The Weekend Worthy Revisit: It’s Just Air

Originally posted October 10, 2011 What is it about vanity? No matter how any of us can profess we are not vain, we are at some intrinsic level. Some where deep inside even the humblest of people lies the vain gene. I don’t think of myself as a vain man, but to some extent, I…

The Weekend Worthy Revisit: The Definition Of Me

Originally Posted on October 3, 2011 When I moved to the US 25 years ago, one of the things the struck me with the culture is people’s need to know what you did for a living. They would meet you, and immediately ask what type of work you did. I realized with time, that no…

Awesomely Amazing Happy Results

I had a right heart catheterization on Monday to determine what is the cause of the increase in my shortness of breath and huge drop in oxygen saturation with exertion. The possibilities were either my pulmonary hypertension worsened or my heart is going back into failure. Turns out, amazingly, it's neither! All of my pulmonary…

Flashback Friday: Stepping Out Of The Fish Bowl

Originally posted to my blog on May 12, 2011 There is an old saying that “the last one to know they are in a fish bowl is the fish”, and I can say that has been true for me for the past few weeks. I have been angry and whiny and it has been reflecting…

My Intial Thoughts On The Inogen One G3 POC

I recently wrote a blog post about getting rid of my liquid portable oxygen and getting a personal oxygen concentrator [Click here to read the post]. The new unit, an Inogen One G3 Portable Oxygen Concentrator, was delivered on Friday and here are my initial thoughts on the unit. The unit comes with a wall…

Motivational Monday: It Has To Rain, But Not Today

Life with a chronic illness can suck at times, and for many, it seems the down days are more frequent than the up days. But when you do have the up days, make the most of it. Appreciate it. Enjoy it. Appreciate the rainbow and don't sit around waiting for the rain to return.  …

Flashback Friday: Pushing On Through

Originally posted to my blog June 17, 2011 My wife and I are very busy at this time of the year, and it seems we are always working or going to appointments. We work together and are pretty much together 24 hours a day. Yet, one day a week we try to have a date…

Sharing My World: Week #10

Here are my answers to Cee's Photography weekly Share Your World. WHEN YOU LOSE ELECTRICITY IN A STORM, DO YOU LIGHT THE CANDLES OR TURN ON THE FLASHLIGHT? HOW MANY OF EACH DO YOU OWN? Thankfully, we have a generator so if power goes, we're ok. We do have flashlights in case there is ever…

Thumbs Down? Really?

If you read my post about getting a portable oxygen concentrator, and hoping that insurance will pay for it, well, they won't. I am disappointed but not phased. I decided that I will just buy the unit myself. Right now, because of the changes to my insurance plan, I now have to pay $150.00 a…

Happy Birthday To Me!

It's my birthday! I made it to 53! I am so grateful to still be here on this planet. I was told in 2007 that I would need a heart /lung transplant by 2012, and I am still here with my original heart and lungs, functioning well. Yep, it's great to be 53!   Written…

Motivational Monday: Be Happy For This Moment

All too often, life with a chronic illness can be a pain, literally, but I always say I would rather be with the pain at times than have the alternative. Death. This is my life, and I cherish every moment of it. Even the days that may not be the best.   Written by Basil…

Winter Is Ripping Apart My Hands

I'll admit that I am a germaphobe to a certain extent, but I am not OCD. I do wash my hands a lot, I am a chef after all and this winter is torture on my hands. The skin is already thin from being on prednisone for so many years, and add to that the…

I Stopped Questioning The Universe

    I recently read a post (which inspired this post) over at fellow PAH blogger, Living On O2 For Life entitled “Why?” where she questions her place in the order of things with regards to surviving her pulmonary hypertension and living to adulthood when a child with the same condition died. If you are…

Flashback Friday: If Someone Had Told Me

Originally posted to my blog on May 8, 2011 If someone told me five years ago that today I would have a hole in my heart that would be discovered only after having a mini stroke, I would have laughed.