something I don't look forward to at all. In the summer months I shave every two or three…

The Good, The Bad And The Ugly

Admittedly, I have not been keeping up with posts to this blog, but life happens and time seems to slip away from me more and more. Hopefully I will be able to get a grip soon and be able to devote time more appropriately to the blog. Until then, here is a quick update of…

Flash Back Friday – Prednisone: My Nemesis

Originally Posted January 11, 2011 See the end of this post for an update on this post It’s confirmed, I’m pre-diabetic. I had a blood test called an AC1hemoglobin blood test which checks yourblood sugar levels for the last three months, and a pre-diabetic range is 5.7% – 6.4%. At 6.5% your are diabetic. I’m…