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Tag: support
The Weekend Revisit Of: On This Journey Together But Driving Individually
I receive a few emails a day, and some comments on the blog and Facebook. A lot of the comments and emails are supportive and a lot are pleading. Pleading for help with this disease called sarcoidosis. The thing is, the only way I can help is with emotional support. I can either figuratively hold…
The Weekend Revisit of: So What If You Don’t Look Sick?
I came across a blog the other day that gave mention to this past week as the Invisible Chronic Illness Awareness Week. Correct me if I’m wrong, but unless you have something manifesting on your skin, or you are coughing up a storm, aren’t all illnesses invisible? Most have no real outward symptoms. Of course…
Taking Care Of Me
It’s been a while since my last post, almost six weeks. A lot has happened health wise with me since then. Lots of testing and fighting with insurance to pay for the major part of the testing and just saying “F**k it!”, and paying for it myself. It has been a small journey, and one…
The Weekend Revisit Of “Making It Through On Love”
I am a very, very blessed man, and I know it. I get a few emails in response to “My Story” where I give a brief synopsis of my journey with sarcoidosis and heart failure, and I get at least one email a week commenting on how “hard” my experience has been, or asking for…
#Sarcoidosis Tweets Are The Whiniest Tweets There Are On The Planet
There! I said it and I could care less if you are mad, offended, upset or whatever. You could call me uncaring or cold, mean or nasty, but the truth is I am so fed up with seeing twitter posts in general with the hashtag for sarcoidosis because all they are are just a bunch…
The Weekend Revisit Of: No Matter What You Do, I Send You Love
When I decided to return to massage school, I was assured by the school that they will work with me and my conditions. The school has been swallowed up by another corporation and the rules have changed. Of course now everyone is back tracking and claiming they never said as such, and that they were…
The Sunday Revisit of “My Reply, To A Reply, On My Nurse Rant”
I posted this back in December 16, 2011, and it became a heated discussion with a nurse, so I thought I would revisit it here today, along with the lengthy comments, which were more interesting than the post itself! My Reply, To A Reply, On My Nurse Rant I recently posted a blog entry “Here…
There Is Such A Thing As Too Much Support
One of the biggest complaints of people with chronic illness and chronic pain is that they don't get enough support from family and friends. I have always been an independent person, and never really needed support. My wife is a huge support to me and I don't need it from anyone else. A lot of…
Questioning The Universe’s Decisions For Us Is Really Pointless
The other day I was reading on my iPad in bed when I fell asleep and my iPad fell onto my chest, right over my AICD*. The ipad has a keybord case, which has a magnetic closure, and magnets affect ICDs. They literally turn them off. This happened to me already before with my old…
It’s Time To Let Go
Why stress over someone that won't even check to see if you are alright? Sometimes you just need to distance yourself from people. Nobody is ever “too busy”. If they care, they’ll notice. If they don’t, you know where you stand with them. If they really care, they will make the time. Very often I…
Motivational Monday: It Has To Rain, But Not Today
Life with a chronic illness can suck at times, and for many, it seems the down days are more frequent than the up days. But when you do have the up days, make the most of it. Appreciate it. Enjoy it. Appreciate the rainbow and don't sit around waiting for the rain to return. …
I Stopped Questioning The Universe
I recently read a post (which inspired this post) over at fellow PAH blogger, Living On O2 For Life entitled “Why?” where she questions her place in the order of things with regards to surviving her pulmonary hypertension and living to adulthood when a child with the same condition died. If you are…
My 700th Post
Written by Basil Rene © 2014 All Rights Reserved
Life With A Chronic Illness Can Be A Chore, But Only If You Make It So
April will mark the 12th anniversary of the start of my journey with the disease sarcoidosis. My journey actually started long before, but April is when I went into have an open lung biopsy for a definitive diagnosis of the disease. It has been a long and arduous journey, but all in all, my life…
Why We Put Up Walls
Written by Basil Rene © 2014 All Rights Reserved
Flashback Friday: Peanuts Philosophy
Originally Posted March 23, 2011 The following is the philosophy of Charles Schulz, the creator of the ‘Peanuts’ comic strip. You don’t have to actually answer the questions. Just ponder on them. Just read straight through, and you’ll get the point. The Charles Schulz Philosophy 1. Name the five wealthiest people in the world. 2….
Motivational Monday: The Meaning Of Life
Written by Basil Rene © 2014 All Rights Reserved
What Closing My FaceBook Account Taught Me
I joined Facebook in 2007 when a friend of mine moved to Asia and was using the site to upload photos of their new baby. They were my only friend on the site until 2008 when suddenly a whole bunch of people discovered the site and started to send me friend requests. At the time,…
An Anniversary Of Angelic Intervention
Thirty three years ago tonight, at the age of nineteen, a neighbor that was about my age, who I really did not know very well, saw me in my front yard and came over to talk. He pointed to a house about three houses away from mine, obliquely opposite, and asked me if I ever…
Lonliness Really Does Not Have To Exist
There is something about Christmas time that I just love. To me, it is indeed the happiest season of all. But to many other people, it is a time filled with sadness steming mostly from lonliness. I don't ever recall being lonely. I have always enjoyed my own company, and essentially, I am a loner….
Flashback Friday: For Joyce
In May 2007, the week before I started my second semester of massage school, I had a TIA or mini stroke. This started me on the road to discovery that I had a hole in my heart and eventually to the fact I have heart failure. I had a barrage of tests, MRIs, x-rays, blood…
