The Weekend Revisit Of “Crossing Bridges”

Originally posted on April 22, 2012 On a recent trip into NYC for my ICD interrogation, my wife and I took a train down town to see the 9/11 memorial. We have not been there since the buildings fell. Prior to the attacks we were often in the North Tower as my brother had his…

The Saturday Morning Revisit Of ” And I Play My Little Game

The Saturday Morning Revisits are posts that I wrote a few years back that I think deserve another look. Here is one originally posted December 14, 2011 entitled “And I Play My Little Game” I walk through the mall, in the grocery, the streets, and I watch into the eyes of strangers. They glance and…

Life Is Such A Roller Coaster Ride

Life in general, and especially when you have a chronic condition, is a roller coaster ride, isn't it? It seems that when ever anything good is happening, everything good happens. And then something negative rolls in, and it seems everything goes down hill. Earlier this year, I was on the crest of the ride. Everything…

An Even Easier Way To Sort Your Medications! Have It Done For You!

I used to take fifteen different medications over four different periods during the day at one point in my journey with Sarcoidosis and its a pain to try to remember what to take and when, especially when the medication you are taking messes with your memory. I originally bought a monthly pill sorter which works…

The Sunday Morning Revisit Of “Color Me Blessed”

The Sunday Morning Revisits are posts that I wrote a few years back that I think deserve another look. Here is one originally posted November 19, 2011 entitled “Color Me Blessed” I know, I sound like a stuck record about how blessed I am, blah, blah, blah. But I can’t help but look at all…

There Is Such A Thing As Too Much Support

One of the biggest complaints of people with chronic illness and chronic pain is that they don't get enough support from family and friends. I have always been an independent person, and never really needed support. My wife is a huge support to me and I don't need it from anyone else. A lot of…

The Weekend Worthy Revisit: It’s Just Air

Originally posted October 10, 2011 What is it about vanity? No matter how any of us can profess we are not vain, we are at some intrinsic level. Some where deep inside even the humblest of people lies the vain gene. I don’t think of myself as a vain man, but to some extent, I…

The Weekend Worthy Revisit: The Definition Of Me

Originally Posted on October 3, 2011 When I moved to the US 25 years ago, one of the things the struck me with the culture is people’s need to know what you did for a living. They would meet you, and immediately ask what type of work you did. I realized with time, that no…

The Weekend Worthy Revisit: Forgetting Buddy’s Birthday

  Originally Posted on September 17, 2011 I am great at remembering dates and numbers. I know obscure dates, phones numbers from my childhood, even most of my account numbers and credit card numbers. Today I realized I forgot Buddy’s Birthday. It was his birthday last August 28th, and I forgot. It’s pretty hard for…

The Weekend Worthy Revisit: Slap Me Again

Originally Posted September 24, 2011 For every action, there is an equal and opposite reaction. For every white there is black. For every wonderful day of weather you enjoy, there is probably going to be a rainy one or two coming up. The day must be followed by the night, and vice versa. No matter…

My Guest Post For The PHight Or Flight Project Is Up

Serena over at Phight Or Flight Project invited me to do a blog post on her site about my journey with pulmonary hypertension, and after many rewrites, I finally got a submission to her after a month or so, which she posted yesterday. Here is an excerpt from my post. “I did meditation. I exercised…

Some More Good News

I know that I said I was going to post some photos of my San Francisco trip, but alas, life caught up with me. The past three wells were crazy. My in laws were visiting for my wife's birthday, and work has been so crazy busy that I had time for nothing. My home office…

Going Happy Crazy At The Organic Grocer

Yesterday, I went to the local organic grocer, a small store with some very nice produce and as I walked into the store, I passed a display of the largest pink grapefruit I ever saw. I stopped and looked at them when suddenly I had an epiphany and loudly blurted out “Oh my God! Pink…

Awesomely Amazing Happy Results

I had a right heart catheterization on Monday to determine what is the cause of the increase in my shortness of breath and huge drop in oxygen saturation with exertion. The possibilities were either my pulmonary hypertension worsened or my heart is going back into failure. Turns out, amazingly, it's neither! All of my pulmonary…

V Is For Vacation

This is a Blogging From A To Z Challenge Post April 25th – V I will be taking a few days off from my blog, and I am resigning from the blogging A to Z challenge. I am having my heart catheterization on Monday morning, and I need to just concentrate on me and my…

R Is For Reschedule

This is a Blogging a From A To Z Challenge post April 21st- R I am supposed to have my heart catheterization in two weeks, but it turns out that somehow the date wasn't sitting right with me, and I always follow my intuition. I also found out that there is some work stuff that…

Q Is For Quiet

This is a Blogging From A to Z Challenge post April 18th – Q This year is nine years since being diagnosed with Sarcoidosis, and in that time I found that it is best to be quiet about my conditions, the way I feel and all what’s going on with me. My wife gave me…

O Is For Operations

This is a Blogging From A to Z Challenge post. April 17th – O If you told me nine years ago today that by now I would have five different operations, four of them alone heart related, I would probably have laughed. And then if you would have told me that I would have a…

N Is For Navigation

This is a Blogging A to Z Challenge post April 16th – N When I started along this journey of my life with sarcoidosis and the accompanying conditions of heart failure and pulmonary hypertension, I had to learn quickly how to navigate my way through the medical establishment. Since I have different conditions, I somehow…

E Is For Endurance

This Is A Blogging From A To Z Challenge Post April 6th – E    People with chronic illnesses are often looked upon as weak, pathetic and sorry individuals, people that no longer really have a place in the social circles of past. The truth is, people with chronic illnesses have to endure pain, fatigue,…

C Is For Changes Which Are Good Sometimes – I Hope

THIS IS A BLOGGING A TO Z CHALLENGE POST April 3, 2015 – “C”   2015 is proving to be a year of many changes so far. Some of the changes were stressful, and others were welcome, and yet others were surprising, but needed. And we still have a little over nine months to go…

Flashback Friday: Stepping Out Of The Fish Bowl

Originally posted to my blog on May 12, 2011 There is an old saying that “the last one to know they are in a fish bowl is the fish”, and I can say that has been true for me for the past few weeks. I have been angry and whiny and it has been reflecting…

Flashback Friday: The Nurse

Originally posted to my blog July 31, 2011 I have a real pet peeve with rudeness. It drives me up the wall, especially in the customer service area, and yes, nursing falls under that category too.I have been having a hard time with my breathing in the past couple of days and my chest hurts…

Flashback Friday: Pushing On Through

Originally posted to my blog June 17, 2011 My wife and I are very busy at this time of the year, and it seems we are always working or going to appointments. We work together and are pretty much together 24 hours a day. Yet, one day a week we try to have a date…

Hey Marketing Department, We’re Not All Over 80!

I have some chronic conditions that apparently medical supply marketers believe only happens to older people. If I look up pulmonary hypertention, I will get photos of grand ma and grand pa with their oxygen tanks, smiling and playing with their grandchildren. If I look up heart failure, it will be pictures of grand ma…