Thinking Out Loud Thursday: Nostradamus

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Six Word Story Saturday: “Friends”

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Wednesday Words Of Wisdom: Fame

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Could My Love Really Be Turning Against Me?!

I remember too well the day we met, almost thirteen years ago, a cool morning, the sun high in the cloudless New York City sky. We were introduced by, of all people, an Ayurvedic doctor that I had only met 30 minutes before. He said we would be good for each other. At first I was…

The Weekend Revisit Of: An Anthem For My Life With Sarcoidosis

When I am alone in the car, I like to listen to [podcasts] that I can learn something from. I would sometimes listen to [audiobooks]. They all help to keep me alert when I am driving alone. The other day I was listening to an interview and the host was interviewing the author of some…

Wednesday Words Of Wisdom: Ending Misery

All too often you hear people bitch and moan about their life. No one can ever make you do anything. You always have the option to refuse. You may probably lose your job or your partner but you will keep your integrity. Rather than be miserable, find the joy and love in your job, your…

The Weekend Revisit Of: I know What It Is Like To Be Me

If you devote yourself to the positives in your life, the negatives will begin to divorce you. — Philip Arnold I received an email from a reader the other day who chastised me for always “being happy”, and that I was full of “sh*t”, that no one with a chronic illness, especially as many as…

The Weekend Revisit Of: Sarcoidosis Knows No Color

I recently posted an entry called “Winter Is Tearing Me Apart“, in which I talked about my skin tearing due to the cold dry weather, and in that post I had a photo of my red, torn knuckles. Unbelievably, I received an email from a reader that said ” … saw your photo on the…

Stories From My Life: Time Traveling

A visit to records I walked into the ultra modern lobby of the building that housed the medical records for my pulmonologist. The shiny new, brightly lit, stainless steel lined elevator whipped me quickly to the floor that the offices were located. As the elevator stopped and I waited for the door to open, rather…

Wednesday Words Of Wisdom: The Naked Man

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The Weekend Revisit Of: Stop Obessing And Just Live

I get a few emails a week from readers of my blog just saying “hi” or to give me support and advice and a few to ask advice. Some are down right full of panic from people that have been recently diagnosed and are desperately looking for a cure. First off, unless you are a…

Becoming A Listener

I don’t talk about my conditions to anyone. There are very few people that do know about my conditions. When I do tell someone about my stuff I have come to realize that most people really don’t want to hear another’s problems. They may sympathize, but they really don’t want to hear about your problems….

The Weekend Revisit Of : Finding My Dreams In A Song

The other day my wife asked me if I had any dreams and I honestly could think of none. Have I allowed my condition to stop me from truly living? How the hell could I not have any dreams, or have I locked them away so that I don’t end up getting disappointed, or worse yet, I subconsciously don’t think I will

The Most Selfish Thing A Person Can Do

I get daily emails of top news stories for my town and surrounding areas and in close proximity are two large bridges that span the mighty Hudson river and a major train line that goes into New York City. Every week, sometimes more than once a week, someone kills themselves by jumping off one of…

Losing The Battle But Never Giving Up On The Fight

“You may have to fight a battle more than once to win it” – Margaret Thatcher This is my fifth or sixth attempt of coming off of prednisone and again it failed miserably. I started weaning off in November and had pain that was tolerable, and in the middle of February I decreased the dose…

My Dreaded Registering With “The Man” Has Finally Come

Ever since developing cardiac sarcoidosis and getting my AICD implanted, I dreaded that one day it would affect my ability to get my driver’s permit. I love to drive, even in traffic. In summer my job requires that I drive an average of 4,000 miles in that time, and sometimes a 2 1/2 hour trip…

Why Do I Need To Justify My Apple Watch?

I stood at the counter of the Starbucks, waiting for my mobile order. The ordering line was long and as usual and I could feel the eyes of those in the line on me, watching that I just walked in the door, right past all of them and straight to the pick up counter to…

Prednisone Withdrawal Is No Fun

Today marks exactly 10 years, non stop, that I am on Prednisone for sarcoidosis. The side effects of this medication can be horrendous, but thankfully my experience in those ten years were just mostly mood changes, thining skin and some weight gain. I am told that for being on it so long, my weight gain…